Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie Needs Help!


Bellasmama

Recommended Posts

Bellasmama Apprentice

My daughter Isabella was just screened for celiac today. She has had an extremly bloated tummy that gets larger everytime she eats. They did an xray and found is was totally constipated even though she poops everyday. She was totally backed up. They also did some blood work but not all cause her arms are so tiny they couldnt find a good vein. So we wait to see what results we get from what blood they did get. I also had to give her an enema to release some of the back up. The Dr wasnt convience she has celiac but wanted to make sure because of the issues I stated and because she isnt gaining weight. So my question is...I want to try to avoid gluten at all possible...just incase. What regular grocery store items for a 1 yo could I get? I also have a 3 yo daughter that eats anything has no problems so I might have to switch both of their diets...any thoughts or ideas....I saw fritos just scanning some posts....anything else?

TIA!

jamie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

What does the little one like? She can have slices of apple, my kids always loved that. There is macaroni and cheese that is gluten free, the macaroni is probably made from rice or corn. There are gluten free cookies, you just have to look harder for them, sometimes the regular grocers have them, sometimes not. Check online for gluten free toddler foods and see what comes up. Good luck!

Bellasmama Apprentice

She eats anything and everything. My daughters are not picky at all...except with veggies! ;)

I dont even know what to look for when reading labels....anyone have a quick refernce list?? I'm SO lost! The dr said to make sure she gets good fiber and bran cereal but isnt that wheat? I'm so confused!

Juliet Newbie

From the Celiac Disease Foundation website, this is a good place to start:

Open Original Shared Link disease-treatment.php

It has a very, very short list but it points you in the right direction.

Open Original Shared Link

This is a pretty extensive list of foods/ingredients to avoid. There is argument within the community on a couple of items (how much to avoid oats, blue cheese may have been derived by bread but the amount of gluten supposedly is so extremely little it's within safe parameters, distilled vinegar supposedly has no gluten despite what it may be derived from since the distillation process apparently removes it), but it's a good place to start. I personally avoid all oats, but have found that blue cheese and vinegar does not bother my son, and normally the smallest bit of cross contamination will cause him to have really bad diarrhea or vomitting within a couple of hours. But others choose not to have any of these items and for very good reason, too. Once you get more used to the diet, you will see what works for you and your child and what doesn't pretty quickly.

Kibbie Contributor

my Dr. was diagnosed at 18 months and is 23 months now.

The foods she eats a lot of when snacking:

Tons of fruits

Raisins

Craisins

Gorilla Munch

Perky O's (like Cherrioes but gluten free)

Laura Bars

Occasionally she gets:

M&M's

Candy Conversation Hearts

Enviro Kids Vanilla Animal Cookies

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    2. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,810
    • Most Online (within 30 mins)
      7,748

    rdwells
    Newest Member
    rdwells
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.