Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feel Half-dead


sillyakchick

Recommended Posts

sillyakchick Newbie

So I hardly ever go out to eat, but I went to lunch last Friday at a local place where I know I can eat this one kind of soup and a salad. Ever since Friday afternoon, I feel like a zombie. I have gone through periods of crying, feeling angry for nothing, being short-tempered, and I am SO. Damn. Tired. I would just curl up here under my desk for the rest of the afternoon if I thought it would do any good. I also have no appetite whatsoever. So is this being glutened or not? I have been dealing with this for 5 years as a well-controlled diagnosed celiac, but for some reason, I still have this question when I feel like this. Am I just PMS-ing? Am I getting a cold? I feel sore all over and I have no energy in my body from my hips to my neck. I know this sounds bizarre, but a little help would be appreciated. How do I get over this if it IS glutenation? Please, send me the antidote! :blink:

I am a complete space case.

Heather

Baby 2001

Celiac 2002

Cholycystectomy 2004

Baby 2006

Spasm of Sphincter of Oddi 2007


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guhlia Rising Star

It sounds like you've probably been glutened. What restaurant did you eat at? Was it a chain? If they commonly make sandwiches or fresh made donuts, breads, or bagels, there's a very high risk of cross contamination. Even one crumb in your soup could gluten you.

As for an antidote, well, the only thing that helps me is Red Bull energy drinks. They give you a good solid shot of B vitamins (as well as other vitamins) and in liquid form for ease of digestion. They generally take the edge off for me, especially with the emotional symptoms.

I hope you feel better soon.

sillyakchick Newbie

I did not eat at a chain restaurant. I had the same thing i always get. She did serve it with an unopened package of crackers, even though I requested no what-bread-roll-of-any-kind. I don't really think that had any effect, but maybe they spilled a bag of flour into it or something.

CarlaB Enthusiast
I did not eat at a chain restaurant. I had the same thing i always get. She did serve it with an unopened package of crackers, even though I requested no what-bread-roll-of-any-kind. I don't really think that had any effect, but maybe they spilled a bag of flour into it or something.

Did you request that they toss your salad in a clean bowl? Perhaps they tossed it in a bowl that had previously been used for a salad with croutons. We can get glutened at any time by the normal things we eat in any kitchen, so even though you've eaten there before, this time they must have contaminated your food in some way.

sillyakchick Newbie

I forgot to ask about the seperate bowl thing. Thanks for reminding me about that. I really REALLY want my brains back. I was such a mess last night that I actually almost started crying while I was making dinner. I feel SO tired, and My brain is just not working.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,626
    • Most Online (within 30 mins)
      7,748

    Tawnya Constable
    Newest Member
    Tawnya Constable
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      I think going back to your GI isn't a bad idea - my visits to the GI did not stop following my diagnosis as I had annoying issues on and off for some time.  Thankfully he is a fantastic GI, with  a great sense of humour, so it wasn't a chore to see him again although I'd rather not have had to, obviously!  But I needed my mind to be put at rest as my symptoms didn't seem to go away overnight as I'd hoped they would.  Initially I recall he recommended I went Dairy Free for three weeks, and he told me it would take that time to see an effect.  At that time, even lactose free milk went straight through me, so it is important, I would say, to even avoid that during a Dairy Free trial. My ongoing symptoms were bloating which did respond a bit to that trial.   However, within about 18 months there was a return to a very sore stomach, plus various aches and pains.   It turned out some gluten was sneaking in with my iron supplement (I was buying Floradix instead of Floravital), but I also think the dishwasher, the oven and eating out were contributors, too. Before my numbers normalised (from memory, about eight years!) I had several follow up appointments and a few more tests, but things gradually did get better.  Having read many accounts on this forum over the years, I don't think it is uncommon for symptoms to get a bit worse before getting better, that was certainly the case with me.  Your gut is damaged so you may well have issues digesting other food in the short term. But do try to be as scrupulously gluten free as you can possibly be as a first step, and I'd definitely try a three week Dairy Free trial.   Your villi because they are damaged are not able to create the lactase required to digest dairy at this time so you may well see some improvement if you come off dairy for a while.  Perhaps keeping a food diary of what you eat, where you eat it, whilst a bit onerous to do, will help identify foods that are causing issues.  For a while, apart from oats, I found peas, lentils and soya products hugely aggravating.  Things should calm down.
    • Rejoicephd
      Thankfully those are normal. B12 was on the low end of the normal range when I first got diagnosed. When I last got it checked, it had come up a lot (455 last time checked).
    • Scott Adams
      You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/  I didn't notice any gluten ingredients in Kirkland Almond non-dairy beverage, however it does contain Locust Bean Gum. Some gums may cause IBS-type issues in some people with celiac disease or gluten sensitivity:    
    • trents
      Have you had B12 levels checked?
    • Rejoicephd
      For the past few months, I've been taking several supplements (a multi-vitamin, an iron supplement, a vitamin C supplement, and a magnesium supplement), all of which state that they are gluten free on the label.  
×
×
  • Create New...