Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New To This


SusanT

Recommended Posts

SusanT Newbie

Hi everyone --

Daughter, 17, has felt lousy and lousier since roughly the start of school in September. Thought it was "just" junior year anxieties with a high achieving kid but it got to be too incompatible with her personality. It finally occurred to one of us that she was experiencing many gluten-sensitive/celiac-type symptoms -- bad gastro-intestinal, relentless depression, weight loss, migraine, pallor, super fatigue. So she's trying to go gluten-free and is seeing results after just a week. Since we're so new at this, we've already glutinated her once by accident and maybe a second time yesterday. She bought choc. covered almonds with the following ingredients listed:

Milk chocolate (evaporated cane juice, cocoa butter, unsweetened chocolate, whole milk powder, soy lecithin, natural vanilla), almonds, pure food glaze.

So let me guess and then you experts tell me if I'm suspecting the most likely things -- the whole milk powder and/or the food glaze?

She's super on-the-go, a competitive gymnast with honors classes pretty much across the board. She's not a complainer and she's willing to take time to pull food together that won't make her sick. But, if anyone out there has late teens who need speedy food fixes now and then and can pass good Gluten-free ideas along, we would be very grateful.

Finally (really!), can we just assume that since Gluten-free eating seems to work we can just go on with that, or is there a really good reason to get tested anyway? It sounds like she may have to get sick again to be tested accurately and she really isn't interested in that!

Thank you for any help you can give --

Susan


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

Welcome to the board, and congratulations on figuring out your daughter's health problems.

It sounds to me like you've found something that works. That's basically what I did as well. I haven't ever sought any "official" diagnosis, nor do I have plans on doing so. No matter what any tests might say, there's no way I'll ever ingest gluten again, period. Many folks feel more at ease with their dietary choice when they have such a diagnosis, so if she wants that I suppose it's a matter of personal choice. However, something tells me she won't want to go through the pain (and intestinal damage) just to be told what she already knows.

Your guess on the food glaze is what I'd think as well, unless of course her problems include candida. In that case the sugar content would be a problem, but I'm guessing other sweets have been tolerated or you'd have seen reactions before the chocolate bar.

Here's a recipe to duplicate mounds and almond joy bars:

Open Original Shared Link

HTH

dally099 Contributor

hi there, well maybe this well help, it could be the soy lectin, i know that as of late i have a problem with soy and its deritatives (hope i spelt that right) and from what ive read on the site lots of people here have problems with soy and dairy. good luck! ;)

SusanT Newbie

Wow -- Peter Paul and Mounds?! I know what we're doing this weekend! Thanks for the support --

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - yellowstone posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Cold/flu or gluten poisoning?

    2. - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

    3. - Wheatwacked replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

    4. - trents replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,062
    • Most Online (within 30 mins)
      7,748

    JTL1976
    Newest Member
    JTL1976
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • yellowstone
      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive, to produce symptoms similar to those of gluten poisoning.        
    • Churro
      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily basis. 
    • Wheatwacked
      Non-Celiac Gluten Sensitivity (NCGS) can be associated with low ferritin and iron deficiency. Once Celiac Disease (1% of the population affected) has been ruled out by tests the next step is to check for Non Celiac Gluten Sensitivity (10% of the population affected) by eliminating gluten for a trial period, then re-introduce Gluten Challange. Have you been supplementing Iron? How are your liver enzymes? Low levels of ferritin indicate iron deficiency, while  59% transferrin saturation indicates high iron levels.  Possibly indicating Fatty Liver Disease.  Choline is crucial for liver health, and deficiency is a known trigger for Non-Alcoholic Fatty Liver.  Some experts say that less than 10% eat the the Food and Nutrition Board established Adequate Intake that are based on the prevention of liver damage. Severe constipation and hemorrhoids may be linked to a bile or choline deficiency.  "Ninety-five percent of phospholipids (PLs) in bile is secreted as phosphatidylcholine or lecithin."  Fatty acid composition of phospholipids in bile in man   Deficiency of these bile salts causes the bile to get thick. Some people with Celiac Disease are misdiagnosed with Gall Bladder bile issues.  Removal of the gallbladder provides only temporary relief. Whether or not celiac disease or NCGS are your issues you need to look at your vitamin D blood level.   
    • Churro
      Thanks for your input. 
    • trents
      If you have hemorrhoids 1x weekly I don't see how you have time to heal from one episode before you experience another one, unless each one is a very minor event. Have you consulted a physician about your hemorrhoid issue? It's not normal to be having an episode every week unless it is really one episode that is not completely healing between weekly flareups.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.