Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Am I Grain Intolerant?

Aeval

Recommended Posts

Aeval Rookie
Aeval
Posted

Hi,

I just joined this forum today and I need some advice. My doctor wants me to go off grains. I have never been tested for Celiac Disease, do not have any of the symptoms and, as far as I know, am not related to anyone who has it. I have recently recovered from adrenal fatigue but my DHEA is still way to low. My doctor thinks going off grains will help. When I ask her why, she says because I have Celtic, Nordic and Germanic ancestry. This doesn't sit well with me as an explanation. I said, "Why don't you test me for an allergy or an intolerance?" She says that she doesn't think I have an allergy or an intolerance. She thinks I have "wheat toxicity" and there's no test for it. She says there's some type of test she can give me after I've been off grains for three months that will show if I have anti-bodies but I have to be off the gluten for a while first. She says if she gives it to me now, no anti-bodies will show up because I've got grains in my system. Or something like that.

So I've been off of grains for 4 days and although my stomach never bothered me before, it seems to bother me now. It feels acid-y and just not quite right.

Has anyone out there ever heard of wheat toxicity? Is it different than intolerance? Is my doctor crazy? Should I run from her office and never look back? Giving up gluten just seems like a big lifestyle change to make for an uncertain reason.

Thanks,

Aeval

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


3boyzmom Newbie
3boyzmom
Posted

While I've personally never heard of a wheat toxicity, it doesn't mean there isn't such a thing.

The not testing you right now part is what I don't understand. If you are having a reaction to wheat or the protein in wheat called gliadin, then you HAVE to be consuming it for the antibodies to be present. If I were you, I'd get a celiac blood test panel done first:

Open Original Shared Link

This link gives you the low down on all the appropriate testing to look for a gluten intolerance and to see if that intolerance has led to Celiac's disease.

If you wait until you are gluten free, then test, they'll be nothing to test becasue your body will have nothing to react against...

Your doctor's reasoning is flawed... i can't seem to figure out what she is looking for... ???

Maybe you DO need a new doctor! :)

Priscilla

gf4life Enthusiast
gf4life
Posted

I responded to your post about this in the Doctors section.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,201
    • Most Online (within 30 mins)
      7,748
    Elisa Stutsman
    Newest Member
    Elisa Stutsman
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Redanafs
      Diagnosis and further testing Celiac

      By Redanafs · Posted

      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Waiting Gastroenterology review

      By Fayeb23 · Posted

      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      Waiting Gastroenterology review

      By RMJ · Posted

      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Bev in Milw · Posted

      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
×
×
  • Create New...