Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hmm... Strange


boroboy77

Recommended Posts

boroboy77 Newbie

youll think im crazy but i fell off the wagon over the christmas, ate whatever i liked. the funny thing is i had no reaction. the most obvious thing usually for me was the feeling sick and the diarrhoea but there's been none of this. i tried to think of why and im thinking maybe its the 5-htp im taking... stress used to be a big problem for me which has disappeared taking this stuff, and i know stress can be related to GI unrest etc. i am not a quack, i just thought id give my twopence worth and see if there's anyone with a similar story. thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Sophiekins Rookie

How were you diagnosed? If you were diagnosed using a celiac blood panel or a multi-sample intestinal biopsy, you have celiac disease and you need to avoid gluten to protect your health. If you were diagnosed by stool sample or elimination diet, yes, it is possible that your digestive problems have resolved with stress management.

It is, however, entirely possible for some celiacs to eat "ordinary" food for months on end without symptoms (witness me, who was free of digestive symptoms and a perfectly healthy BMI for seventeen years). The problem with continuing to eat "ordinary" food in the absence of symptoms if you are a celiac is that it causes permanent damage to your body: I have decreased fertility (ie if I don't have a baby in the next five years, I probably won't be able to), permanently damaged stomach, liver, bladder, kidneys and intestines, peripheral neuropathy, ataxia, vertigo, Reynaud's syndrome, reduced lung-capacity, chronic sinusitis, very limited tolerance of fats, and a compromised immune system. Oh yes, and seizures and calciferous lesions of the brain.

Please think very carefully before you decide to abandon a gluten-free lifestyle.

Carriefaith Enthusiast

Have you been diagnosed with celiac disease?

plantime Contributor

No, this is not a weird phenomena. I, too, gave in on Christmas Day and ate pie with wheat crust. I had a little bit of a tummy ache. Period. Nothing else. I asked my doc about it, and she said that I have probably reached a point in my healing that I can tolerate an occasional mistake. Then she got all stern and bossy and told me not to act like an idiot, and stick to the diet! I got away with a dab that time, but continued eating will cause the intestinal damage all over again.

boroboy77 Newbie

i went back on the wagon after christmas so not really sure what happened... yes ive been diagnosed. ive had a gluten-free xmas the last 3 years previous to '06, and i guess i just cracked. have i undone 3 years of healing? pardon my ignorance but surely one little lapse wont kill me?

Ursa Major Collaborator

No, you wouldn't have undone three years of healing. It would take more than eating gluten for one day. But it takes about three weeks to heal the damage from one mistake. If you keep cheating let's say every three weeks, you'll never give your intestines a chance to heal, and you may as well not bother with the gluten-free diet, as you would, even without obvious symptoms, have the same risk of cancer as if you ate gluten every day.

So, if you stay gluten-free now, I think you'll be fine. Just don't purposely eat gluten again, it isn't worth the risk. And maybe next time you'll get terribly ill.

tarnalberry Community Regular

it's well reported that this sort of thing can happen. the body isn't a static thing that never changes. sometimes, you're not going to notice the symptoms, but it doesn't mean there isn't any damage. this is *particularly* true during the adolescent through mid-20's ages when hormone fluctuations leave people less likely to experience symptoms, regardless of damage.

as ursa noted, however, even occasional cheating defeats the purpose in the long run. remember that you're not doing this so that you feel good today, tomororw, and next week. you're doing this so that you stay healthy for the next three, four, five, or six DECADES. it's hard to focus that long term, but that's the goal.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,084
    • Most Online (within 30 mins)
      7,748

    bigwave
    Newest Member
    bigwave
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.