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Enterolab Accuracy Question

ReneCox

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ReneCox Contributor
ReneCox
Posted

Is enterolab totally accurate? I haven't gotten tested by it yet and I was wondering about it's accuracy.

Also, this is a totally diff. subject but yesterday I ate some "Enjoy life" gluten-free, soy free, milk free, nut free cookies and about 30 minutes later I had INTENSE gas(which I still currently have). Does anyone know what could be the cause of this? I haven't had a cookie in nine months(I didn't eat sweets even before I was gluten-free)

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CMCM Rising Star
CMCM
Posted

Since a gluten reaction occurs FIRST in the intestines, it made total sense to me to do stool testing for the antibodies. I have read several places that the stool testing picks up reactions that the blood tests miss. Certainly that was true for me. I had really been eating minimal gluten because I KNEW it was problematic, and I just couldn't bear the idea of eating a lot of gluten foods just to create a reaction on a blood test. I had previously had a blood test which didn't show anything....but due to the symptoms I was having, I decided to do the Enterolab test panel, which showed me a lot. I believe Dr. Fine and Enterolab is WAY ahead of the general medical community, which is largely clueless and only know that you do a blood test....they don't know diddly squat about Dr. Fine's research and testing. Since the antibodies can show up in the stool samples for up to a year after you've eliminated gluten from your diet, I'd say it's a lot more useful than the blood testing.

CMCM Rising Star
CMCM
Posted

When I first went gluten free I tried a lot of the gluten free cookies, cakes, breads etc. I had a HORRIBLE time with most of them....they seem to have a ton of ingredients and a lot of sugar...sometimes sugar is the first ingredient! They contain various flours and starches (which I already knew I had trouble with), and while I was eating these things I had many of the same symptoms I had from eating gluten (and dairy). When I stopped eating them, the problem went away.

celiacgirls Apprentice
celiacgirls
Posted

Enterolab's testing hasn't been peer reviewed so many doctors are skeptical about it.

I believe for my family it was accurate. One of my daughters had mild GI symptoms her whole life, beginning when I gave her wheat. All of her blood tests were negative for celiac. When I tested her with Enterolab, it was positive and her symptoms are mostly gone. She has also given up soy and casein so gluten wasn't her only problem

My other daughter and I had no GI symptoms but we tested positive, too. Both of us had symptoms of depression and irritability which have completely gone away for me now that I am gluten-free. My daughter's symptoms have gone away for the most part but she is more likely to eat some gluten than I am. She also tested positive for casein intolerance and she definitely reacts immediately to trace amounts of casein with hostile, aggressive behaviour. Also, after 10 days of the gluten-free diet, she ate a cupcake at a party and came home feeling sick. The next day, she was tired, irritable, and unable to think clearly enough to do her math homework.

As CMCM said, it does make sense to me that the antibodies would show up first in the intestines. The testing for the antibodies is the same as the blood test. The only difference is where the sample comes from. At this point, though, I don't think anyone can say the test is totally accurate. But that is also true for the regular blood tests and even the biopsy.

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