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Need Gi Doctor In Columbus/cent Ohio Area


kara7

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kara7 Rookie

Please Please help me find a doctor who will help me. My family doctor doesn't have a clue, and the most recent GI I went to was an absolute jerk.

Thanks so much.

Kara


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casnco Enthusiast
Please Please help me find a doctor who will help me. My family doctor doesn't have a clue, and the most recent GI I went to was an absolute jerk.

Thanks so much.

Kara

Kara:

I went to Michael Stiff at St. Ann's. He was great! My tests came back negative but I had been gluten-free for more than 3 months when I was finally able to get in. I wasn't about to eat gluten for the testing I just wanted to make sure I was alright on the inside. I also have Dermititis Herpiformosa and was diagnosed positive celiac with blood work after a prolonged outbreak.

Good Luck.

Debbie

  • 2 weeks later...
PeaceAngel22 Apprentice

I think this thread is a sign from above. I have an appointment set up with Dr. Michael Stiff at the beginning of February. My mom is a patient of his and says he listens and is so kind. She just had an appointment with him and while there, explained the heck I have been going through. He sounded very interested in seeing me and said that I deserve a dx with what is going on with me. I am so glad to hear another positive review of him. I will post an update after I see him.

PeaceAngel22 Apprentice

Debbie, what is your story if I may ask and did Dr. Stiff want to do a Colonoscopy? What tests had you already gone through if you want to share. Thanks.

JayT Rookie

Kara,

Without question, I would go see Dr. Edison or Dr. Salt at Mt. Carmel. I have personal experience with both and they are the ones who diagnosed me over 10 years ago. Please let me know if you need any help finding them.

Thanks,

Jay Thurston

JayT Rookie

I also want to mention that if you need help finding the right grocery stores or restaurants in Columbus just shoot me an email or hit my through my site and you will find everything you need.

Thanks again and good luck!

-Jay

casnco Enthusiast
Debbie, what is your story if I may ask and did Dr. Stiff want to do a Colonoscopy? What tests had you already gone through if you want to share. Thanks.

PeaceAngel22

My story, It isn't quite finished I'm sure. As with most of us I am sure.

What happened to me was I broke out in a skin rash on my elbows. It was miserable. I thought it was my laundry detergent, the material my blouse and shirts were made of, or possibly stress. I tried everything. My doctor had no idea. One day at work I received an invitation to a seminar on Celiac Disease. It had nothing to do with my career and I had no idea why I was sent this invitation. I still don't know of an earthly reason. Anyway I didn't know what Celiac Disease was and I am naturally curious, so I looked it up on the internet. When I started reading the symptoms I was stunned! I had most of the symptoms and the skin rash was what sent me to a dermatologist. During my appointment I mentioned the above mentioned invitation and the idea I could have Celiac. My dermatologist Poo Poo'd me but reluctantly did the necessary biopsey. He told me if I didn't hear anything back from him it was negative. In the meantime he gave me a steroid cream and said to come back in a month. About a week later he called personally to appologise because I was right. He recommended an endoscopy and a meeting with a dietician. That is how I ended up on Dr. Stiff's door. I knew him from my days of working at St. Ann's and knew he was really good. I trusted him. Yes, he did want to do an endoscopy. Although my endoscopy tests were negative I did have the blood work drawn and the blood work was positive. So I would feel real comfortable with Dr. Stiff. He is worth the wait.

Good Luck.

Debbie


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PeaceAngel22 Apprentice

Thanks Jay and Debbie. I will keep posted you on my dx. Not sure if it is celiac but am leaning towards that. I will post whatever I find out so others may learn. I have improved on the gluten-free diet but I am not sure if that is the whole story with me. Good luck to all and Thanks!!

casnco Enthusiast
Kara,

Without question, I would go see Dr. Edison or Dr. Salt at Mt. Carmel. I have personal experience with both and they are the ones who diagnosed me over 10 years ago. Please let me know if you need any help finding them.

Thanks,

Jay Thurston

Jay,

Do you see Dr. Edison or Dr. Salt for routine check ups? I was just curious if it was necessary after diagnosis to continue seeing a GI doctor?

MissBlueJ05 Newbie

:)

I do agree that Dr. Salt is a good dr to see, although I think I've been to every single GI dr in Columbus. As of now all of them have given up on me and are sending me to Cleveland Clinic Feb 2nd. It's a long haul but I heard Dr. Timothy Rice there is outstanding. I have my own GI issues, but not celiac. My daughter does have celiac and it has become and absolute nightmare. She has eczema so the skin rashes associated with celiac are not easy to detect. She has not lost any weight, instead she's gained, and her abdomen seems really bloated. No matter how hard I try, I just can't afford gluten free foods all the time, so it's either eat what little we have, or go without. I can't let her starve. I took her to see Dr. Wallace Crandall at Childrens Hospital after her diagnosis and he is wonderful. However, I cannot say the same for their " I know everything, you know nothing" dietician. I understand I have to make changes and go by a gluten free diet for my daughter but I certainly don't need someone to belittle me in the process. So we have not had help from any dietician, other than Dr. Crandall's suggestions. Unfortunately, none of them help me afford the gluten-free foods. If anyone has any advice or suggestions, it would be greatly appreciated, and YES I would like to know about gluten-free places to eat in Columbus.

Thanks so much,

Pam in Ohio

Jay,

Do you see Dr. Edison or Dr. Salt for routine check ups? I was just curious if it was necessary after diagnosis to continue seeing a GI doctor?

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    • deanna1ynne
      And thank you for your encouragement. I am glad that her body is doing a good job fighting it. I also just want clarity for her moving forwards. She was only 6 for the last round of testing and she's 10 now, so I'm also hoping that makes a difference. It was weird during her last round of testing though, because right before her biopsy, we'd upped her gluten intake by giving her biscuits made from straight up vital wheat gluten, and her labs actually normalized slightly (lower ttg and her ema went negative). Bodies just do weird things sometimes! lol
    • deanna1ynne
      The first negative biopsy in 2021 just said "no pathological change" for all the samples, and the second one in 2022 said "Duodenal mucosa with mild reactive change (focal foveolar metaplasia) and preserved villous architecture." So I think Marsh score 0 in both cases, though it's not actually written in the pathology reports. I'm really hoping to get a clear positive result this time, just for her sake.  
    • Wends
      Hopefully the biopsy gives a conclusive and correct diagnosis for your daughter. Im in the UK and have been in the situation a few years ago of trying to rule celiac in or out after inconclusive results. Many symptoms pointing to it including the classic symptoms and weight loss and folate and iron deficiency. You have to play a waiting game. I also had the label of IBS and likely food allergy. Genetic test showed low risk for celiac but not no risk. It sounds like the Gastroenterologist is on it and hopefully will diagnose what it is correctly. Food hypersensitivity (allergy) can also cause similar symptoms and inflammation as well as mimicking IBS. Milk / dairy and wheat (cereal grains) being the biggest culprits. The “oesophagitis” and “gastritis” you mentioned can be caused by another gastrointestinal disorder called “eosinophilic gastrointestinal disorders”. These are named depending on which part of the gastrointestinal tract is affected. For example eosinophilic oesophagitis, eosinophilic gastritis, eosinophilic gastroenteritis, and more rare eosinophilic colitis. They are antigen (allergen) driven. When the blood test measuring anti-ttg antibodies is positive in absence of a positive ema test - which is more specific to celiac, this can also suggest food hypersensitivity (allergy). Usually delayed type allergy similar to celiac but not autoimmune if that makes sense. In this case the ttg antibodies are transient. Which happens. I’ve first hand experience. For info, evidence of villous atrophy too can be caused by food hypersensitivity. Not just by celiac disease. In Egid disorders the six food elimination diet, under a dietitian and gastroenterologist care, is the dietary protocol to figure out the culprit or culprits. Sometimes only two food elimination diet is used at first. The number one culprit is milk protein / dairy. Followed by wheat, eggs, soy, fish and seafood, and nuts. Most are only reactive to one food group or two. Most are only reactive to milk. Hope this is a helpful reply.
    • Bennyboy1998
      Yes gene HLADQ2 was positive 
    • Wends
      Wow, the system is crazy isn’t it? Maybe switch Doctors if you can. It’s surprising from what you’ve written it seems obvious it’s celiac disease. The “potential” diagnosis means celiac is developing and it basically just hasn’t done enough gut damage to be captured on the biopsy yet, and meet that “criteria” to satisfy the current system! Given the overwhelming evidence already - family history, positive ttg and ema. And your own experience and intuition which counts far more. And the labs being reproduced after gluten elimination and reintroduction- elimination and reintroduction diet is the gold standard too. Shame on the Doc and the system. What was the Marsh score? I’m guessing not 0 if it’s potential celiac. Meaning the autoimmune process has been triggered and started. Your daughter is obviously very healthy and her immune system is putting up a good fight. It can take years for the gut damage to build to a point where there’s overt symptoms and then a conclusive diagnosis, hence why many celiacs receive diagnosis later in life. You can prevent it. See the positive and the gift in that. Hopefully the gluten challenge confirms it, but if it doesn’t maybe get a second opinion?
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