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aussiegirl17

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aussiegirl17 Rookie

Hello everyone I am a 17 year old female from Australia looking to chat with other teens round about the same age about living with celiac disease,

Cheers Aussiegirl


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Kassie Apprentice

hey, welcome to the board! i'm sure you will meet people to talk to. i am 15 almost 16 and love to talk to other celiacs. feel free to e-mail me or pm me if you want. if you have any questions just ask :P

Anonymousgurl Contributor

Hey I'm 17 and have a BUNCH of food allergies...and I'd love to chat with you...feel free to message me sometime! I'd love to hear your story and what you go through...because it's REALLY tough for me, I'd just love to compare experiences with someone else (that's young)!

aussiegirl17 Rookie
Hey I'm 17 and have a BUNCH of food allergies...and I'd love to chat with you...feel free to message me sometime! I'd love to hear your story and what you go through...because it's REALLY tough for me, I'd just love to compare experiences with someone else (that's young)!

hey well basically this is my story from another one of my posts:

I started getting symptoms about 3 years ago, but took me a while to tell my mum because i was embarassed. basically everything i ate went straight through me. I went to a Dietician who suggested all these things and i can't remember how i directly got onto it, but through trial and error i discovered that when i didn't eat wheat/gluten i was absolutely fine. But because i hadn't been diagnosed i didn't stick to the diet properly and suffered for almost 2 and a half years. I had numerous blood tests and even produced a negative result from an endoscopy (small bowel biopsy). I kept returning to my doctor, who didn't seem to belive i had celiac disease and asking for more to be done because i knew that when i had no gluten i was absolutely fine but the slightest bit would trigger the symptoms again. I even went to an iridologist who told me i had an allergy to wheat without telling her a single thing about me. Finally i got sick of it all and went back to the doctor, who by now was a doctor i used to see before he was replaced by the doctor seeing me through my diagnosis, to write me a letter so i could join the coeliac society. He pulled up a blood test result from 2 years ago, highlighted in red, that tested for coeliac disease that basically proved i had it, the doctor was convinced anyway. I was of course upset that my previous doctor had neglected to tell me this. I am still puzzled as to why it was so hard to get a proper diagnosis, perhaps because i had half started a gluten free diet. The surgeon who performed the endoscopy told me to eat wheat before the test, but i couldn't because it made me so ill and i was attending school as well as a part time job.

so basically i've been half gluten free for 2 and half years and proper gluten free for almost a year now. But i still make mistakes and still get sick sometimes. There is quite a bit of gluten-free food you can buy from the supermarket over here, but i only live in a small town so there's not that much variety. It's still really difficult when i when i go out like shopping and i can't find anything to eat and to have to walk past macdonalds and KFC.

I'd love to hear your story, Aussiegirl

egiap10 Newbie

hi, yeah im your age from australia also. i read your story, and its so similar to mine! its good to hear other peoples stories, so you know ur not the only one going through this. yeah some doctors and gastroenterologists(dunno how to spell it hah) refuse to accept you have it when you clearly do. and yeah haha when all your freidns go somewhere and you just drink water it isnt so good.. but its getting easier with age. are you doing the final exam/hsc for high school this yr?? ive been so sick with this im going to go so bad i hardly turn up to school anymore.. so any times ive been tempted to drop out.

Kassie Apprentice

egiap10- I'm not from australia, but i just wanted to talk about the school stuff. Don't drop out! yes it might seem very tempting to you at some times, but in the long run it is not worth it. i too have missed so much school! i had to appeal (its when you have to go into this commitee and say you deserve your credit it) you have to do this if you miss too much school. during that whole proccess i was thinking it would be much easier to just give up, but they granted me credit and i have been able to keep my grades up! so anyways just thought i would reply ttyl

  • 2 weeks later...
Teku Apprentice

Hi i need more replys to my topic so check out the skate boarders only topic :) please


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Liz92 Rookie

My story is that my uncle, cousin, Dad, and two brothers are Celiac so when I got symptoms I knew it as probably Celiac and to be sure I had a screening. All the doctors said it wasn't Celiac disease-they are stupid ninnys. My 15 yr. old brother, tho, he's stupid and aets gluten and suffers because he loves it to much. wierdo. BTW, I'm almost 15 and I'm from Utah.

:rolleyes: Lizzie

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    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
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    • Xravith
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    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
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