Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Triangle Support?


SouthernCeliacGirl

Recommended Posts

SouthernCeliacGirl Newbie

Is there a support group in the triangle (Raleigh/Durham area)?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



phakephur Apprentice

There is, but I don't think it's very active.

Here's a link

Open Original Shared Link

If you don't get a reply when you contact them, try this e-mail instead warli001@duke.edu

Sarah

  • 3 weeks later...
SouthernCeliacGirl Newbie

Still trying to find people in Raleigh? Anyone out there??

SouthernCeliacGirl Newbie

Anyone from the Raleigh area? The support group here isn't very active, so I'd love to meet some new people.

olalisa Contributor

Welcome!!

I'm from the Raleigh area and tried to contact the TGIG group numerous times. I finally emailed their webmaster after the other contact person never replied and he did write back. He basically said that the group isn't active (lack of attendance/interest) and that the leaders were just burned out. I'm trying to decide if I have enough time/energy to try to breathe life into an official support group or if some of us should just maybe meet informally from time to time. Whaddya think?

ladydi Newbie

Hi

I am from Apex and would like to get to know some fellow celiacs also. Would be glad to be a part of an official or unofficial group.

Diane

olalisa Contributor

Welcome, Diane! and check your email :)

Hey...we have three. that's enough for a group, right?

Let's do this thing!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 3 weeks later...
SouthernCeliacGirl Newbie

I haven't been on here in a while b/c I was frustrated with getting no replies, but I would love to meet you two! I'm not sure yet how to send an e-mail through this, but once I figure it out I'll send you one. Hope to talk to you soon!

Lisa Mentor

Hey, don't forget about me.

I am in Edenton (about two hours east of Raleigh).

SouthernCeliacGirl, I am sorry that you did not feel welcome here or ignored. But that is not the first time that I have heard that. :( Try it again, perhaps it will be different. Tarheels are growing in numbers!

Lisa

  • 1 month later...
MrsWufie Newbie

I'm in Cary and would LOVE a suppport group or even just a group to bounce ideas and food finds with (like some yummy NO GLUTEN cheese puffs I found at Kroger).

I'm so new to this and feel (minus the two books I got at Borders and a supportive husband and family) kind of alone with this.

Thanks!

~B

Lisa Mentor

B:

This is the best support group that you can find. Everyone here on this site is wonderfully informative and the rule here is that there are no stupid questions. Everything that you could possible want/need to know is here.

The recipe section is boundless.

Welcome and always feel free to ask away.

Lisa

ladydi Newbie
I'm in Cary and would LOVE a suppport group or even just a group to bounce ideas and food finds with (like some yummy NO GLUTEN cheese puffs I found at Kroger).

I'm so new to this and feel (minus the two books I got at Borders and a supportive husband and family) kind of alone with this.

Thanks!

~B

You're not alone! I have been gluten free for about 2 1/2 years now and it gets to be a lot easier.

We are very lucky to have Whole Foods and Trader Joe's as you said, but I have found that buying my bread mixes etc from Amazon is even easier. I also get a lot of flours from the Asian Market at South Hills. Of course, this all depends on how much baking you like to do. Lowes foods on Kildaire Farms Road carries a small selection in their frozen foods, waffles, Amy's frozen meals and breads.

There are a few of us locally that have said we'd like to get together, but have not done it yet. Busy lives of course. Ask any questions you have and I will be pleased to help.

  • 4 weeks later...
UNCHeel Rookie

I'm here in N.Raleigh so if you all get together please let me know.:)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748

    ZENken
    Newest Member
    ZENken
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.