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wowzer

By wowzer
in Dermatitis Herpetiformis

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wowzer Community Regular
wowzer
Posted

I went to a dermatologist after my biopsies. One was for eczema and the other spongiotic dermatitis. I've been on the gluten free diet since the beginning of the year. Today was my second visit. The first one she gave me an ointment, that itched as soon as I put it on. Today she writes me 3 more prescriptions. She basically didn't listen to a thing I tried to tell her. Why did I waste my time? I just really want to know what the spongiotic dermatitis really is. I did have blisters that had dried up on my face, just under my nose. Of course said she needed to see them when they first came out to know what they are. I tried to explain, that I've had it before, my family doctor cultured it looking for infection, which it came back negative. I have had so many weird itchy rashes over the years. I am trying to avoid it happening. That is why I went gluten free. She decided then to treat it as a cold sore. It doesnt' feel like one to me. I am so mad at myself. Just had to vent here I guess.

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Classicalbook22 Newbie
Classicalbook22
Posted

Boy do I know how you feel. Question have you been diagnosed with Dermatitis Herpetiformis? What mad you go Gluten Free.

Make sure you are not using any skin, and shampoo products that may contain gluten, this can make symptoms worse, and the blisters will not go away.

Ask your Dr. if the medicin that s/he is giving you is gluten free. If she won't hear of it, tell him you would like him to send your medical records to a new doctor who actaully cares. Sometimes you need to work with people who will believe in you.

My regular family doctor had no idea what I had so he sent me to a specialist, who had no idea, who sent me to another dermatologist, who said, and I quote, "That's interesting." I was on creams, pills, and any other kind of treatment you can think of. When my "spots" did not go away, he seemed more concerned with my teenage acne, then the blisters that hurt, burst, and itched like crazy.

It's better a doctor say I don't know what's wrong maybe this guy will, rather than guess and fill you with medicin that could contain gluten and do more damage.

Now that I am diagnosed and gluten free (two years in June!) my skin has healed (though it took over a year), but if I accidently get cross contaminated with gluten tiny blisters show up on my body.

I hope this helped, my suggestion: Make sure your not being cross contaminated, give your body time to heal if it is DH, and consider getting a new doctor, when calling ask what he knows about Celiac, and DH.

wowzer Community Regular
wowzer
Posted
  • Author

I have not been officially diagnosed with DH. I googled rashes after having some real itchy ones last year. The more I looked at the pictures of DH, I saw rashes that I've had over the years that had been diagnosed drug reaction, eczema, hives, poison ivy, impetego. I had a negative blood test and my doctor agreed I still could be celiac. I have a little sister that was diagnosed with celiac at a year old. I'm wondering if maybe my father had it too looking back. I finally decided to try going gluten free. I have had many improvements. I'm sure having a son that works at a pizza place isn't helping my cause. I have to work on him. It seems now I am even more sensitive to gluten. I agree I'm not going back to that dermatologist. What a waste of time. I am checking all my cosmetics, soaps, shampoo and so forth. This site has been a great help. Thank You

jesse Newbie
jesse
Posted

eh question for the classicalbook22 guy, what kind of soap do you use? i use a zest bar of soap though id like to be certain that what im using is gluten free all the way.

please email me or pm about this.

lata,

jdog

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