Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Frequent Fliers Unite!


Sophiekins

Recommended Posts

Sophiekins Rookie

I know there are tons of us who are gluten-free and have to avoid other foods as well. . .meaning that while airlines are making great strides in offering gluten-free meals, for many of us this isn't enough. On my last trip on British Airways, I was given a "Gluten-Free Meal" as I requested (shock! stunned disbelief! they actually remembered to put one on the plane??!!). Which would have been great, except that the bun was the only item on the tray with ingredients. . .thank god. . .and the ingredients started with "wheat starch". Now I know it's technically gluten free, but that doesn't stop it making me violently ill. Needless to say, this shattered my confidence in the gluten-free nature of the rest of my unlabeled meal, and I didn't eat any of it.

I'm now considering switching my business to airlines that don't ask me to pay for a meal (which, let's face it, without complete ingredients, I'm never going to eat), but it also occurred to me that we'd all do a lot better ("we" being the special meals contingent on the average airliner. . .which, if the number of tray-laden trips the flight attendants make before each serving is any indication, is a rapidly increasing number) if the airlines would clearly label the ingredients in their special meals.

So here's my plea: the next time you fly (on any flight that offers meal service), ask for a gluten free meal when you book your ticket, and write feedback to the airline explaining what happened to you after eating the meal (especially if it made it easier for you to fly or if you had a serious reaction) and letting them know how very much we'd appreciate complete ingredient listings on all of the parts of the meals they serve us (and how very depressing it is to get your "safe" meal and discover the only thing on it you can actually consume safely is the bottled water).

Let's spread the word and highlight the airlines that are celiac-friendly!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

While it's not really up to them, but with the caterers they contract out to, the airlines may be the only way to exert influence. While I don't take trips that involve meals (mostly flying along the west coast of the US, or even just in the states), I think it's a great idea, and should be done at every opportunity.

Sophiekins Rookie

When, in the past, I've spoken to the airlines about this, they've told me to write to their customer service department and ask that it be passed to their catering managers. . .who knows if that happens, but if enough of us do it, maybe we'll become un-ignorable?

dh204 Apprentice

hi everyone,

i travel internationally quite frequently, and since i'm a skyteam elite member, this means i usually fly on klm or air france. thus said, i have always had relatively decent gluten free meals with klm...the flight attendants sometimes forget and offer me bread, but then they always come back a few minutes later and apologize for having offered bread.

i would also like to point out a warning - don't know if it has been covered before, but delta airlines no longer offers gluten free meals AT ALL. after i purchased my ticket online i called to request the gluten free meal only to be told that they used to offer it but don't do it anymore. they said they couldn't request one via their catering company, and they couldn't tell me what the ingredients were in the other special meals. finally they agreed to refund me 100% of my ticket, so i think i'll be heading back to klm....

  • 6 months later...
rajawali Newbie
Let's spread the word and highlight the airlines that are celiac-friendly!

--------------

I fully suport this initiative. The airlines and their caterers will listen if enough noise is made, or if enough travellers switch to gluten-free friendly airlines.

My wife and I plan to visit Europe this fall. We will provide comments upon our return.

Rajawali.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

    2. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

    3. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    4. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,251
    • Most Online (within 30 mins)
      7,748

    Kathlane
    Newest Member
    Kathlane
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.