Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

'twould Now Seem...

JerryK

By JerryK
in Coping with Celiac Disease

Recommended Posts

JerryK Community Regular
JerryK
Posted

It seems like perhaps Lactose Intolerance is causing more of my gastro symptoms than gluten. I eliminated all sources of lactose and boink, all my gastro symptoms went away, in fact I'm a little bit constipated.

At the risk of sounding like I'm changing my story, it seems like I get some dramatic extra-intestinal manifestations of gluten intolerance....fatigue, lethargy, depression, numbness, but it makes me a bit constipated. When I stopped eating bread, I started eating more chocolate, to you know....comfort myself....and I think this might have caused some of my symptoms. I think perhaps the history of switching back and forth between diarrhea and constipation is a manifestation of both gluten and lactose intolerance. Weird stuff. Does this sound plausible or do I need to create a poll:)

Did I mention that I

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


LisaJ Apprentice
LisaJ
Posted

Sounds very plausible to me! I continued having gasto problems after I went gluten free until I got rid of the lactose too.

Have a great time on your cruise!! My hubby and I just got back from Belize and it was great. It was so nice to be warm :)

CarlaB Enthusiast
CarlaB
Posted

Oh, I think another silly poll would be fun!

It sounds to me like they both bother you, and that's very common.

Have a great time in Mexico!!

ArtGirl Enthusiast
ArtGirl
Posted

With me it was corn. It's in so many gluten-free bread stuffs, and I just loved Bob's Red Mill chocolate cake (contains corn meal). I was really puzzled because I knew I was gluten-free, but still had ups and downs with GI issues. And then, there was the heartburn. Turns out the corn was contributing to the D and heartburn, the casein to the itchy skin. All have now resolved by eliminating these other foods.

Have fun on your cruise.

How's your brother and mother doing?

CarlaB Enthusiast
CarlaB
Posted
I started eating more chocolate, to you know....comfort myself....

You need to discover Tropical Source chocolate bars -- no gluten, no casein!!!

Also, Enjoy Life chocolate chips, and Namaste brownies (I use coconut oil instead of butter).

Nantzie Collaborator
Nantzie
Posted

Makes complete sense to me, Jerry.

Nancy

Flor Apprentice
Flor
Posted

I'd like to know how many people made up for the lack of gluten food by eating more chocolate!

I was never a big chocolate eater UNTIL I had to cut out dairy and gluten -- and then gradually I became a dark chocolate fiend.

Now I'm wondering if the soy lecithin or sugar in the chocolate is causing problems.

Would love to hear other people's experiences/thoughts with this.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guhlia Rising Star
Guhlia
Posted

Jerry, I know your blood tests showed negative, but... Consider this... Lactose is processed on the ends of the villi in the intestine. If your villi are blunted, damaged, or flattened this could easily cause temporary lactose intolerance. This leads me to believe that you most likely actually HAVE Celiac with typical Celiac damage (damaged villi). Now, I know your tests were negative, but we all know that false negatives in Celiac testing are a dime a dozen. Perhaps you should remove lactose AND gluten for a bit and see how you feel. Hopefully this will resolve your symptoms. Then, in a few months, try reintroducing lactose and see what happens. If I'm correct, once your villi have healed (which could take longer than a few months) then you should be able to process lactose again, effectively eliminating your lactose intolerance.

Does that all make sense? Just my opinion, obviously I'm not a doctor. It just makes all too much sense to me after following your journey to a gluten free lifestyle. Hopefully this post was coherent enough to create some food for thought. My apologies if it's rather jumbled, pregnancy and sleepiness don't go well together and I'm exceptionally foggy tonight.

tarnalberry Community Regular
tarnalberry
Posted

Gluten doesn't give everyone diahreah - it gives many people constipation. It can definitely be both, particularly now, as you heal.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,899
    • Most Online (within 30 mins)
      7,748
    dcarter1682
    Newest Member
    dcarter1682
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • trents
      New (possible) celiac diagnosis

      By trents · Posted

      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      New (possible) celiac diagnosis

      By Judy M · Posted

      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.