Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do You Really Need To Send Your Blood Work Out To Other Labs?


janelyb

Recommended Posts

janelyb Enthusiast

I mean is it necessary to pay $$$ of money to have your blood sent to a special lab? What about the tests your own doctor/ health insurence lab does isn't it accurate??

The problem I have is I want 2 of my kids tested and possibly myself too. But can't afford to pay the high price tag that goes along with sending it out to a speciality lab.

Janel


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Corkdarrr Enthusiast

What specialty labs are you referring to?

blueeyedmanda Community Regular

I had my labs drawn at my doctors office (through the hopsital I work at) We did not do the celiac panels in our facility they get sent out to a special lab which does a lot of our special tests not just celiac panels. My insurance covered it and it was very accurate.

happygirl Collaborator

I'm not sure what specialty labs you are referring to for bloodwork. If you have the full blood panel run (ordered by your doctor, who will send it to whatever lab company they use....LabCorp, Quest, etc), that includes the tTG test (doctors don't often run this), then that is the effective bloodwork for Celiac.

Other people use other means if they don't have a willing doctor to run the blood tests, don't want it on their insurance, don't have a doctor, or question their results (and many other reasons, but that is just some).

janelyb Enthusiast
What specialty labs are you referring to?

Labs like this

Open Original Shared Link

where you pay $100 per test that you want done. My insurence doesn't cover testing from this company...

I have Blue Shield of CA HMO

blueeyedmanda Community Regular

I think my Hospital uses Quest or AML in Virigina. We are a big facility but we send a lot of stuff out. I believed the Celiac panels go to AML.

Nic Collaborator

My insurance company insists that we use LabCorp and if we go elsewhere, it will be at an "out of network" charge. Which means they will pay 70% of only what they feel is a appropriate charge. So while 70% sounds good, it may not be if the insurance company does not think what the lab is charging is appropriate. My ped. gastro originally sent my son's blood to LabCorp and it did show the antibodies were highly elevated. His gene test was sent to Prometheus in California. Prometheus never charged me the difference. When I went for a second opinion 3 months later, LabCorp was showing the levels to still be way too high and the new doctor felt that it should have come down some because he was strictly gluten free. So he sent the blood to a lab in I believe Boston. He also wrote a letter to my insurance company explaining that it was medically necessary to have it done at a lab that specializes in these problems so we can get an accurate look at his recovery. They paid it in full without a question.

Nicole


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

I would think to start, the best way is definitely to go through your doctor and the lab company they use. I don't know anything about the lab you posted (so this is not necessarily directed against them), but sometimes their practices and methods are not fully in line with the rest of the medical community.

If you are looking for a diagnosis - to start with - from a doctor, I personally would request to have the full Celiac blood panel run through your doc.

Hope this helps.

janelyb Enthusiast

thanks. I just have met other online people who basically bypass their medical insurence labs and pay out of pocket to other companies who specialize in allergy testing. We did have the celiac pannel run through our GI doc and the results are questionable so we are doing them again this week. I have no idea where our local lab send the blood to, I will ask when we go this week.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,585
    • Most Online (within 30 mins)
      7,748

    Josephine Minaudo
    Newest Member
    Josephine Minaudo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.