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Awaiting Test Results

Lindsey

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Lindsey Rookie
Lindsey
Posted

I am still waiting for my blood test results for celiac (and H.pylori) All my other results for liver function, thyroid and full blood count have come back as negative. I'm hoping the rest will be in tomorrow.

Anyway, I thought i'd post to say that I've been gluten free for 10 days now and in the past few days my brain fog has definitely lifted. I've suffered what I put down as anxiety but this forum has led me to research brain fog and it's been a revelation!

My head feels clear for once! It's a fantastic feeling and i've also tons more energy.

I have no idea whether or not i have celiac at this moment but ive no doubt now that i do have some kind of food intollerance. I was wondering if it could just be wheat? Could I be tested for this if my celiac test is negative? Maybe i just need to cut out the wheat? Im quite happy to continue eating gluten free whatever happens! I'm not a big bread eater anyway and i can live without pasta and processed foods anyway.

Oh well - I'm feeling tons better and that is the main thing diagnosis or not!

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jukie Rookie
jukie
Posted

Hi, Lindsey-

I can't answer your question about wheat vs. gluten, but wanted to say "welcome" and glad to hear that you've been feeling better in the last few days...it's GREAT, isn't it!!! :D

Anyway, waiting for test results is never fun, but whatever they say, don't forget to take into account what your body has already told you.

Let us know what happens!

Corkdarrr Enthusiast
Corkdarrr
Posted

I agree with the above poster - listen to your body. So many doctors want to treat based on lab results and ignore how the patient actually FEELS. (Case and point my undertreated hypothyroidism for the past seven or eight years...not to mention all the GI issues!)

Welcome to the board, and let us know what the results say!

And per the gluten-free diet, trying it certainly can't hurt. So you might want to consider keeping it up for another few months and see if you notice more improvements. Then do a gluten challenge - if you get sick then that might be as definitive of an answer as you need!

Courtney

Lindsey Rookie
Lindsey
Posted
  • Author
Hi, Lindsey-

I can't answer your question about wheat vs. gluten, but wanted to say "welcome" and glad to hear that you've been feeling better in the last few days...it's GREAT, isn't it!!! :D

Anyway, waiting for test results is never fun, but whatever they say, don't forget to take into account what your body has already told you.

Let us know what happens!

Thankyou both for your replies. I've just phoned the doctors and my H. pylori results are in but the doctor hasn't read them yet so they can't tell me!! Grrrr....it's frustrating!

I will certainly consider trying gluten again after a few months if I continue to improve! Just the once mind! ;)

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      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
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