Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pocono Buckwheat- Anyone Tried It?

oceangirl

Recommended Posts

oceangirl Collaborator
oceangirl
Posted

Hi again.

Has anyone tried Pocono (brand) Kasha buckwheat? It claims it's gluten-free; their web-site claims dedicated lines and all but I'm always nervous about eating a new thing. I'd just like to add another grain besides rice to my diet. Any advice is greatly appreciated. I have the "organic roasted buckwheat groats- cracked granulation".

Thank you!

lisa

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

I eat their buckwheat all the time. My favorite is their cream of buckwheat, it tastes very close to cream of wheat and is pretty high in protein. They are a good company with a great product line.

oceangirl Collaborator
oceangirl
Posted
  • Author
I eat their buckwheat all the time. My favorite is their cream of buckwheat, it tastes very close to cream of wheat and is pretty high in protein. They are a good company with a great product line.

Ravenwoodglass,

Thank you so much! When I get over this last glutening, I'm going to try it!

lisa

jayhawkmom Enthusiast
jayhawkmom
Posted

I also LOVE the Cream of Buckwheat!! Very tasty!! I eat it for breakfast often!! =)

oceangirl Collaborator
oceangirl
Posted
  • Author
I also LOVE the Cream of Buckwheat!! Very tasty!! I eat it for breakfast often!! =)

Jayhawkmom,

Thank you for the tip! I'll check that out!

lisa

ravenwoodglass Mentor
ravenwoodglass
Posted
Ravenwoodglass,

Thank you so much! When I get over this last glutening, I'm going to try it!

lisa

If you tummy is still a bit off and you need some comfort food the cereal with some cinnamon can be nourishing and easy to digest, sometimes that's all I can eat after a day spent in the throne room. If all you have is the kasha with the larger grains a couple seconds whir in the blender or a food processer would give you the consistency for the cereal. I hope you feel better soon.

oceangirl Collaborator
oceangirl
Posted
  • Author
If you tummy is still a bit off and you need some comfort food the cereal with some cinnamon can be nourishing and easy to digest, sometimes that's all I can eat after a day spent in the throne room. If all you have is the kasha with the larger grains a couple seconds whir in the blender or a food processer would give you the consistency for the cereal. I hope you feel better soon.

Thank you, Ravenwoodglass. It's nice to hear a few words of encouragement as I am having my first "sustained" glutening, (meaning I can't seem to get it to stop even as I eliminate any and every suspect thing) in awhile. This is the sixth day of unabating symptoms and even worsening symptoms and I'm really fed up. Sometimes I think it'd be easier just to remove my stupid intestines altogether, but I'll try not to dwell on that. Thank you for your help!

lisa

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted
Thank you, Ravenwoodglass. It's nice to hear a few words of encouragement as I am having my first "sustained" glutening, (meaning I can't seem to get it to stop even as I eliminate any and every suspect thing) in awhile. This is the sixth day of unabating symptoms and even worsening symptoms and I'm really fed up. Sometimes I think it'd be easier just to remove my stupid intestines altogether, but I'll try not to dwell on that. Thank you for your help!

lisa

After that length of time unless you are sure you are reglutening yourself you may want to call the doctor and submit some stool samples. It is possible you may have some form of food poisoning. You haven't been eating any of those recalled Pnut butters have you? I managed with a case of salmonella once for almost 3 weeks cause I thought it was my usual stuff just a worse case. Always better to be safe than sorry if you can. Meanwhile you may want to do a modified Brat diet that I call the BRA, bananas, white UNFORTIFIED plain rice and applesauce with no additives or homemade. I really hope you feel better soon.

oceangirl Collaborator
oceangirl
Posted
  • Author
After that length of time unless you are sure you are reglutening yourself you may want to call the doctor and submit some stool samples. It is possible you may have some form of food poisoning. You haven't been eating any of those recalled Pnut butters have you? I managed with a case of salmonella once for almost 3 weeks cause I thought it was my usual stuff just a worse case. Always better to be safe than sorry if you can. Meanwhile you may want to do a modified Brat diet that I call the BRA, bananas, white UNFORTIFIED plain rice and applesauce with no additives or homemade. I really hope you feel better soon.

Ravenwoodglass,

Thank you again. I'm pretty sure this is gluten. I've also had salmonella and it was NO picnic. Unlike many with gluten issues, I get severe bloat with a lot of pain, CONSTIPATION alternating (SOMETIMES) with D, low back pain, much intestinal pain, red, burning eyes and just generally feel like I can't leave the the house 'cause I don't know when I WILL need to run to the bathroom. The pain is also worse at night so sleeping doesn't happen. I'm sure you're delighted to hear all this... as I drone on..... I also am suspicious that my fluctuating hormonal levels are exacerbating symptoms as I'm 49 and things are changing. But, you're right, if I still feel lousy tomorrow I may cave and call my doctor. Sigh...

Thank you so much again,

lisa

ravenwoodglass Mentor
ravenwoodglass
Posted
Ravenwoodglass,

Thank you again. I'm pretty sure this is gluten. I've also had salmonella and it was NO picnic. Unlike many with gluten issues, I get severe bloat with a lot of pain, CONSTIPATION alternating (SOMETIMES) with D, low back pain, much intestinal pain, red, burning eyes and just generally feel like I can't leave the the house 'cause I don't know when I WILL need to run to the bathroom. The pain is also worse at night so sleeping doesn't happen. I'm sure you're delighted to hear all this... as I drone on..... I also am suspicious that my fluctuating hormonal levels are exacerbating symptoms as I'm 49 and things are changing. But, you're right, if I still feel lousy tomorrow I may cave and call my doctor. Sigh...

Thank you so much again,

lisa

I get alot of inflammation and joint, muscle and oddly enough tooth pain when I get glutened so I can really sympathize. The only thing that helps is oddly enough St. Josephs baby asprin. I don't know why such a simple med would do so much, perhaps it acts on the inflammation. I don't know if it would help you but figured I would mention it. I tried it once in desperation and it seems to work for me. It's all I take now. I hope you can figure out what is getting you. It can be a real search sometimes. It took me 2 years to realize that my can opener was getting me.

oceangirl Collaborator
oceangirl
Posted
  • Author
I get alot of inflammation and joint, muscle and oddly enough tooth pain when I get glutened so I can really sympathize. The only thing that helps is oddly enough St. Josephs baby asprin. I don't know why such a simple med would do so much, perhaps it acts on the inflammation. I don't know if it would help you but figured I would mention it. I tried it once in desperation and it seems to work for me. It's all I take now. I hope you can figure out what is getting you. It can be a real search sometimes. It took me 2 years to realize that my can opener was getting me.

Ravenwoodglass,

Holy mackerel! Yes, the old CAN opener- YIKES! Thank you- I am going to buy some St. Joseph's tomorrow. You have been very kind. Yes, I'm hoping to get to the bottom of this soon!

Thank you!

lisa

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jsingh
      - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      Hi, My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine...
    2. lizzie42
      - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin. He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her...
    3. trents
      - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified...
    4. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you...
    5. Paulaannefthimiou
      - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Are Bobresmill gluten free oats ok for sensitive celiacs?
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,859
    • Most Online (within 30 mins)
      7,748
    Santa Don
    Newest Member
    Santa Don
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Jsingh
      Son's legs shaking

      By Jsingh · Posted

      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Bob red mill gluten free oats

      By Paulaannefthimiou · Posted

      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.