Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Visiting Friends And Relatives W/o Cd


kabowman

Recommended Posts

kabowman Explorer

OK, my first overnighter with a gluten-free diet. In the past, due to lactose/casien intollerance, I always brought my own food for short functions, dinner, BBQ, parties, etc. or ate limited items and for extended visits, made due with limited foods.

Now I have a weekend with my husbands family and while they are all very understanding, they don't take care of themselves and their known disorders and I cannot chance contaminiation.

So, my question is this...do I take my own cooler full of food I have prepared in advance to reheat and eat in their house or chance that they will have plain meat and veggies for me (in addition to my fruit) since I cannot have corn, soy beans, or peanuts either. Is it completely rude to bring all that food?

We leave Saturday morning...thanks in advance.

-Kate


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Whenever we go visit my inlaws (and that means stay with them, since they're not close by) we hit a grocery store first thing so I can get some food to eat (unless I've left some there so it's waiting for me when we do visit).

I don't think it's rude at all to bring your own food (or get your own food). I saw, here in Ft. Wayne on my most recent business trip, ground beef that had wheat starch added!!! (I had a hard time believing you folks about that 'til now! ;-) ) What would you do if that happened? Or if (like all the chicken at the near by grocery store), the meat was "enhanced with up to 15% broth"? ("enhanced" my patootie!)

Let them know, of course, but yeah, do what you need to in order to be safe.

ryebaby0 Enthusiast

We just take the food, and either nuke it or whatever. If this is family, they must know about the celiac, right? You can't just hope they have food you can eat, although certainly it's nice to eat what they do have that you can have -- but to rely on that would be silly. I think they might be relieved to know they aren't going to inadvertantly harm you. Travel safe!

kathyhay Apprentice

I frequently visit my in-laws' house, so we just always have some things in their freezer for my son to eat. If they have a couple of things that are gluten-free, we eat those, and if it isn't enough, then we "supplement" with our own food.

Carriefaith Enthusiast

I would definitely take some gluten-free food. When I go away or when I go to other peoples houses for dinner I almost always take my own food. Once I didn't take gluten-free food to a dinner/poyluck and I could hardly eat anything there! I had to ask everyone there what they put in the food they brought. I felt embarrassing becasue I felt like most people didn't understand why I was being so picky. One person told me that "you're on your own here!" I've learned from experience that people who don't have to follow a gluten-free diet do not always understand.

I don't think it's rude at all to take you're own gluten-free food as long as you explain why. If they don't understand then that's their problem!

-Carrie

kabowman Explorer

Thanks to everyone, I will take my own food just to be safe. After all, they are family.

One more question then - my boss and his wife throw a huge holiday dinner for the staff of 12 (small department) and she is an excellent cook, truely AMAZING.

However, even before I was gluten-free, there was little I could eat due to lactose/casien intollerance. So, now I doubt there will be anything except for the plain shrimp and baked ham that I will be able to eat.

I don't want to hurt her feelings (this woman is wonderful) but I don't want her to go to the trouble to fix something special for me, which I know she would insist on doing--that is just they way they are... So, from what I can see, the following are my current options:

- Call her a few days in advance to let her know about my severe dietary restrictions and that I will be bringing some of my own food

- Or let her know that I have these severe dietary restrictions when I arrive and to not be offended that I am not eating much

- Or if I should try to fake it and try to not let her see that I am not eating very much (I would then have eaten in advance)

- Or bring a couple of dishes like a fruit dish that I could eat with her ham

I am trying to figure out what else I could bring since this is not a pitch-in dinner, this is their holiday gift to the staff. Veggies would be tacky, meat, tacky, etc.

My boss knows, but he, well, I am sure this won't make it home to the wife. Once, he forgot to tell her he was going out of town for a week over his 50th birthday. She had the party without him since it was already planned.

-Thanks...Kate

terri Contributor

I would definitely call her and let her know your restrictions and that you would be bringing your own food. She probably won't let you (I speak from experience) but will discuss with you what you can have and then make one or more dishes that you can enjoy. Make sure it's not a honey baked ham as that has gluten in it. I've been through this twice and made it without getting sick. She'll probably make a salad and some plain veggies and you'll be set. Have fun. This is a nice treat.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hapi2bgf Contributor

First bring all the food you need to the family trip. If you have a great dessert, brign enough for everyone to share.

As for the Xmas party, call her before and let her know about your food issues. Either bring all of your own food or bring something you can share like the fruit salad. I almost always eat before going to any party. That way it is easier to pass up the unsafe foods.

Good luck!

BamBam Community Regular

I haven't had too much luck yet with relatives, my aunt made a chicken casserole and said I could just "pcik around the pasta!" Oh Well, it made me laugh. I ate the salad and other items I could eat. It is so easy to just stay home and cook what I want, I've made some really good casserole items this past week. I used gluten free pasta, dairy free cheese, my own tomato sauce and shredded chicken and baked it in the oven.

I've read a lot about people staying home too much, a recluse, to an extent, and I can sure see how that can happen. I live in a small town in Montana, and I am lucky to have a health food store to get some things at. But as for restaurants, I say wheat free or gluten free and they just stare at me and wonder what planet I came from!! It does get interesting, and I am trying to not let it get me down, but it is hard. My husband is a very social and outgoing guy and he always wants to go to the banquets, and the bbq's at the local stores or things like that, I go with and usually not eat for the most part. When we go to a potluck, of course, I take an item that I can eat, but one time I put my food on the table with the rest of everything else, and it was gone before I got there! :(

I sure appreciate all of you sharing your stories and different tips and ideas, this place is definitely a life line. Being from a little place, it seems like I'm the only one out there, so I really enjoy reading what everyone has to say. I check it out at least once a day to see what is new!

Bernadette

ponita Newbie

Bernadette - I live in a little town and know what you mean. We attend a lot of little social functions and I have to bring my own food items. We have 1 little resturant in our community and it's nice since it is a small town that the cook will prepare gluten-free foods for me.

I bring my own foods to meetings also. Everyone around me seems to understand and I found it was less enbarassing than "picking though the casserole" for food that I could eat.

Melissa

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    2. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

    3. - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    4. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.