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DElizabethE

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DElizabethE Apprentice
DElizabethE
Posted

Hi,

I was wondering if anyone is from NH. I was diagnosed in early Nov. and working hard on getting myself better. Had a really rough night with abdominal pain (severe intestinal spasms) and almost went to the ER...again. I have been gluten free but my Dr. said it would take awhile and I can tell it's improving...crazy as that sounds. I have been checking out this message board for while now but only registered last night. You don't have to be from NH to write and say hi. I'm thankful for all of you out there because I don't feel alone anymore.

Diane

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happygirl Collaborator
happygirl
Posted

Hey Diane,

Welcome to the board! Happy that you were reading and have now joined. Its a great resource. Please feel free to chime right in, and ask lots of questions!

I'm not in NH, but wanted to welcome you anyways :). I'm sure someone from your area will chime in.

Sorry to hear that you had a rough night---that is no good. I hope that today is better for you though!

Yes, it can take awhile to fully recover. It is encouraging that you are doing better. How are you doing with the diet/accidental glutenings? Checking all your food labels, aware of cross contamination, medicines, etc?

Let us know what we can do to help!

Laura

DElizabethE Apprentice
DElizabethE
Posted
  • Author
Hey Diane,

Welcome to the board! Happy that you were reading and have now joined. Its a great resource. Please feel free to chime right in, and ask lots of questions!

I'm not in NH, but wanted to welcome you anyways :). I'm sure someone from your area will chime in.

Sorry to hear that you had a rough night---that is no good. I hope that today is better for you though!

Yes, it can take awhile to fully recover. It is encouraging that you are doing better. How are you doing with the diet/accidental glutenings? Checking all your food labels, aware of cross contamination, medicines, etc?

Let us know what we can do to help!

Laura

Hi Laura,

Thanks for writing back. It feels so good to know they're are people who really understand. My family is very supportive but they don't live close by. Two sisters in Mass. and my Mom in NC (my Dad passed away last May).

So far, so good today but we'll see what the night brings. In the beginning of my changing to gluten free I made my mistakes. It was frustrating and I'm also lastose intolerant. So for awhile besides fresh fruit, veg and meat I didn't eat anything unless it said right on the label "gluten free". I still do that and if I'm not sure I don't eat it. I saw a nutritionist twice and she was a help with resources around this area. I can email her anytime I have a question. As for cross contamination I think I've been doing well (my own toaster, bread board, utensils, clean cooking area etc.). But there's always that chance. I guess it took a long time to get this way so it might be a long road back for me. My Dr. has me call him weekly with how many episodes of pain I've had.

But soon it may just not be me I'm thinking about. My 10 year old daughter has an app't with a pediatric gastroenteroligist this week. Both my daughters had blood work done. My 7 year old is negative. My sons are older and will be tested soon.

Anyways, thanks again and I'm sure I'll have lots of questions to ask members.

Diane

DElizabethE Apprentice
DElizabethE
Posted
  • Author

Still looking for anyone from NH. Maybe even Mass. because I'm only an hour or so away. I'd like to find a support group but not sure where to look. Any suggestions? Thanks.

Diane

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nmw
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      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
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