All Grains A Problem For Any?

[oceangirl]

Hi All,

Are there others here who seem to do better when all grains are eliminated? I am giving the Paleo diet a try for a month after this last 2 horrible weeks. I've taken out anything processed, of which there wasn't much but I had been trying a few new things. I am gluten intolerant, positive bloodwork(tTg), negative endoscopy (after 3 months gluten-free), positive fecal Enterolab (gliadin), two gluten intolerant genes (DQ 1,1) Enterolab. Thank you for any perspectives on this.

lisa

[Ursa Major]

Yes, I am intolerant to all grains including rice and corn. You might want to check out my lectin link in my signature. I also can't tolerate any starch, really. I use light buckwheat flour once in a while, but have to limit that to about once a month, as even that will cause bloating and gas. But I have to have a baked treat once in a while!

[tummytroubles]

Right now the only grain I can eat is non-starchy rice. I'm still having some stomach pain and other problems, so I'm still in the process of eliminating items. The rice may end up being the culprit. Although it could be eggs or potatoes. I've already eliminated so many things, but the list of foods that I can eat just keeps getting smaller and smaller. The good part about it though is that I'm feeling so much better than before!

[oceangirl]

Right now the only grain I can eat is non-starchy rice. I'm still having some stomach pain and other problems, so I'm still in the process of eliminating items. The rice may end up being the culprit. Although it could be eggs or potatoes. I've already eliminated so many things, but the list of foods that I can eat just keeps getting smaller and smaller. The good part about it though is that I'm feeling so much better than before!

Thank you both so much for your responses. Ursula, yes, I have researched lectins and currently don't eat many if any. But losing tomatos is definitely a hardship- although not if they make me sick!

Thank you again!

lisa

[jerseyangel]

Hi Lisa,

I am intolerant to most lectins, also. I can eat potatoes though, and after being off all grains for about 6 months, I can eat a serving of rice now and then.

During the 6 months I was off grains, I ate meats, fruits, veggies, almonds, potatoes and drank only spring water. I guess that's close to the Paleo Diet, although I didn't follow any particular diet.

I think taking out processed foods is a good idea for you for now.

I understand how frustrating this is--I did well on the gluten-free diet for about 5 months--then felt horrible again. I figured out my intolerances by doing an elimination diet, suggested by my allergist.

I wanted to let my system heal as much as possible, and at this point (19 months gluten-free), I feel better than I've felt for a long time. I have a pretty limited diet, but it's worth it to me to feel so much better. I avoid: dairy, soy, legumes, coconut, corn, most grains, and tapioca. As limited as that sounds, I eat very well

Sorry you've been struggling with this--best of luck with everything.

[oceangirl]

Hi Lisa,

I am intolerant to most lectins, also. I can eat potatoes though, and after being off all grains for about 6 months, I can eat a serving of rice now and then.

During the 6 months I was off grains, I ate meats, fruits, veggies, almonds, potatoes and drank only spring water. I guess that's close to the Paleo Diet, although I didn't follow any particular diet.

I think taking out processed foods is a good idea for you for now.

I understand how frustrating this is--I did well on the gluten-free diet for about 5 months--then felt horrible again. I figured out my intolerances by doing an elimination diet, suggested by my allergist.

I wanted to let my system heal as much as possible, and at this point (19 months gluten-free), I feel better than I've felt for a long time. I have a pretty limited diet, but it's worth it to me to feel so much better. I avoid: dairy, soy, legumes, coconut, corn, most grains, and tapioca. As limited as that sounds, I eat very well

Sorry you've been struggling with this--best of luck with everything.

Patti,

Thank you for all your thoughts. It is, well, I shouldn't say "encouraging" because I don't want anyone to feel bad as well, but, "helpful", perhaps, to know that I am not the only one who can be beautifully cured by just removing gluten. I've had troubles digesting most of my life (was diagnosed I think wrongly with colitis when I was 11) but had such a marked improvement after 9 months gluten-free that this downward trend feels very disillusioning. Also, since family and friends sometimes seem to question how I'm surviving on what I CAN eat, I often wonder if people who are a ways into this continue to have issues with foods. I don't eat MOST lectins (really want tomatos, though) and if I have too much roughage (in fruits and veggies) have IBS symptoms! So I have a narrow range right now. I AM still eating some processed rice in the AM but that is it for now. I think I live on bananas, meat and fish and summer squash! Right now after this last really apparent glutening (the symptoms are fairly clear), I'm not tolerating things too well so I'm sticking to my few "knowns". Now I've gone on and on...

Thank you so much for writing back!

Best of health to YOU~

lisa