Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Had Testing For Gall Bladder


plantime

Recommended Posts

plantime Contributor
I have been sick from my gall bladder all summer, and had trouble getting a doctor to test it. One of the tests ordered was an endoscopy, which was done last Wed. GI doc found two "patches of inflammation" that he took biopsies from. The gall bladder doc (2 different docs, here) read the results of the biopsies to me, telling me there was inflammation in two spots with blunting. When I asked Blunted what? he said villi. I said "Oh, that's the celiac rearing it's ugly head." He said "Ok, then you know what that is all about!" It sure felt good to already know and understand what the doctor was afraid to tell me! My gall bladder does have to come out. That will happen tomorrow at noon. I had previously been diet-diagnosed, now, by accident, I am also biopsy-diagnosed.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



92939 Newbie

;) Dessa, may God be with you in your surgery and during your recovery.

Also did you have hurting in your side and back before you were diagnosed with your gallbladder trouble, because my brother has been having a hurting in his right side around his waist and in his back around that area and won't go to the doctor.

Sincerely

Jean of NC

plantime Contributor

I have a lot of pain in my right side, just under the ribcage. It feels like someone is running a hot poker from my front through my back, and it's coming out just under the right shoulder blade. 30 minutes after eating something with fat (dairy and meats are my triggers), I get the pain, and acid indigestion. About 4 hours later, I have to go do a #2, and it is acidic. It took a biliary scan to learn that it was the gall bladder. I wish your brother would see his doctor. Pain is not something to ignore for very long!

Guest jhmom

Dessa, you are in my thoughts and prayers and I hope you find some relief soon!

Please let us know how you are doing, Take care :)

Canadian Karen Community Regular

Hi!

Just wanted to mention that a very close friend of mine had her gall bladder out about six months ago after suffering with the pain for about 3 years. She has never felt better in her life! She is so glad she had it done!!

Good health vibes being sent your way!

Karen

j9n Contributor

Good luck on your surgery, I hope you feel better soon.

I am curious, I have the same pain and have had an ultrasound and ct scan which are normal. I have not had a biliary scan though. The pain always accompanies diarrhea and the sensitive spot in my back is painful to touch. I sat in one of those massaging chairs and when it hit there I was in pain. The doctor shrugged it off but I am not quite convinced

plantime Contributor

For my gall bladder, I had one xray, two ultrasounds, and a ct scan, all of which came back normal. The biliary scan came back normal on function, but abnormal on reaction. It was the only test that even hinted something was wrong with the gall bladder. It was removed today, and for the first time since April, I was able to eat without pain and nausea. I had the laparascopic surgery, and the only pain I have is the incisions (4 of them, all very small) themselves. I had to stand my ground with two of the doctors that were treating me, and tell them to forget about the insurance, I wanted it out! GB doc said I would only have a 50/50 chance of getting better after the surgery, so I told him I was willing to take that risk. I already feel so much better, it is almost unreal, and it has only been 12 hours since the operation! Stick to your guns. Insist on more definitive tests, and if you think it's necessary, surgery. One thing I learned with Celiac, is that my health is my responsibility, and I have to make sure it is taken care of!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mcalister14 Rookie

:lol: I'm glad that your surgery went well. It's such a great feeling when things go the way they are supposed to!

Best wishes to you!

Stacy

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      9

      My only proof

    2. - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    3. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement

    4. - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    5. - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      ttg iga high (646 mg/dl) other results are normal


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,352
    • Most Online (within 30 mins)
      7,748

    Teagan
    Newest Member
    Teagan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • NanceK
      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
    • knitty kitty
      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.