Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Test Results

deedub

Recommended Posts

deedub Rookie
deedub
Posted

i got my blood test results back and the "TTG IgG AB" is high at 81 and ferritin was slightly low, so the doc wants to do a biopsy tomorrow. I am totally shocked that the blood tests is pointing towards a celiac condition. once i learned that I may have celiac, I've been monitoring when I eat wheat , barley and/or rye and feel no ill effects ? Yes, I know that everyone doesn't have the same or even any symptoms, but is it possible that the blood test is wrong ? Lastly, after my biopsy, if my small intestine looks fine, villi are not flattened, then what ? Is a gluten free diet still necessary even though there are no physical affects ?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jestgar Rising Star
Jestgar
Posted

Someone posted a bit ago that she was absolutely symptomless, except that she only weighed 80 pounds....

She (if I remember correctly) had total villus destruction before she went gluten-free.

I think the symptomless version is the most dangerous. You have no physical cues that you've eaten gluten, except that you are absorbing no nutrition and are slowly killing yourself.

If your antibodies are high, and your ferritin is low, then something's wrong, right?

deedub Rookie
deedub
Posted
  • Author

Right, everyone's different. I am getting nutrition based on my weight, acitivity and overall health. I feel great. I have always had lower ferritin all my life, and at 32, I'm thriving. Yes something is wrong with my digestion with regards to excessive gas which is occasional and bloating which is also occasional. My question was if anyone has had a positive blood test with no damage to the villi ?

What would the doc look for next ?

Jestgar Rising Star
Jestgar
Posted

Well, I don't know what a doc would look for, but I expect people on this forum would suggest you keep a food diary to find out if there's some specific food that gives you problems.

Some common intolerances are soy and dairy. Others include eggs, corn, sulfates, msg (okay that's not really a food, but you get the idea).

And it could be something like whole eggs give you gas, but eggs baked into something are fine. Your diary needs to be pretty specific.

deedub Rookie
deedub
Posted
  • Author

is it typical that my blood test did not check for anti-gliaden IgG and anti-endomysium ?

just wondering that if the entire " panel " was not done, how accurate is the bloodwork ?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,201
    • Most Online (within 30 mins)
      7,748
    Judy Wysocki
    Newest Member
    Judy Wysocki
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      CT with contrast.

      By Scott Adams · Posted

      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      New labs are now very elevated

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
    • trents
      Chances of being coeliac

      By trents · Posted

      @JettaGirl, "Coeliac" is the British spelling of "celiac". Same disease. 
    • JettaGirl
      Chances of being coeliac

      By JettaGirl · Posted

      This may sound ridiculous but is this supposed to say Celiacs? I looked up Coeliacs because you never know, there’s a lot of diseases related to a disease that they come up with similar names for. It’s probably meant to say Celiacs but I just wanted to confirm.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.