Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Frequent Fliers Unite!


Sophiekins

Recommended Posts

Sophiekins Rookie

I know there are tons of us who are gluten-free and have to avoid other foods as well. . .meaning that while airlines are making great strides in offering gluten-free meals, for many of us this isn't enough. On my last trip on British Airways, I was given a "Gluten-Free Meal" as I requested (shock! stunned disbelief! they actually remembered to put one on the plane??!!). Which would have been great, except that the bun was the only item on the tray with ingredients. . .thank god. . .and the ingredients started with "wheat starch". Now I know it's technically gluten free, but that doesn't stop it making me violently ill. Needless to say, this shattered my confidence in the gluten-free nature of the rest of my unlabeled meal, and I didn't eat any of it.

I'm now considering switching my business to airlines that don't ask me to pay for a meal (which, let's face it, without complete ingredients, I'm never going to eat), but it also occurred to me that we'd all do a lot better ("we" being the special meals contingent on the average airliner. . .which, if the number of tray-laden trips the flight attendants make before each serving is any indication, is a rapidly increasing number) if the airlines would clearly label the ingredients in their special meals.

So here's my plea: the next time you fly (on any flight that offers meal service), ask for a gluten free meal when you book your ticket, and write feedback to the airline explaining what happened to you after eating the meal (especially if it made it easier for you to fly or if you had a serious reaction) and letting them know how very much we'd appreciate complete ingredient listings on all of the parts of the meals they serve us (and how very depressing it is to get your "safe" meal and discover the only thing on it you can actually consume safely is the bottled water).

Let's spread the word and highlight the airlines that are celiac-friendly!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

While it's not really up to them, but with the caterers they contract out to, the airlines may be the only way to exert influence. While I don't take trips that involve meals (mostly flying along the west coast of the US, or even just in the states), I think it's a great idea, and should be done at every opportunity.

Sophiekins Rookie

When, in the past, I've spoken to the airlines about this, they've told me to write to their customer service department and ask that it be passed to their catering managers. . .who knows if that happens, but if enough of us do it, maybe we'll become un-ignorable?

dh204 Apprentice

hi everyone,

i travel internationally quite frequently, and since i'm a skyteam elite member, this means i usually fly on klm or air france. thus said, i have always had relatively decent gluten free meals with klm...the flight attendants sometimes forget and offer me bread, but then they always come back a few minutes later and apologize for having offered bread.

i would also like to point out a warning - don't know if it has been covered before, but delta airlines no longer offers gluten free meals AT ALL. after i purchased my ticket online i called to request the gluten free meal only to be told that they used to offer it but don't do it anymore. they said they couldn't request one via their catering company, and they couldn't tell me what the ingredients were in the other special meals. finally they agreed to refund me 100% of my ticket, so i think i'll be heading back to klm....

  • 6 months later...
rajawali Newbie
Let's spread the word and highlight the airlines that are celiac-friendly!

--------------

I fully suport this initiative. The airlines and their caterers will listen if enough noise is made, or if enough travellers switch to gluten-free friendly airlines.

My wife and I plan to visit Europe this fall. We will provide comments upon our return.

Rajawali.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - JoJo0611 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Awaiting Biopsy results

    2. - cristiana replied to emzie's topic in Related Issues & Disorders
      1

      Stomach hurts with movement

    3. - emzie posted a topic in Related Issues & Disorders
      1

      Stomach hurts with movement

    4. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      3

      Shingles - Could It Be Related to Gluten/ Celiac

    5. 0

      NCA Tennessee/Vanderbilt – Parents & Caregivers of Children with Celiac Virtual Meeting


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,454
    • Most Online (within 30 mins)
      7,748

    jscal6
    Newest Member
    jscal6
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • JoJo0611
      I have had my endoscopy this morning with biopsies. My consultant said that it looked like I did have coeliac disease from what he could see. I now have to wait 3 weeks for the biopsy results. Do I continue eating gluten till my follow appointment in three weeks.  
    • cristiana
      Hi @emzie and welcome to the forum. Perhaps could be residual inflammation and bloating that is causing sensitivity in that area.  I was diagnosed with coeliac disease in 2013 and I remember some years ago my sister telling me around that time that she had a lady in her church, also a coeliac, who  had real pain when she turned her torso in a certain direction whilst doing exercises, but otherwise was responding well to the gluten-free diet. As far as I know is still the picture of health. I often end up with pain in various parts of my gut if I eat too much rich food or certain types of fibre (for some reasons walnuts make my gut hurt, and rice cakes!) and and as a rule, the pain usually hangs around for a number of days, maybe up to a week.   When I bend over or turn, I can feel it.  I think this is actually due to my other diagnosis of IBS, for years I thought I had a rumbling appendix but I think it must have just been IBS.  Reading the experiences of other sufferers, it seems quite typical.  Sensitized gut, build up of gas - it stands to reason that the extra pressure of turning can increase the pain. When I am glutened I get a burning, gnawing pain in my stomach on and off for some days - it isn't constant, but it can take up a few hours of the day.  I believe this to be gastritis, but it seems to hurt irrespective of movement.   Anyway, you are doing the right thing to seek a professional opinion, though, so do let us know how you get on.   Meanwhile, might I suggest you drink peppermint tea, or try slices of fresh ginger in hot water? A lot of IBS sufferers say the former is very helpful in relieving cramps, etc, and the latter is very soothing on the stomach. Cristiana
    • emzie
      Hi! One of the usual symptoms I have with a gluten flare up has deviated a bit and I thought I'd search for advice/opinions here. Also to see if anyone goes through similar stuff. Monday all of a sudden I got really bad pain in my stomach (centre, right under the chest, where the duodenum would be located). I ended up having to throw up for 2 hours, my body was trying to get rid of something from all sides and it was just horrible. Since then I havent been nauseous anymore at all, but the pain has stayed and it always worsens the moment i start moving. The more I move the more it hurts, and when i rest longer it seems to dissapear (no movement). I've had this before, but years ago I think around when I first got diagnosed with coeliac, where each time I moved, my stomach would hurt, to the point where I went to the ER because doctors got freaked out. That only lasted 1 night though, and Now it's already wednesday, so 3 days since then, but the pain persists and remains leveled. it doesn't get crazy intense, but it's still uncomfortable to the point I cant really go out because Im afraid itll turn into a giant flare up again. I couldn't think of where I could possibly have been glutened at this bad of a level and why it hasn't passed yet. I went to the GP, and as long as I have no fever and the pain isnt insane then its fine which I havent had yet. Tomorrow im also seeing a gastroenterologist specialized in IBS and coeliac for the first time finally in years, but I thought I'd ask on here anyway because it still hasnt dissapeared. It also hurts when someone presses on it. Maybe it's just really inflamed/irritated. I'm just frustrated because I'm missing out on my uni lectures and I do a sports bachelor, so I can't get behind on stuff & next to that i'm also going to go to the beach with my boyfriend's family this weekend: ( 
    • Flash1970
      Hi. So sorry to hear about your shingles. There is a lidocaine cream that you can get at Walmart that will help numb the pain.  That's what I used for mine. It can't be put near your eyes or in your ears. I hope your doctor gave you valacyclovir which is an antiviral.  It does lessen the symptoms. If it is in your eyes,  see an ophthalmologist.  They have an antiviral eye drop that can be prescribed.  Shingles in the eye could cause blindness.  I was unsure whether you have celiac or not.  If you do,  follow the diet.  I believe that extra stress on your body does affect everything. Shingles can recur. If you start getting the warning signs of nerves tingling,  see the dr and start taking the valacyclovir to prevent a breakout. If I sound technical,  I am a retired pharmacist. 
    • Scott Adams
      You are right to be proactive, as research does indicate that individuals with celiac disease can have a higher predisposition to enamel defects, cavities, and periodontal issues, even with excellent oral hygiene. While many people with celiac successfully undergo orthodontic treatment without complication, your caution is valid. It may be beneficial to seek a consultation with an orthodontist who is familiar with managing patients with autoimmune conditions or who is willing to collaborate with your daughter's gastroenterologist or a periodontist. They can perform a thorough assessment of her current oral health, discuss your specific concerns about recession and decay, and create a tailored hygiene plan. This second opinion could provide a clearer risk-benefit analysis, helping you decide if addressing the cosmetic concern of the lower teeth is worth the potential risks for your daughter, especially if they are not currently affecting function or her confidence. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.