Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Speaking Of Leg Pain~


jen2be2

Recommended Posts

jen2be2 Explorer

Hi everyone!

My 5 year old DD has been on a gluten-free Diet for 2 weeks now. Before she got dignosed she would complain of leg pain. As most of you know~ I thought it was just growing pains.

My question is how long does it take for the pain in her legs to go away after being gluten-free? Does this pain signify that her bones are weaker and she should get extra calcium supplements?

TIA~


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Electra Enthusiast
Hi everyone!

My 5 year old DD has been on a gluten-free Diet for 2 weeks now. Before she got dignosed she would complain of leg pain. As most of you know~ I thought it was just growing pains.

My question is how long does it take for the pain in her legs to go away after being gluten-free? Does this pain signify that her bones are weaker and she should get extra calcium supplements?

TIA~

Well everyone is different and I wouldn't be surprised if it takes the pain quite a while to subside. I've only been gluten free for about 4 weeks, but my leg pain went away within a week, but I still have slight aching in my foot every now and then. Nothing compared to what it was, but it still bothers me some times. My ribs still ache every now and then, but I usually assume that's from an accidental ingestion of gluten!!

I hope she feels better soon!!

tiredofdoctors Enthusiast

I DO believe in growing pains, but only when a child has had a significant growth spurt in a short period of time. It takes the muscles much more time to stretch to accommodate the growing bone, and the pull / stress that it puts on the bone and the joint can be pretty severe, depending upon the amount of growth.

That being said, if your daughter is celiac, then she may have some peripheral neuropathy -- which is pretty painful, I have to say. When you consider that nerves heal at the rate of 1mm per week, it's understandable that it can take a LONG time for her to start feeling better, if that's what she has. I wouldn't take her to a neurologist, though -- at her age, there's not much that he/she can do for peripheral neuropathy, and the testing isn't the most pleasant for kiddo's.

If you could get her to keep a pill under her tongue (good luck!), sublingual vitamin B12 may help a little. It is helplful in creating / keeping healthy nerves. Swallowing B12 is much less effective because of intrinsic factor -- it obliterates the vitamin. Putting it under your tongue, it goes through your mucous membranes and gets into your bloodstream without having to go through your stomach, and gets there faster (think: Nitroglycerin tablets).

Good luck to you, and I hope your daughter gets to feeling much better very soon.

jen2be2 Explorer

Thanks ladies!

I just left a message for our Dr, just in case he wanted to look into it further. I would rather play it on the safe side. :)

RiceGuy Collaborator

As has been said, everyone is different. Since your child is young, I'd have to guess that the healing would be faster, as there is likely less damage. That's not a definite though. The B12 is a good idea, and besides, it can't hurt to try it. There are liquid sublingual ones available, but I don't recall any of the methylcobalamin type. That is the most effective form to use, since the body doesn't have to convert it like the other more common forms. A Google search should help you locate some brands, but do be sure they specify gluten-free. Freeda and Source Naturals brands usually do, and I'm sure there are others too. Just how effective the other forms might be for your child I do not know, but at such a young age I'd hope the stomach is doing it's job. If it is, then it may be that B12 from foods is already being utilized sufficiently.

About the intrinsic factor produced by the stomach; this is the first step in the conversion process of B12 from foods, and in some people, the stomach doesn't produce it much or at all. In those cases, B12 from food sources will not be utilized, so a supplement is needed. The liver is also involved for further conversion, but only if the intestines are doing their job too. So as you can see, with several bodily systems involved, a person with Celiac can have trouble getting proper nutrients, and B12 happens to be one of the more common deficiencies.

Magnesium is another common deficiency, but again, at that age I'd think the damage is minimal.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,849
    • Most Online (within 30 mins)
      7,748

    Jadelucia
    Newest Member
    Jadelucia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.