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Gliadin Antibody


Bellasmama

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Bellasmama Apprentice

My daughter (who is only 14 months) has had a lot of blood work done and we are getting them back slowly one at a time. The latest one was the Gliadin Antibody it was out of range High >100 U/ml. What does this tell me?

We are still waiting for the celiac panel and other results which should come tomorrow or Wednesday. She also has an endoscope schedualed for the 26th.

The results we got before these said her white blood count was up.

Why does it take so long to get results?!?! ugh! :( They did a lot of stool samples and they all came back okay....no parasites or anything.

Her symtoms are MAJOR constipation, extremely bloated stomach and loosing weight.

I'm still having a hard time really thinking its Celiac. Everyone seems to be so sick after having something they shouldnt and Bella has never been really sick....lathargic yes...but never threw up and has never had diahreah. I'm so confused. :(


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Disney323 Apprentice

Hello,

I am in the same situation as you. My son is 16 months old and has just been diagnosed w/Celiac. When the Dr. mentioned she wanted to test for it I couldn't even beileve it because he's never had any symptoms that would appear to be Celiac. His only symptom is that he doesn't enjoy eating and that he is only 19 lbs. Well, his test came back elevated (I believe 98 was his # when the normal is about 19). He had his biopsy done this past Friday and we are still waiting for results (but we are almost certain it's celiac since the dr. saw bumps in his intestine.) The biopsy is the only official diagnosis of celiac. I am still in a bit of denial as there is no family history (and it's hereditary) and he is such a happy and energetic baby. I hope that your dd doesn't have it but I know that these message boards are a great resource. I know there is a lot of support on here and I'm sure I'll spend a lot of time on here asking questions! Best wishes to you and your family.

Kibbie Contributor
My daughter (who is only 14 months) has had a lot of blood work done and we are getting them back slowly one at a time. The latest one was the Gliadin Antibody it was out of range High >100 U/ml. What does this tell me?

We are still waiting for the celiac panel and other results which should come tomorrow or Wednesday. She also has an endoscope schedualed for the 26th.

The results we got before these said her white blood count was up.

Why does it take so long to get results?!?! ugh! :( They did a lot of stool samples and they all came back okay....no parasites or anything.

Her symtoms are MAJOR constipation, extremely bloated stomach and loosing weight.

I'm still having a hard time really thinking its Celiac. Everyone seems to be so sick after having something they shouldnt and Bella has never been really sick....lathargic yes...but never threw up and has never had diahreah. I'm so confused. :(

Though my daughter did eventually start throwing up she had what the Dr.'s called atypical symptoms.

1. She never had diahreah but was constipated

2. Her stomach was not bloated (until the week that we had the biopsy done)

3. She began to loose weight she was in the 95% at her 15 month check up and at her 18 month checkup (the day before her biopsy) she was in the 50% (dropped weight)

Other than that she was a bit grumpy and extra clingy and whiny!

3 days after her biopsy (3 days after going gluten free) I had my happy 18 month old daughter back! If she does end up having Celiac at least it is something that can be controlled by diet and not pumping a ton of medications into her little body!

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    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
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