Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Help


kara7

Recommended Posts

kara7 Rookie

Hello,

So I was convinced that I had Celiac. Seemed to me that gluten was making me sick. I went to an allergist and had tons of testing and I am not allergic to any foods. So why do I breakout when I drink beer. And why do I bloat after I eat pizza and pasta.

Can you still have Celiac and have allergy testing all come back fine?

Also.....

I have a lot of other things going on. Are they somehow all related??????

Low B12

Previous history of Lymphocytic Colitis

Chronic Hives

Extremely high levels of Thyroid Peroxidase Antibodies normal range 0-40 mine is 1143 (not a typo) Doe that mean I have Hashimotos~seeing an endo in a couple of weeks

IGA Immunoglobuin IGA normal range 84-381 mine is 407~Is this a marker for Celiac

Elevated levels of::: Lipids, liver functions, CRP, ESR, T3, T4

Please help me I am so tired of feeling sick all of the time.

Thanks,

Kara


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

Hi Kara,

I am sorry you are having trouble finding out the answers to your health problems.

In order to be properly tested for Celiac, you will need the full Celiac blood panel run. Celiac testing is different than allergy testing, as Celiac is an autoimmune disorder. Here is the list of tests you need run: Print it out and bring it to your GP or a GI, and tell them that based on your symptoms, you would like to be tested for Celiac. So yes, you could be normal on allergy tests and most certainly have Celiac.

Open Original Shared Link

Taken from the site:

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

Your body makes four main types of antibodies...IgA, IgE (true allergic reactions), IgM, IgG.

So, your IgA doesn't indicate if it was a AGA IgA, or just total IgA.

Lymphocytic Colitis is related to Celiac...as well as many people who have LC do not have Celiac, but find that certain foods aggravate their condition----often gluten. So you could be a non-Celiac but still have a problem with gluten (and/or other foods!)

Thyroid problems are related to Celiac.

Vitamin deficiencies are common with undiagnosed Celiacs, as Celiac is a disease of malaborption, so your body can't process food correctly.

The fact that you have an elevated CRP rate indicates that something is going on...that is a marker for inflammation and often, other autoimmune disorders. I would take all of these results and go to your doctor, and discuss what needs to be done.

I can't say what you do or don't have, but I hope this points you in the right direction for correct medical testing. Let us know what else we can do to help. Best of luck!

Laura

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,075
    • Most Online (within 30 mins)
      7,748

    MamaJessica
    Newest Member
    MamaJessica
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.