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Son Just Had Biopsy

Disney323

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Disney323 Apprentice
Disney323
Posted

Our 16 month old son just had his biopsy today to see if he has Celiac. Dr. said he still isn't 100% sure until the results come back but that he did see bumps in the small intestine. He is suspicious that it is it. 1 of the 3 tests came back positive for it. The actual celiac test came back negative. We have no idea what to think! His only symptom is that he is not a big eatr and is on the small side. No other symptoms at all. We are still holding out hope that it isn't celiac but we know it must be. Just curious as to what the biopsy usually shows? Thanks.

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momagn5 Newbie
momagn5
Posted

My 4 girls and I all had the biopsy done. The kids all did it together--assembly line! Their blood tests were all positive prior, but the older 2 were in serious denial because they didn't have any symptoms either (they claimed it was just PMS, or not enough sleep). My middle child had the worst symptoms, but had the lowest blood test. My youngest was just developing symptoms but had the highest blood tests. Since my oldest were being stubborn, and we were concerned about the damage done to our youngest, we insisted on the biopsy.

We saw the pics immediately--the redness, and the "bumps". Knowing who had it worst/least per the blood tests we could compare all the pics. The biopsy looks at the level of "bending" of the tissue. It also checks for how serious the damage is. You can't really tell by the pics unless things are really bad.

I have a son who was also given the blood test at about 16 months. He was negative. We are watching for symptoms, and though I sense some, my husband refuses to retest him until he is 3...and the ped GI agrees to wait. He will need to be tested every year for the rest of his life anyway.

Like you, I hope your kiddo is clear of celiac disease. If things aren't so lucky, this is a really good place to check into frequently. Also find a support group right away. Things are getting better for celiac disease folk--lots of nummy foods. Plus, if your child is diagnosed at a very young age, they don't know what they are missing and won't crave the foods that aren't that healthy anyway! ;)

Good luck!

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