Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vent! I Hate This Disease!

ptkds

By ptkds
in Coping with Celiac Disease

Recommended Posts

ptkds Community Regular
ptkds
Posted

I have a friend that needed some support the other night. I couldn't go see her when she called, but I went later and she wasn't home. So I went and got her some flowers and a card and left it on her doorstep. So today she brought me a pie. It was very nice of her, but it is FULL OF GLUTEN! I have told her a few times that my dd's and I have celiac disease and we can't have gluten. She is a nurse and she understands what this disease is (or so she says!). I didn't have the heart to tell her that I couldn't even touch it. I just thanked her and put it in my fridge for my oldest dd and dh to eat.

It is times like this that I REALLY hate this disease!

Sorry, just had to vent! Thanks for listening!

ptkds

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Debbie65 Apprentice
Debbie65
Posted

I take it you

Gentleheart Enthusiast
Gentleheart
Posted

I miss out on a lot of fellowship and my social life has completely changed due to this diagnosis. It's just the way it is, I guess. Around here, socializing nearly always revolves around food. And with multiple intolerances, I can't eat most of what other people eat. But I figure it could always be SO much worse. I'm taking the hand God has dealt me and staying in the game. Don't let people frustrate you. Most of the time they aren't nearly as cruel as they appear. They just aren't thinking. Aren't we ALL a bit self-absorbed, after all?

Example: A very dear friend of mine, whom I KNOW cares deeply for me, just today invited us to their church valentine's dinner. She raved on and on about the wonderful menu, the fact that it was good homemade food and strongly encouraged us to go. The menu contained chicken and dumpling soup, chicken, mashed potatoes and gravy, stuffing, rolls and incredible desserts. I care about this person. And it is not my wish to make her feel utterly stupid by pointing out her gross error. I'd rather gently give my regrets and hope that people treat me as kindly as I plan to treat her when I make similarly huge mistakes. I also plan to keep on quietly educating everyone I encounter in the hopes that it will eventually stick.

Hang in there. It'll be OK.

Debbie65 Apprentice
Debbie65
Posted

It will be OK but you have to make it that way.

Remember that gluten is hidden in lots of things that you don

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,543
    • Most Online (within 30 mins)
      7,748
    Carol Zimmer
    Newest Member
    Carol Zimmer
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.