Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ahhh, The Dentist...


Corkdarrr

Recommended Posts

Corkdarrr Enthusiast

I have read and skimmed over seemingly hundreds of posts about visiting the dentist since going gluten-free in July. However this morning...or really ever since two days ago when the office called to confirm my appointment, my brain has not actually been functioning.

I completely forgot about the whole dental products/gluten relationship.

I am so miserable. Uch. It hit me right around when I got to work. And I've been serving drinks and talking to people and smiling.

Really, I just want to sit here - in the office with the lights off curled up in an impossibly small ball on the chair.

When I got here I actually started writing a poem about my glutening. Not that I am functioning well enough to remember any of it, but I will tell you that it was quite clever. Rhyming and such.

Accidental glutenings through sheer stupidity make me so mad. Having my teeth cleaned wasn't FUN. It wasn't DELICIOUS. It hurt and my face got all wet and slobbery.

I should just go and eat some cheese sticks after work since I already feel like total a$$.

Writhing in my own stupidity,

Courtney


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MySuicidalTurtle Enthusiast

What did you get glutened by? I asked my dentist years ago to make sure everything was good for me and confirm with each visit and have never had a problem. Next time be sure to check everything out so you don't feel bad because that just sucks, Courtney.

ravenwoodglass Mentor

Boy can I sure sympathize. I think I finally found a good one though he is letting me check everything so there will be no doubt. You can get work done and not get glutened at the dentist, but it sure isn't easy. I had one who checked everything and even asked before she put gauze in my mouth but she is out of the area now and many dentists have a 'well that's not going to be in the stuff we use' attitude and just don't check. If you like this office call tommorrow tell them you reacted and ask if they will let you call on the products they will use if they don't time.

Sophiekins Rookie

Don't I wish I could go to the dentist without getting glutened. . .I've had the celiac disease diagnosis for 6 years now (that's 12 dentist visits, folks) and my dentist manages to gluten me without fail. We switched from flavoured tooth polishing paste to plain pumice to pressure wash; we stopped doing flouride treatments, she switched to gluten-free, latex free gloves and tools, she's stopped using gauze and cotton rolls. . .and guess what glutened me this time. . .yep, that's right, the FLOSS!! (Admittedly, I am hyper-sensitive). So I've given up - I get a dental exam (the bit where the actual dentist scrapes and prods your teeth) and that's it: no floss, no polishing, and no hygenist gets within ten feet of my mouth. And then I practice obsessive compulsive dental hygiene at home and pray I don't get cavities etc. . .

Nooner Newbie

I'm sorry you feel bad, Courtney!

I saw my dentist yesterday, first time since going gluten free. Very nerve-wracking. I was super paranoid, stressing I have allergies, allergies, and more allergies. Actually they are intolerances, but the dentist didn't seem to know the difference, and "allergy" makes them sit up and take notice. So anyway, I asked for powder-free gloves, and plain pumice, and managed to make it out safely. I guess my paranoia was worth it. I had the hygienist so nervous by the time I left, I felt bad...but I didn't get sick, so I got over it!

And in all honesty, the plain pumice was better than the nasty, artificially flavored stuff they use normally. I told my husband about it, and he's going to ask for plain pumice when he goes in, even though he doesn't have to worry about reactions.

I hope you feel better soon, and that next time is better!

Corkdarrr Enthusiast

The worst part is that it's totally and completely my fault for my brain shutting off. Never did the hint of a request even escape my lips...I just plum forgot! :blink:

Luckily it seems to be a rather mild glutening as compared to others. So now I'm definately glad I didn't go out for cheesesticks after work. Either way, it seems like the worst of it has passed.

Can I get some sort of reminder in July before my next visit?!

ravenwoodglass Mentor
The worst part is that it's totally and completely my fault for my brain shutting off. Never did the hint of a request even escape my lips...I just plum forgot! :blink:

Luckily it seems to be a rather mild glutening as compared to others. So now I'm definately glad I didn't go out for cheesesticks after work. Either way, it seems like the worst of it has passed.

Can I get some sort of reminder in July before my next visit?!

What you need to do is call the dentist, tell him to note the gluten 'allergy' in your charts and ask them to check everything before it is used on you. Offer to call yourself on all products they use if you have the time and the inclination. Don't trust it to memory and ask the person who schedules to mark the celiac beside your appointment in the book so they will remind you and themselves when they give you an appointment reminder call. Reaction intensities and presentations can change and if you do happen to need emergency work done at some time for a broken tooth etc. if they are glutening you when treated it can impede your healing ability and time. It's important that they pay attention to this


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Corkdarrr Enthusiast
What you need to do is call the dentist, tell him to note the gluten 'allergy' in your charts and ask them to check everything before it is used on you. Offer to call yourself on all products they use if you have the time and the inclination. Don't trust it to memory and ask the person who schedules to mark the celiac beside your appointment in the book so they will remind you and themselves when they give you an appointment reminder call. Reaction intensities and presentations can change and if you do happen to need emergency work done at some time for a broken tooth etc. if they are glutening you when treated it can impede your healing ability and time. It's important that they pay attention to this

That is an excellent suggestion - Thanks!

Aimee D. Newbie
What you need to do is call the dentist, tell him to note the gluten 'allergy' in your charts and ask them to check everything before it is used on you. Offer to call yourself on all products they use if you have the time and the inclination. Don't trust it to memory and ask the person who schedules to mark the celiac beside your appointment in the book so they will remind you and themselves when they give you an appointment reminder call. Reaction intensities and presentations can change and if you do happen to need emergency work done at some time for a broken tooth etc. if they are glutening you when treated it can impede your healing ability and time. It's important that they pay attention to this

I have been bombarded with cavities, cracked and broken teeth and many, many tooth infections this last year, unfortunately, prior to my diagnosis of celiac desease. Every time a dental procedure was done on my teeth I ended up with minor infections that would require antibiotic treatment and one Entodontist even put me on steriods for a short time. I was unaware until reading these posts that cleanings can gluten me. I will be sure and mention this before my next one. Just last week I printed and delivered a copy of these study results that were completed in 1990 in Finland. I gave this particular study to my dentist because it is short, to the point and very easy to understand. My dentist told me he was unfamiliar with celiac desease, but would be willing to research it and see what he could find out.

Sorry for all this, but I'm on my soap box now.. I just want to ask you guys to give your Dentist this oppurtunity to save themselves a lot of work and their patients a lot of discomfort. I believe that they could all play a major roll in early diagnosis and I know that's is something we are all concearned with.

Dental enamel defects in celiac disease.Aine L, Maki M, Collin P, Keyrilainen O.

Department of Oral and Maxillofacial Surgery, University Hospital of Tampere, Finland.

The teeth of 40 adults aged 19 to 67 yr with celiac disease (celiac disease) were examined for dental enamel defects (ED). A total of 33 of the 40 adults with celiac disease (83%) had systematic ED in contrast to only 5 of the 112 clinical controls (4%). Unspecific enamel lesions were found in both groups, but they were more common in the control group (80% vs. 18%). Altogether 69% of the permanent teeth in adults with celiac disease were found to be defected, in clinical controls only 19%. In adults with celiac disease the ED were in contrast to those in controls symmetrically and chronologically distributed in all four sections of dentition. The present study clearly shows that symmetrically and chronologically distributed enamel defects are strongly associated with celiac disease. Therefore in the absence of symptoms and signs of malabsorption dentists could easily select the right patients possibly suffering from celiac disease for gastroenterologic consultations.

PMID: 2401959 [PubMed - indexed for MEDLINE]

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Bob red mill gluten free oats

    2. - knitty kitty replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    3. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    4. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      High TTG-IgG and Normal TTG-IgA

    5. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,868
    • Most Online (within 30 mins)
      7,748

    LMGarrison
    Newest Member
    LMGarrison
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
      @SamAlvi, It's common with anemia to have a lower tTg IgA antibodies than DGP IgG ones, but your high DGP IgG scores still point to Celiac disease.   Since a gluten challenge would pose further health damage, you may want to ask for a DNA test to see if you have any of the commonly known genes for Celiac disease.  Though having the genes for Celiac is not diagnostic in and of itself, taken with the antibody tests, the anemia and your reaction to gluten, it may be a confirmation you have Celiac disease.   Do discuss Gastrointestinal Beriberi with your doctors.  In Celiac disease, Gastrointestinal Beriberi is frequently overlooked by doctors.  The digestive system can be affected by localized Thiamine deficiency which causes symptoms consistent with yours.  Correction of nutritional deficiencies quickly is beneficial.  Benfotiamine, a form of thiamine, helps improve intestinal health.  All eight B vitamins, including Thiamine (Benfotiamine), should be supplemented because they all work together.   The B vitamins are needed in addition to iron to correct anemia.   Hope this helps!  Keep us posted on your progress!
    • trents
      Currently, there are no tests for NCGS. Celiac disease must first be ruled out and we do have testing for celiac disease. There are two primary test modalities for diagnosing celiac disease. One involves checking for antibodies in the blood. For the person with celiac disease, when gluten is ingested, it produces an autoimmune response in the lining of the small bowel which generates specific kinds of antibodies. Some people are IGA deficient and such that the IGA antibody tests done for celiac disease will have skewed results and cannot be trusted. In that case, there are IGG tests that can be ordered though, they aren't quite as specific for celiac disease as the IGA tests. But the possibility of IGA deficiency is why a "total IGA" test should always be ordered along with the TTG-IGA. The other modality is an endoscopy (scoping of the upper GI track) with a biopsy of the small bowel lining. The aforementioned autoimmune response produces inflammation in the small bowel lining which, over time, damages the structure of the lining. The biopsy is sent to a lab and microscopically analyzed for signs of this damage. If the damage is severe enough, it can often be spotted during the scoping itself. The endoscopy/biopsy is used as confirmation when the antibody results are positive, since there is a small chance that elevated antibody test scores can be caused by things other than celiac disease, particularly when the antibody test numbers are not particularly high. If the antibody test numbers are 10x normal or higher, physicians will sometimes declare an official diagnosis of celiac disease without an endoscopy/biopsy, particularly in the U.K. Some practitioners use stool tests to detect celiac disease but this modality is not widely recognized in the medical community as valid. Both celiac testing modalities outlined above require that you have been consuming generous amounts of gluten for weeks/months ahead of time. Many people make the mistake of experimenting with the gluten free diet or even reducing their gluten intake prior to testing. By doing so, they invalidate the testing because antibodies stop being produced, disappear from the blood and the lining of the small bowel begins to heal. So, then they are stuck in no man's land, wondering if they have celiac disease or NCGS. To resume gluten consumption, i.e., to undertake a "gluten challenge" is out of the question because their reaction to gluten is so strong that it would endanger their health. The lining of the small bowel is the place where all of the nutrition in the food we consume is absorbed. This lining is made up of billions of microscopically tiny fingerlike projections that create a tremendous nutrient absorption surface area. The inflammation caused by celiac disease wears down these fingers and greatly reduces the surface area needed for nutrient absorption. Thus, people with celiac disease often develop iron deficiency anemia and a host of other vitamin and mineral deficiencies. It is likely that many more people who have issues with gluten suffer from NCGS than from celiac disease. We actually know much more about the mechanism of celiac disease than we do about NCGS but some experts believe NCGS can transition into celiac disease.
    • SamAlvi
      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.