Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Enthusiasm, What Do You Do To Keep It Going?


ponita

Recommended Posts

ponita Newbie

I am not a person to sit around and have pitty parties. I look at problems head on and deal with the new challenges. I've been gluten-free for 10 weeks and although this has been a lifestyle change, I'm adjusting well. I am given a dose of enthusiasm every day with I move and my joints don't hurt, when my mental fog feels lifted and when I see my energy level rise.

I am 47 years old and have been sick for 15 years. I have waxed and wained for about 10 years with periods as long as 6 months at a time that I feel better. Usually something would attack my immune system and it would take me 6 months to get back on my feet.

When I was dx with celiac in June it was a light bulb moment. So many symptoms all came together and once starting the diet I could not believe my improvement. Am I ready to run a marathon? Maybe not right now ...

Although each day may not be as bright and sunny as the one before, or days with a hormone change might bring a little more pain, . BUT I know I am a lot healthier than I was 2 months ago and that gives me strenght.

What brings you enthusiasm?

What keeps you motivated?

I'm really like to know.

Melissa


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator
What brings you enthusiasm?

What keeps you motivated?

I'm really like to know.

Motivation

- Generally, doing what's best for my health

- My desire to feel normal again (and know what normal feels like)

- Wanting to put on a 10-20 pounds (way down on the list below not getting sick, but still a goal)

Enthusiasm

- Trying a new and delicious gluten-free food

- Posting -- makes me feel like I have support from others, control over this diet, and increases my knowledge of the disease. Also gives me ideas.

celiac3270 Collaborator

I was just sort of thinking about this and I guess doing what's right for your health isn't all that much about motivation -- a lot of it is just....doing it cause it's that or purposely messing up your body....I mean, my motivation for being as much of a paranoid nutcase about gluten is to feel better, but I think whether or not you have motivation, it's something you have to do anyway.........I am starting to doubt if this makes sense, but I'll post it anyway, in case it does :D

tarnalberry Community Regular

For me, it's all about feeling well so I can go out and live the way I want to, not being limited by my body. Want to try something new? If you're not feeling well, you're not likely to get up the motivation, and then, at the end of it all, you've got a lot of sitting around on the couch and not trying things you like.

I'm enthusiastic about finding new - and fast - things to cook that taste so good you don't care they're gluten-free, and nor do your friends.

Guest gfinnebraska

I have been gluten-free for 13 years. I have times of struggles, but it is not worth it to ever not be gluten-free!! I just always remember how it feels to be sick and then the pizza, doughnuts, cookies that everyone else is eating are not tempting at all!

coin-op Newbie

it's just food. eat and move on with your day :)

brehm48 Newbie

It seems like coin-op thinks he has it all figured out. If that is the case than why is he subscribing to this forum? This forum is here to help support each other, not try to prove that one person's diet is better than some one else


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest ~wAvE WeT sAnD~

Melissa--

What keeps me motivated are caring people such as the members of this message board, family, and friends. Surround yourself with people who care about you because they respect you for who you are. Have patience with others, because there are numerous people who do not understand the impact this disease has. Persevere--don't give up on the positive aspects of your life.

Best Wishes,

Carriefaith Enthusiast

What keeps me motivated the most above anything else is knowing that one day I will be symptom free for the rest of my life! Now that would be wonderful! I've been sick for so long I forget what it feels like to be healthy.

coin-op,

I'm glad that you feel healthy and found a diet that works for you! Many people, like myself, would love to feel healthy like you do!

But people like me (and I'm sure there are many others on this board) have been gluten free for a long time now and are still struggling. Food is a daily struggle for me. Even plain blah foods like plain rice and bananas will make me sick. Unfortunately, I now have to rely on medication to lessen my symptoms.

Anyway, I don't want to bore you....... I just want you to understand.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      9

      My only proof

    2. - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    3. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement

    4. - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    5. - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      ttg iga high (646 mg/dl) other results are normal


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,352
    • Most Online (within 30 mins)
      7,748

    Teagan
    Newest Member
    Teagan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • NanceK
      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
    • knitty kitty
      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.