Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Your Experience With Testing


jaysmom

Recommended Posts

jaysmom Rookie

We had our first Gastro appointment last week and they drew blood. This coming week we go back for the breath test and upper GI where he is to drink something than have an image taken of it.

As I am new to the process and confused about what to do I was just wondering what others experiences have been. Our 9yr old still has horrific gas, diarrhea, stomach pain, rash, nasuea, fatigue and general pedi was no help so our eggs are in the GI's basket now.

Why is it so hard to get an answer?

We will talk to the Dr this week the same day the breath test and GI thing is done to get results but just betting on previous experience I doubt there will be an answer.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kibbie Contributor

Its all going to depend on the Dr. My daughter had her blood drawn and about 5 day later (including the weekend) I received a phone call that she had tested positive for Celiac Disease. Her MRI (we thought it could be a brain tumor) and upper GI were canceled and we scheduled a biopsy instead.

The biopsy was about 2 weeks after that phone call and I had to continue giving her gluten until then. The day before her biopsy was the last day I ever gave her gluten.

So it took about 3 weeks from blood work to biopsy... an we had about 2-3 weeks of sever symptoms before the blood work.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Have Tru Joy Sweets Choco Chews been discontinued??

    2. - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Have Tru Joy Sweets Choco Chews been discontinued??

    3. - Jmartes71 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

    4. - Wheatwacked replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Have Tru Joy Sweets Choco Chews been discontinued??

    5. - Theresa2407 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,267
    • Most Online (within 30 mins)
      7,748

    Alan Tack
    Newest Member
    Alan Tack
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      They both do.  The peanuts add nutrients to the treat. Tootsie Roll: Sugar, Corn Syrup, Palm Oil, Condensed Skim Milk, Cocoa, Whey, Soy Lecithin, Artificial and Natural Flavors. M&M Peanut: milk chocolate (sugar, chocolate, skim milk, cocoa butter, lactose, milkfat, peanuts, soy lecithin, salt, natural flavor), peanuts, sugar, cornstarch; less than 1% of: palm oil, corn syrup, dextrin, colors (includes blue 2 lake, blue 1 lake, red 40, yellow 6 lake, yellow 5, yellow 6, blue 1, yelskim milk contains caseinlow 5 lake, blue 2, red 40 lake), carnauba wax, gum acacia. glycemic index of Tootsie Rolls ~83 gycemic index of M&M Peanuts ~33   The composition of non-fat solids of skim milk is: 52.15% lactose, 38.71% protein (31.18% casein, 7.53% whey protein), 1.08% fat, and 8.06% ash.   https://onlinelibrary.wiley.com/doi/10.1002/9781118810279.ch04  Milkfat carries the fat soluble vitamins A, D, E, and K. The solids-not-fat portion [of milk] consists of protein (primarily casein and lactalbumin), carbohydrates (primarily lactose), and minerals (including calcium and phosphorus). https://ansc.umd.edu/sites/ansc.umd.edu/files/files/documents/Extension/Milk-Definitions.pdf
    • Scott Adams
      But M&M's contain milk, and would not be at all like a Tootsie Roll.
    • Jmartes71
      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets for disability because I show no signs of celiac BECAUSE IM GLUTENFREE! Actively dealing with sibo and skin issues.Depression is the key because thats all they know, im depressed because medical has caused it because of my celiac and related issues. I should have never ever been employed as a bus driver.After 3 years still healing and ZERO income desperately trying to get better but no careteam for celiac other than stay away frim wheat! Now im having care because my head is affected either ms or meningioma in go in tomorrow again for more scans.I know im slowly dying and im looking like a disability chaser
    • Wheatwacked
      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values.  Both are made with sugar, not high fructose corn syrup.  I use them as a gluten free substitute for a peanut butter sandwich.  Try her on grass fed, pasture fed milk. While I get heartburn at night from commercial dairy milk, I do not from 'grassmilk'.     
    • Theresa2407
      I see it everyday on my feeds.  They go out and buy gluten-free processed products and wonder why they can't heal their guts.  I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field.  Some days I would just like to scream.  So much better when we had support groups and being able to teach them properly. I just had an EMA blood test because I haven't had one since my Doctor moved away.  Got test results today, doctor ordered a D3 vitamin test.  Now you know what  type of doctors we have.  Now I will have to pay for this test because she just tested my D3 end of December, and still have no idea about my EMA.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.