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jetiduncan Newbie

I certainly feel for everybody with a child with behavioral outbursts relating to Gluten Exposure.

Keep in mind also that it's not just from the gluten. Many of our children with Celiac Disease have major nutritional deficiencies that we need to find and fix. My 7 year old is very aggressive when gluten is involved and he has become somewhat aggressive w/out it too. We figured out that he had elevated histamines which can also cause aggressive behavior.

When we did his IgG this past August it was OVER 100. It is now down to 7!!!!! That is awesome and we are still working through other nutritional deficiencies. It is almost impossible in our neck of the woods to find a truly experienced pediatrician in the area of celiac disease. Our last one just decided that putting our child on an ADHD drug was the answer IT was FAR from the answer. IT was terrible and we reverted back to going with natural remedies.

We have really been striving to get him back to being non-aggressive through diet and supplements and we are seeing some good results. Just wish the school could see that having a gluten free environment would be a good thing all around. Instead, our child sits in a class with gluten all around him. So, he's bound to have some issues that come up and while I want to be supportive of his educators, they sure need a lesson in support of celiac disease kids.


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Ms Jan Rookie

Really feel with all of you struggling with food intolerant kids. I just have a niece with behavioral symptoms, but it's heart breaking to watch. Coming from a family ripe with schizofrenia and the like - and having struggled with my own share of problems before self diagnosing - I've become convinced about the connection between celiac/food intolerances and 'brain' symptoms.

Here're some interesting links:

Giving some scientific bacground -

Open Original Shared Link

For those for whom the gluten free diet isn't enough, Elaine Gottschall's 'Breaking the Vicious Cycle' on the Specific Carbohydrate Diet (SCD), developed ia, for autistic kids, might be useful -

Open Original Shared Link

And pecanbread is the site for the SCD particularly aimed at parents with autistic children (but can be helpful I believe for all 'food problem' children) -

Open Original Shared Link

In any case, it seems food sensitive kids are very often highly sensitive to most if not all carb's, to sugar as well as additives, so if you haven't already done so, it might be worth checking some of those items, maybe through an elimination diet.

We have a thread on the SCD going in the 'Other Food Intolerances, Leaky Gut etc' Forum. It's more aimed for adults, but some of you might find it useful, as it seems to be helping a lot of us celiac sufferers for whom going gluten free just isn't enough.

Hope you all find a workable path.

  • 1 month later...
ligeia Apprentice

Behavioral problems are one of my daughter's only symptoms. When she eats gluten she gets SO moody, irritable, and doesn't seem to be able to control her emotions/reactions very well at all. I picked up on it immediately because I feel the same way when I get glutened.

  • 6 months later...
2GirlsMom Newbie

Yeah, I hear ya! My daughter had BIPOLAR type of symptoms that actually went away imediately after stopping gluten. I was trying to help her behavior at daycare by providing my own snacks for her without any artificial colors, etc but I was loading her up with whole grain bars... uggg... lots of gluten. Then she's got removed from daycare due to her behavior. Going Gluten-Free changed her behavior within the first week.

I've even been able to STOP my Effexor and I was on 230 mg since getting off of gluten. I just did it because it was easier to eat what she eats.

Here's my and my daughter's story. So many people asked that I just put it on a webpage. It truly has been a complete life change (for the better).....

Open Original Shared Link

Hopefully our story can inspire others!

taweavmo3 Enthusiast

Don't have time to read all of the responses, so I'm probably repeating what everyone else said!

In a nutshell....my 5 year old's primary symptom is behavior. He had something a couple of weeks ago with gluten, and he was AWFUL. He became hateful, he was biting, hitting, screaming, name calling (bad names, saying terrible things). He honestly becomes like a psychotic child, which feels awful to say, but he does.

A week later, he is back to his angelic self. Saying "yes maam", being helpful, sharing, playing like normal.

It is honestly scary how mean he gets on gluten and milk, and I'm so thankful I knew to take those foods out of his diet, otherwise he probably would have ended up on some psych meds down the road. Trust your instinct......you aren't seeing things!

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    • Aretaeus Cappadocia
      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
    • trents
      @nancydrewandtheceliacclue, are you consuming dairy? Not sure if dairy is part of the carnivore diet.
    • nancydrewandtheceliacclue
      Hello Russ! Thank you so much for your reply.  I have not had an antibody test done, ever, relating to gluten. Last year I had an allergy test done via blood draw (as my insurance wouldn't cover the skin test) but this was for pollen and grasses, not food. Even on the blood test I had extremely high levels of reactions to each allergen. Could this seasonal allergy inflammation be contributing to my celiac inflammation? I am so careful, there is no way I could ingest gluten. For example, couple of months ago I tried a cough drop that says it was gluten free. I checked ingredients, it seemed fine. But just taking one of those caused me to have nausea, vomiting, and the same extreme abdominal pain. Have you ever heard of anyone else having symptoms like mine after being diagnosed celiac and strictly gluten free? The last episode I had like this was yesterday, after I ate a certified gluten-free coconut macaroon with a little chocolate on it. I have eaten coconut and chocolate before with no issue,  so I didn't see how I could all of a sudden have such a strong response. 
    • Russ H
      The sensitivity of people with coeliac disease varies greatly between individuals. The generally accepted as safe limit for most people is 10 milligrams per day. This equates to a piece of bread the size of a small pea. Some people report that they are more sensitive than this, but others can very occasionally eat a normal gluten containing meal without reacting. I don't think that touching or throwing bread around would lead to you ingesting enough to cause a reaction. There are case reports of farmers with coeliac disease reacting to the dust from gluten-containing animal feed but they were inhaling large amounts of dust over a long period of time in barns. Perhaps you episodes are caused by a reaction to something other than gluten? Have you had your antibody levels checked to see whether you are still being exposed to gluten?
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