Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Speaking Of Leg Pain~


jen2be2

Recommended Posts

jen2be2 Explorer

Hi everyone!

My 5 year old DD has been on a gluten-free Diet for 2 weeks now. Before she got dignosed she would complain of leg pain. As most of you know~ I thought it was just growing pains.

My question is how long does it take for the pain in her legs to go away after being gluten-free? Does this pain signify that her bones are weaker and she should get extra calcium supplements?

TIA~


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Electra Enthusiast
Hi everyone!

My 5 year old DD has been on a gluten-free Diet for 2 weeks now. Before she got dignosed she would complain of leg pain. As most of you know~ I thought it was just growing pains.

My question is how long does it take for the pain in her legs to go away after being gluten-free? Does this pain signify that her bones are weaker and she should get extra calcium supplements?

TIA~

Well everyone is different and I wouldn't be surprised if it takes the pain quite a while to subside. I've only been gluten free for about 4 weeks, but my leg pain went away within a week, but I still have slight aching in my foot every now and then. Nothing compared to what it was, but it still bothers me some times. My ribs still ache every now and then, but I usually assume that's from an accidental ingestion of gluten!!

I hope she feels better soon!!

tiredofdoctors Enthusiast

I DO believe in growing pains, but only when a child has had a significant growth spurt in a short period of time. It takes the muscles much more time to stretch to accommodate the growing bone, and the pull / stress that it puts on the bone and the joint can be pretty severe, depending upon the amount of growth.

That being said, if your daughter is celiac, then she may have some peripheral neuropathy -- which is pretty painful, I have to say. When you consider that nerves heal at the rate of 1mm per week, it's understandable that it can take a LONG time for her to start feeling better, if that's what she has. I wouldn't take her to a neurologist, though -- at her age, there's not much that he/she can do for peripheral neuropathy, and the testing isn't the most pleasant for kiddo's.

If you could get her to keep a pill under her tongue (good luck!), sublingual vitamin B12 may help a little. It is helplful in creating / keeping healthy nerves. Swallowing B12 is much less effective because of intrinsic factor -- it obliterates the vitamin. Putting it under your tongue, it goes through your mucous membranes and gets into your bloodstream without having to go through your stomach, and gets there faster (think: Nitroglycerin tablets).

Good luck to you, and I hope your daughter gets to feeling much better very soon.

jen2be2 Explorer

Thanks ladies!

I just left a message for our Dr, just in case he wanted to look into it further. I would rather play it on the safe side. :)

RiceGuy Collaborator

As has been said, everyone is different. Since your child is young, I'd have to guess that the healing would be faster, as there is likely less damage. That's not a definite though. The B12 is a good idea, and besides, it can't hurt to try it. There are liquid sublingual ones available, but I don't recall any of the methylcobalamin type. That is the most effective form to use, since the body doesn't have to convert it like the other more common forms. A Google search should help you locate some brands, but do be sure they specify gluten-free. Freeda and Source Naturals brands usually do, and I'm sure there are others too. Just how effective the other forms might be for your child I do not know, but at such a young age I'd hope the stomach is doing it's job. If it is, then it may be that B12 from foods is already being utilized sufficiently.

About the intrinsic factor produced by the stomach; this is the first step in the conversion process of B12 from foods, and in some people, the stomach doesn't produce it much or at all. In those cases, B12 from food sources will not be utilized, so a supplement is needed. The liver is also involved for further conversion, but only if the intestines are doing their job too. So as you can see, with several bodily systems involved, a person with Celiac can have trouble getting proper nutrients, and B12 happens to be one of the more common deficiencies.

Magnesium is another common deficiency, but again, at that age I'd think the damage is minimal.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,017
    • Most Online (within 30 mins)
      7,748

    Sjcucinotta
    Newest Member
    Sjcucinotta
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
    • knitty kitty
      Please do more research before you settle on nicotine. Dr. Paul New house is a psychiatrist.  His latest study involves the effect of nicotine patches on Late Life Depression which has reached no long term conclusions about the benefits.   Effects of open-label transdermal nicotine antidepressant augmentation on affective symptoms and executive function in late-life depression https://pubmed.ncbi.nlm.nih.gov/39009312/   I'm approaching the subject from the Microbiologist's point of view which shows nicotine blocks Thiamine B1 uptake and usage:   Chronic Nicotine Exposure In Vivo and In Vitro Inhibits Vitamin B1 (Thiamin) Uptake by Pancreatic Acinar Cells https://pubmed.ncbi.nlm.nih.gov/26633299/   While supplementation with thiamine in the form Benfotiamine can protect from damage done by  nicotine: Benfotiamine attenuates nicotine and uric acid-induced vascular endothelial dysfunction in the rat https://pubmed.ncbi.nlm.nih.gov/18951979/   I suggest you study the beneficial effects of Thiamine (Benfotiamine and TTFD) on the body and mental health done by Dr. Derrick Lonsdale and Dr. Chandler Marrs.  Dr. Lonsdale had studied thiamine over fifty years.   Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ I suggest you read their book Thiamine Deficiency Disease, Dysautonomia, and High Calorie Malnutrition.     Celiac Disease is a disease of malabsorption causing malnutrition.  Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • sleuth
      Thanks for your response.  Everything you mentioned he is and has been doing.  Tobacco is not the same as nicotine.  Nicotine, in the form of a patch, does not cause gastrointestinal irritation.  Smoking does. He is not smoking.  Please do your research before stating false information. Dr. Paul Newhouse has been doing research on nicotine the last 40 years at Vanderbilt University Medical Center.  
    • Jmartes71
      Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause and affect and past test that are not sticking in my medical records.I get sick violently with foods consumed, not eating the foods will show Im fabulous. After many blood draws and going through doctors I have the HLA- DQ2 positive which I read in a study that Iran conducted that the severity in celiac is in that gene.Im glutenfree and dealing with related issues which core issue of celiac isn't addressed. My skin, right eye, left leg diagestive issues affected. I have high blood pressure because im in pain.Im waisting my time on trying to reprove that Im celiac which is not a disease I want, but unfortunately have.It  has taken over my life personally and professionally. How do I stop getting medically gaslight and get the help needed to bounce back if I ever do bounce back to normal? I thought I was in good care with " celiac specialist " but in her eyes Im good.Im NOT.Sibo positive, IBS, Chronic Fatigue just to name a few and its all related to what I like to call a ghost disease ( celiac) since doctors don't seem to take it seriously. 
    • trents
      @Martha Mitchell, your reaction to the lens implant with gluten sounds like it could be an allergic reaction rather than a celiac reaction. It is possible for a celiac to be also allergic to gluten as it is a protein component in wheat, barley and rye.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.