Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Autoimmune Hepatitis Look

NicoleAJ

By NicoleAJ
in Related Issues & Disorders

Recommended Posts

NicoleAJ Enthusiast
NicoleAJ
Posted

My doctors are going to test me for autoimmune hepatitis because of various symptoms I've been having (significant enough to land me in the hospital for a week). When I looked it up on the Mayo Clinic, several of the common medical complications listed were those that a lot of us on the board have, including celiac disease. Pernicious anemia and ulcerative colitis were also prevalent complications, and I know several of us have those as well. I guess I'm just looking for insight before the test results come back. If anyone does have it, I'd really appreciate hearing how you were diagnosed and what you've been doing to treat it (beyond prednisone for life). Thanks!

Nicole

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


2kids4me Contributor
2kids4me
Posted

My daughter just had a bunch of tests to rule it out, including an ultrasound of her liver. All blood test came back negative for autoimmune hepatitis. They just pulled more blood on Friday for an ENA panel and compliments to rule out systemic lupus since she has high titre ANA ( which can be positive in patients iwth autimmune diseases other than lupus).

I know I saw some posts here previously from someone with primary bilary cirrhosis which is a type of autoimmune lver disease.

Good luck with all the tests.

Sandy

ravenwoodglass Mentor
ravenwoodglass
Posted
My doctors are going to test me for autoimmune hepatitis because of various symptoms I've been having (significant enough to land me in the hospital for a week). When I looked it up on the Mayo Clinic, several of the common medical complications listed were those that a lot of us on the board have, including celiac disease. Pernicious anemia and ulcerative colitis were also prevalent complications, and I know several of us have those as well. I guess I'm just looking for insight before the test results come back. If anyone does have it, I'd really appreciate hearing how you were diagnosed and what you've been doing to treat it (beyond prednisone for life). Thanks!

Nicole

My twin brother had this years ago. Unfortunately at that time there wasn't anything they could do. He was diagnosed with a liver biopsy. I hope this is not an issue for you but I do know that once we go gluten free the body seems to have an amazing ability to heal and the liver is one organ that can regenerate. I would also consider this a complication of the celiac rather than the celiac being a complication of the hepatitis. Good luck and sorry I could not have been of more help.

NicoleAJ Enthusiast
NicoleAJ
Posted
  • Author

Thank you both for your responses. Sandy, I hope that your daughters tests all turn out ok. Ravenwoodglass, I would tend to agree that celiac disease is the culprit, but I was just taking the info from the Mayo Clinic's write-up on autoimmune hepatitis. The good news is that if it does turn out I have it, most people are able to keep it under control on very low doses of steriods and another med that counteracts the effects of the steroids. We'll see what happens--hopefully I don't have it, but I've gotta remain optimistic about all of these things because I'm just sick of being down about being sick. Thanks again.

  • 1 month later...
kathy w Newbie
kathy w
Posted
My doctors are going to test me for autoimmune hepatitis because of various symptoms I've been having (significant enough to land me in the hospital for a week). When I looked it up on the Mayo Clinic, several of the common medical complications listed were those that a lot of us on the board have, including celiac disease. Pernicious anemia and ulcerative colitis were also prevalent complications, and I know several of us have those as well. I guess I'm just looking for insight before the test results come back. If anyone does have it, I'd really appreciate hearing how you were diagnosed and what you've been doing to treat it (beyond prednisone for life). Thanks!

Nicole

kathy w Newbie
kathy w
Posted

Nicole,

I do have autoimmune hepatitis. I was recently diagnosed with that and celiac. My liver function tests were high, which prompted my husbands liver specialist (he also has Hep C) to order tests on me which pointed to celiac and confirmed autoimmune hepatitis. He also did a TEE and took a snip from my intestine and confirmed I was a celiac. He put me on Prednisone 20 mg a day and Imuran originally. Now I'm taking 15 Mg of Prednisone and Imuran. My tests have gone up and down. I really had no symptoms of anything. I am researching the idea that the Hepatitis occurred due to my Celiac condition. Currently I am playing with a gluten free diet. The research may help me buy all the way into dieting as being a cure for my hepatitis and possibly other upcoming autoimmune problems. I hope this info helps you. What occurred that caused them to hospitalize you?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,893
    • Most Online (within 30 mins)
      7,748
    Sgp
    Newest Member
    Sgp
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
    • trents
      How Come Gluten Didnt Bother Me In Italy

      By trents · Posted

      You state in an earlier post that you don't have celiac disease. Here in this post you state you will "be doing another test". What will this test be looking for? What kind of celiac disease testing have you had done? If you have used a Entero Labs it sounds like you have had stool testing done for celiac disease which is not widely accepted as a valid celiac disease diagnostic testing method. Have you had blood antibody testing for celiac disease done and do you realize that for antibody testing to be valid you must have been eating generous amounts of gluten for a period of weeks/months? 
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      No, I've not been diagnosed as celiac.  Despite Entero Labs being relocated to Switzerland/Greece, I'll be doing another test. After eating wheat products in Greece for 4 weeks, there wasn't any reaction.  However, avoiding it here in the states.   Thanks everyone for your responses.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.