Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hi Everyone


aussiegirl17

Recommended Posts

aussiegirl17 Rookie

Hello everyone I am a 17 year old female from Australia looking to chat with other teens round about the same age about living with celiac disease,

Cheers Aussiegirl


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kassie Apprentice

hey, welcome to the board! i'm sure you will meet people to talk to. i am 15 almost 16 and love to talk to other celiacs. feel free to e-mail me or pm me if you want. if you have any questions just ask :P

Anonymousgurl Contributor

Hey I'm 17 and have a BUNCH of food allergies...and I'd love to chat with you...feel free to message me sometime! I'd love to hear your story and what you go through...because it's REALLY tough for me, I'd just love to compare experiences with someone else (that's young)!

aussiegirl17 Rookie
Hey I'm 17 and have a BUNCH of food allergies...and I'd love to chat with you...feel free to message me sometime! I'd love to hear your story and what you go through...because it's REALLY tough for me, I'd just love to compare experiences with someone else (that's young)!

hey well basically this is my story from another one of my posts:

I started getting symptoms about 3 years ago, but took me a while to tell my mum because i was embarassed. basically everything i ate went straight through me. I went to a Dietician who suggested all these things and i can't remember how i directly got onto it, but through trial and error i discovered that when i didn't eat wheat/gluten i was absolutely fine. But because i hadn't been diagnosed i didn't stick to the diet properly and suffered for almost 2 and a half years. I had numerous blood tests and even produced a negative result from an endoscopy (small bowel biopsy). I kept returning to my doctor, who didn't seem to belive i had celiac disease and asking for more to be done because i knew that when i had no gluten i was absolutely fine but the slightest bit would trigger the symptoms again. I even went to an iridologist who told me i had an allergy to wheat without telling her a single thing about me. Finally i got sick of it all and went back to the doctor, who by now was a doctor i used to see before he was replaced by the doctor seeing me through my diagnosis, to write me a letter so i could join the coeliac society. He pulled up a blood test result from 2 years ago, highlighted in red, that tested for coeliac disease that basically proved i had it, the doctor was convinced anyway. I was of course upset that my previous doctor had neglected to tell me this. I am still puzzled as to why it was so hard to get a proper diagnosis, perhaps because i had half started a gluten free diet. The surgeon who performed the endoscopy told me to eat wheat before the test, but i couldn't because it made me so ill and i was attending school as well as a part time job.

so basically i've been half gluten free for 2 and half years and proper gluten free for almost a year now. But i still make mistakes and still get sick sometimes. There is quite a bit of gluten-free food you can buy from the supermarket over here, but i only live in a small town so there's not that much variety. It's still really difficult when i when i go out like shopping and i can't find anything to eat and to have to walk past macdonalds and KFC.

I'd love to hear your story, Aussiegirl

egiap10 Newbie

hi, yeah im your age from australia also. i read your story, and its so similar to mine! its good to hear other peoples stories, so you know ur not the only one going through this. yeah some doctors and gastroenterologists(dunno how to spell it hah) refuse to accept you have it when you clearly do. and yeah haha when all your freidns go somewhere and you just drink water it isnt so good.. but its getting easier with age. are you doing the final exam/hsc for high school this yr?? ive been so sick with this im going to go so bad i hardly turn up to school anymore.. so any times ive been tempted to drop out.

Kassie Apprentice

egiap10- I'm not from australia, but i just wanted to talk about the school stuff. Don't drop out! yes it might seem very tempting to you at some times, but in the long run it is not worth it. i too have missed so much school! i had to appeal (its when you have to go into this commitee and say you deserve your credit it) you have to do this if you miss too much school. during that whole proccess i was thinking it would be much easier to just give up, but they granted me credit and i have been able to keep my grades up! so anyways just thought i would reply ttyl

  • 2 weeks later...
Teku Apprentice

Hi i need more replys to my topic so check out the skate boarders only topic :) please


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Liz92 Rookie

My story is that my uncle, cousin, Dad, and two brothers are Celiac so when I got symptoms I knew it as probably Celiac and to be sure I had a screening. All the doctors said it wasn't Celiac disease-they are stupid ninnys. My 15 yr. old brother, tho, he's stupid and aets gluten and suffers because he loves it to much. wierdo. BTW, I'm almost 15 and I'm from Utah.

:rolleyes: Lizzie

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      6

      Help understand results

    2. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      10

      Insomnia help

    3. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

    4. - pothosqueen posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,990
    • Most Online (within 30 mins)
      7,748

    pothosqueen
    Newest Member
    pothosqueen
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      That test is saying that your daughter is not making normal amounts of any IGA antibodies.  She's not making normal amounts of antibodies against gliadin, not against bacteria, not against viruses.  She is deficient in total IGA, so the test for antigliadin antibodies is not valid.  The test was a failure.  The test only works if all different kinds of antibodies were being made.  Your daughter is not making all different kinds of antibodies, so the test results are moot.  Your daughter should have the DGP IgG and TTG IgG tests done.   The tests should be performed while she is still consuming gluten.  Stopping and restarting a gluten containing diet can make her more sick, just like you refuse to eat gluten for testing.  Call the doctor's office, request both the IGG tests. Request to be put on the cancellation list for an appointment sooner.  Ask for genetic testing.   Celiac disease is passed on from parents to children.  You and all seven children should be tested for genes for Celiac disease.  Your parents, your siblings and their children should be tested as well.  Eating gluten is not required for genetic testing because your genes don't change.  Genetic testing is not a diagnosis of Celiac disease.  Just having the genes means there is the potential of developing Celiac disease if the Celiac genes are activated.  Genetic testing helps us decide if the Celiac genes are activated when coupled with physical symptoms, antibody testing, and biopsy examination. It's frustrating when doctors get it wrong and we suffer for it.  Hang in there.  You're a good mom for pursuing this!  
    • knitty kitty
      @hjayne19, So glad you found the information helpful.  I know how difficult my struggle with anxiety has been.  I've been finding things that helped me and sharing that with others makes my journey worthwhile. I like Life Extension Bioactive Complete B Complex.  It contains the easily activated forms of B vitamins needed by people with the MTHFR genetic variation often found with Celiac disease.   Avoid B Complex vitamins if they contain Thiamine Mononitrate if possible.  (Read the ingredients listing.)  Thiamine Mononitrate is the "shelf-stable" form of B 1 that the body can't utilize.  B vitamins breakdown when exposed to heat and light, and over time.  So "shelf-stable" forms won't breakdown sitting on a shelf in a bright store waiting to be bought.  (It's also very cheap.)  Thiamine Mononitrate is so shelf-stable that the body only absorbs about thirty percent of it, and less than that is utilized.  It takes thiamine already in the body to turn Thiamine Mononitrate into an active form.   I take MegaBenfotiamine by Life Extension.  Benfotiamine has been shown to promote intestinal healing, neuropathy, brain function, glycemic control, and athletic performance.   I take TTFD-B1 Max by Maxlife Naturals, Ecological Formulas Allthiamine (TTFD), or Thiamax by EO Nutrition.  Thiamine Tetrahydrofurfuryl Disulfide (TTFD for short) gets into the brain and makes a huge difference with the anxiety and getting the brain off the hamster wheel.  Especially when taken with Magnesium Threonate.   Any form of Thiamine needs Magnesium to make life sustaining enzymes and energy.  I like NeuroMag by Life Extension.  It contains Magnesium Threonate, a form of magnesium that easily crosses the blood brain barrier.  My brain felt like it gave a huge sigh of relief and relaxed when I started taking this and still makes a difference daily.   Other brands of supplements i like are Now Foods, Amazing Formulas, Doctor's Best, Nature's Way, Best Naturals, Thorne, EO Nutrition. Naturewise.  But I do read the ingredients labels all the time just to be sure they are gluten and dairy free. Glad to help with further questions.  
    • trents
      Welcome to the celiac.com community @pothosqueen!   Can you be more specific about which IGA test was run that resulted in 114 score and said to be "normal" and could you please include the reference range for what would be normal? By the size of that number it looks like it may have been what we call "total IGA" but that test is not usually run without also running a TTG-IGA. Total IGA tests for IGA deficiency. If someone is IGA deficient, then the celiac-specific IGA tests like the TTG-IGA will be inaccurate. Was this the only IGA test that was run? To answer, your question, yes, a positive biopsy is normally definitive for celiac disease but there are some other medical conditions, some medications and even some food proteins in rare cases that can cause positive biopsies. But it is pretty unlikely that it is due to anything other than celiac disease.
    • pothosqueen
      Upper endoscopy last week resulted in positive biopsy for celiac disease. The IgA they ran was normal (114). Does positive biopsy automatically mean definitive diagnosis?
    • hjayne19
      This is great thank you very much @Scott Adams
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.