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Am I Grain Intolerant?

Aeval

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Aeval Rookie
Aeval
Posted

Hi,

I just joined this forum today and I need some advice. My doctor wants me to go off grains. I have never been tested for Celiac Disease, do not have any of the symptoms and, as far as I know, am not related to anyone who has it. I have recently recovered from adrenal fatigue but my DHEA is still way to low. My doctor thinks going off grains will help. When I ask her why, she says because I have Celtic, Nordic and Germanic ancestry. This doesn't sit well with me as an explanation. I said, "Why don't you test me for an allergy or an intolerance?" She says that she doesn't think I have an allergy or an intolerance. She thinks I have "wheat toxicity" and there's no test for it. She says there's some type of test she can give me after I've been off grains for three months that will show if I have anti-bodies but I have to be off the gluten for a while first. She says if she gives it to me now, no anti-bodies will show up because I've got grains in my system. Or something like that.

So I've been off of grains for 4 days and although my stomach never bothered me before, it seems to bother me now. It feels acid-y and just not quite right.

Has anyone out there ever heard of wheat toxicity? Is it different than intolerance? Is my doctor crazy? Should I run from her office and never look back? Giving up gluten just seems like a big lifestyle change to make for an uncertain reason.

Thanks,

Aeval

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3boyzmom Newbie
3boyzmom
Posted

While I've personally never heard of a wheat toxicity, it doesn't mean there isn't such a thing.

The not testing you right now part is what I don't understand. If you are having a reaction to wheat or the protein in wheat called gliadin, then you HAVE to be consuming it for the antibodies to be present. If I were you, I'd get a celiac blood test panel done first:

Open Original Shared Link

This link gives you the low down on all the appropriate testing to look for a gluten intolerance and to see if that intolerance has led to Celiac's disease.

If you wait until you are gluten free, then test, they'll be nothing to test becasue your body will have nothing to react against...

Your doctor's reasoning is flawed... i can't seem to figure out what she is looking for... ???

Maybe you DO need a new doctor! :)

Priscilla

gf4life Enthusiast
gf4life
Posted

I responded to your post about this in the Doctors section.

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    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      This is a good point. The primary things I’ve been able to tolerate are crackers and pretzels and bread slices (also rice and potatoes but ntp). I’ve been loading up on gluten based snacks so the testing should be valid as far as I understand. 
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      I agree with @trents that the IgA you listed sounds like a total IgA, not celiac-specific, if 114 is normal.  Were any other antibody tests run?  
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