Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To This


SusanT

Recommended Posts

SusanT Newbie

Hi everyone --

Daughter, 17, has felt lousy and lousier since roughly the start of school in September. Thought it was "just" junior year anxieties with a high achieving kid but it got to be too incompatible with her personality. It finally occurred to one of us that she was experiencing many gluten-sensitive/celiac-type symptoms -- bad gastro-intestinal, relentless depression, weight loss, migraine, pallor, super fatigue. So she's trying to go gluten-free and is seeing results after just a week. Since we're so new at this, we've already glutinated her once by accident and maybe a second time yesterday. She bought choc. covered almonds with the following ingredients listed:

Milk chocolate (evaporated cane juice, cocoa butter, unsweetened chocolate, whole milk powder, soy lecithin, natural vanilla), almonds, pure food glaze.

So let me guess and then you experts tell me if I'm suspecting the most likely things -- the whole milk powder and/or the food glaze?

She's super on-the-go, a competitive gymnast with honors classes pretty much across the board. She's not a complainer and she's willing to take time to pull food together that won't make her sick. But, if anyone out there has late teens who need speedy food fixes now and then and can pass good Gluten-free ideas along, we would be very grateful.

Finally (really!), can we just assume that since Gluten-free eating seems to work we can just go on with that, or is there a really good reason to get tested anyway? It sounds like she may have to get sick again to be tested accurately and she really isn't interested in that!

Thank you for any help you can give --

Susan


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

Welcome to the board, and congratulations on figuring out your daughter's health problems.

It sounds to me like you've found something that works. That's basically what I did as well. I haven't ever sought any "official" diagnosis, nor do I have plans on doing so. No matter what any tests might say, there's no way I'll ever ingest gluten again, period. Many folks feel more at ease with their dietary choice when they have such a diagnosis, so if she wants that I suppose it's a matter of personal choice. However, something tells me she won't want to go through the pain (and intestinal damage) just to be told what she already knows.

Your guess on the food glaze is what I'd think as well, unless of course her problems include candida. In that case the sugar content would be a problem, but I'm guessing other sweets have been tolerated or you'd have seen reactions before the chocolate bar.

Here's a recipe to duplicate mounds and almond joy bars:

Open Original Shared Link

HTH

dally099 Contributor

hi there, well maybe this well help, it could be the soy lectin, i know that as of late i have a problem with soy and its deritatives (hope i spelt that right) and from what ive read on the site lots of people here have problems with soy and dairy. good luck! ;)

SusanT Newbie

Wow -- Peter Paul and Mounds?! I know what we're doing this weekend! Thanks for the support --

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,874
    • Most Online (within 30 mins)
      7,748

    RoxanneK
    Newest Member
    RoxanneK
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      As I suspected, xanthan gum is one of the ingredients. It is a polysaccharide used as a texturing agent in many gluten-free products. It's hard to digest and causes distress for many celiacs. I can't say for sure if that was the problem but you might be on the lookout for it in the future. Muscle spasms can be caused by magnesium deficiency. Are you taking any vitamin and mineral supplements? I mean some things more potent than a multivitamin?
    • Wheatwacked
      Hello @Suze046 In the western world 40 to 60 percent are low or deficient in Vitamin D.  Malabsorption from Celiac Disease, avoidance of UV from the sun and seasonal variations can result in low vitamin D.  A simple 25(OH)D test will tell you your status.  Low vitamin D affects immune system, bone health, mental health.  I keep mine around 80 ng/ml (200 nmol/L). Choline has many functions in our body.  From the neurotransmitter Acetylcholine to fat digestion.  It is made by our bodies but in insufficient amount.  The major dietary source is from beef and eggs.  The RDA is 500 mg a day.  That would be equivelant to 3 eggs or 10 cups of cooked brocolli a day.  Choline is a significant portion of biliary phospholipids and is a crucial element for bile function.n.  I found taking Phosphatidly Choline capsules helps.  A homocysteine test can be indicative of choline deficiency.  Could we be overlooking a potential choline crisis in the United Kingdom? NIH Choline Fact Sheet Vitamin D Is Not as Toxic as Was Once Thought
    • annamarie6655
      @trents thank you so much for your response!  When i was diagnosed, I was exhibiting mainly joint pain, hair loss, bloating, and allodynia (painful feeling from non painful stimuli). The muscle spasms only started after diagnosis, and it seems to only happen when I am severely glutened. It’s only happened twice, but it definitely makes me nervous when it happens.    In regard to the pizza, thats what i saw after i got sick from it. I’m still trying to figure out how to switch to ALL certified gluten-free goods.    for the dressing, here is the ingredient list:  WATER, VEGETABLE OIL, VINEGAR, SUGAR, GARLIC, SALT, RED BELL PEPPER, ONION, CONCENTRATED LEMON JUICE, XANTHAN GUM, POTASSIUM SORBATE, HERBS, CALCIUM DISODIUM EDTA, MONOACETIN, SPICES. and the link: https://www.kraftheinz.com/en-CA/kraft/products/00068100903577-zesty-italian-salad-dressing  
    • trents
      Welcome to the forum, @annamarie6655! Are the muscle spasms and joint aches a new pattern of reaction to gluten or have you experienced these in the past? Concerning DeGiorno's "gluten-free" pizza, we have had many reports from celiac.com members of gluten reactions from consuming this product. I believe it is one of those "gluten-free" products that is made from wheat (speaking of the crust component) that has been processed in such a way as to remove most of the gluten. The FDA regs allow food companies to use the claim "gluten-free" as long as the product contains no more than 20ppm of gluten. This works for most celiacs but not for those on the more sensitive end of the spectrum. There is another industry standard known as "Certified Gluten-Free" that is stricter, requiring no more than 10ppm of gluten. Certified Gluten-Free products use the "GFCO" logo. Concerning the salad dressing, could you list the ingredients in another post or link it? There are certain other ingredients besides gluten commonly used in gluten-free manufactured food items to give them acceptable textures that give a lot of celiacs problems. 
    • annamarie6655
      Hello, so I was diagnosed with Celiacs about 8 months ago. After being diagnosed, I have been trying very hard to maintain a completely gluten-free (and celiac safe) diet.  Two of the main times I had a huge reaction, it was from: - gluten-free Digiorno Pizza w Pepperoni - Kraft Zesty Italian Dressing (this was in canada if that changes anything) Both are marked as gluten-free. Following eating these items, I had a severe bout of diarrhea, uncontrollable and heavy muscle spasms throughout my whole body, and aching throughout every joint.   If these are both gluten-free, why would I be reacting to them? Should I be worried about a separate allergy?  In regards to the muscle spasms, should I follow up with someone about that?
×
×
  • Create New...