Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hungry All The Time!

Jerri Ward

By Jerri Ward
in Coping with Celiac Disease

Recommended Posts

Jerri Ward Apprentice
Jerri Ward
Posted

My brother who was 42 at the time was diagnosed with Celiac in Oct. of 20 of 2005. I am his sister and I was 45 and I was diagnosed in Nov. of 2005. He has 2 daughters who are 7 and 10. The 7 yr. old is very petite. The 10 year old is slightly overweight. They have not been tested for Celiac yet. The 10 year is hungry all of the time. All she thinks about costantly is eating. She is aways hungry. I was wondering if this could possibly have anything to do with Celiac? My brother does not follow a strict gluten-free diet. He doesn't see any harm in cheating here and there. He figures if he cannot feel any effects from it that it is not hurting him. He will not listen to me, therefore I have given up trying to make him understand. I would appreciate any opinions that anyone has to offer. My nieces mom is trying to solve the problem by making her wear pants that are a size too small. That way she cannot grow anymore, and also she will be uncomfortable sitting in school all day in pants that are too small. I think that is child abuse, but there is nothing I can do about it. I think that they both should be tested especially since they not only have a parent that has Celiac, but they have an Aunt, their dads sister and we were diagnosed at the same time. I would appreciate your thoughts. Thanks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

Jerri, you may be right. Being hungry all the time could be a sign of malnutrition. My naturopathic doctor also told me that weight gain can be a sign of malnutrition, too, not just weight loss.

If her intestines aren't absorbing essential nutrients, your niece would constantly feel like eating, because really, she is starving! So, yes, she may well have celiac disease.

And I agree, making her wear pants that are too tight to stop her from eating is definitely abuse. They are punishing her for being overweight, and it is not even her fault! How cruel.

MistressIsis Apprentice
MistressIsis
Posted

Are there any other family memebers that can help you get them to see the light of day? And maybe warn them that if school finds out they're having her wear too small clothes to get her not to eat may very well call social services...

Is she mature enoughfor you to talk to her about elimanating gluten on her own?

As a kid I never ate bread, stuffing cereal etc, just because I didn;t like them...turns out my body knew what was good for me. I got greif but never punished!

Tritty Rookie
Tritty
Posted

How sad :( Even if she doesn't have celiac - she's going to have a complex. The mom needs to be in charge of what she eats (making sure she gets a protein in the morning to stick with her, etc) - and make sure it's healthy - not make her diet at age 10! And not starve the poor kid either - let her eat if she's hungry! Activity, activity, activity. That's what my mom always said - keep them busy - good for their health - and not eating just because they're bored.

Since celiac is so prominent in your family - she definitely should be checked for that. I was SO HUNGRY all the time. I ate and ate and ate....

Good luck - I know it's hard to hear bad news about your own kids from someone else - maybe you could print off some articles or similar situations to help prove your point...?

Jerri Ward Apprentice
Jerri Ward
Posted
  • Author
How sad :( Even if she doesn't have celiac - she's going to have a complex. The mom needs to be in charge of what she eats (making sure she gets a protein in the morning to stick with her, etc) - and make sure it's healthy - not make her diet at age 10! And not starve the poor kid either - let her eat if she's hungry! Activity, activity, activity. That's what my mom always said - keep them busy - good for their health - and not eating just because they're bored.

Since celiac is so prominent in your family - she definitely should be checked for that. I was SO HUNGRY all the time. I ate and ate and ate....

Good luck - I know it's hard to hear bad news about your own kids from someone else - maybe you could print off some articles or similar situations to help prove your point...?

Thank you for your responses. It is sad to say that my brother and my sil are so consumed with work that both of my nieces come in second place. My sil is tall skinny and my other niece is skinny and so she sort of punishs Alyssa because she is not skinny. Yesterday when I picked the girls up from school, Alyssa had on one her skorts. They go to a private christian school. I went to my bedroom while she was undressing and she could hardly get it off it was soo tight. I was soo mad that I could hardly keep from screaming. I cannot say anything to my brother about it, because he will go straight to my sil and she despises me and myi mother and would stop letting us see the girls and that would kill both of us and them. They need us badly. Also, I could not get my brother to understand that she needs to be tested, because he does not follow the diet properly. He cheats all of the time. He thinks that because he doesn't feels any effects of cheating that it is o.k. It is a real mess. Thanks guys for listening.

tarnalberry Community Regular
tarnalberry
Posted

Gah! That IS disturbing. I'm not sure that child protective services wouldn't want to know... but then the family would *really* be pissed...

I'm sorry. :(

NoGluGirl Contributor
NoGluGirl
Posted

Dear Jerri,

Your SIL sounds like a complete idiot! People like that should not breed! I agree that your niece could be malnourished. You can still gain weight if you are malnourished. Your body craves more food because it needs nutrients. When it does not get them, it has you eat more and you take in excess calories. Her mother is being lazy. She does not want to deal with it. Let me guess...your SIL is not exactly the brightest crayon in the box?

Sincerely,

NoGluGirl

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted
Thank you for your responses. It is sad to say that my brother and my sil are so consumed with work that both of my nieces come in second place. My sil is tall skinny and my other niece is skinny and so she sort of punishs Alyssa because she is not skinny. Yesterday when I picked the girls up from school, Alyssa had on one her skorts. They go to a private christian school. I went to my bedroom while she was undressing and she could hardly get it off it was soo tight. I was soo mad that I could hardly keep from screaming. I cannot say anything to my brother about it, because he will go straight to my sil and she despises me and myi mother and would stop letting us see the girls and that would kill both of us and them. They need us badly. Also, I could not get my brother to understand that she needs to be tested, because he does not follow the diet properly. He cheats all of the time. He thinks that because he doesn't feels any effects of cheating that it is o.k. It is a real mess. Thanks guys for listening.

On the issue of her clothing, you may be able to do something about that through the school. I would talk to a counselor or the priest, privately and express your concerns. She may be getting teased at school about it also. I would not involve child protective services unless she is in serious danger that can not be resolved in any other way. Her parents may not be perfect but the trauma of being taken away could have life long consequences. Talk to the child and always be available for her and her sister. Our society makes it very hard sometimes to raise children properly. In the past if a parent was not able to take complete care there was a extended family to take up the slack. You may need to do that. You can continue to advise on the diet but her parents may not listen, if that is the case any education and support you can provide is vital. She is lucky to have you caring about her, please don't risk her parents severing that relationship.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,546
    • Most Online (within 30 mins)
      7,748
    KimberlyAnne76
    Newest Member
    KimberlyAnne76
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.