It All Still Hurts

[sleepy1]

I was told 3-22-07 that I had celiac spru so I have been glutten free (as far as I know) since, but still feel extreamly tired all the time and still hurt most of the time whether it is my gut, migranes(3-4 a week)or just pain in my muscles and bones. What kinds of things should i be asking my doc.? also does anyone have suggestions on staying asleep I have been taking Ambien CR and it gets me to sleep but only for a few hours then just off and on (if that) I never feel like i have had enough even with all the naps I have to take to make it through the day,I know it hasn't been that long but when will I feel better and does anyelse want to cry or am I just Depressed?

[Guest lorlyn]

Just wanted to say hello and welcome to he board. My husband and daughter have been gluten free for about six months. My 10 year old has depression from time to time and my husband gets depressed because he keeps loosing weight and I think that scares him. But there depression is short lived because we like to keep busy and try to keep moving on with our lives during those times. As a wife and mother I also get depressed at times. Just try to stay positive and look at the positive things while your mood is down Good luck It can take some time.

[ravenwoodglass]

I was told 3-22-07 that I had celiac spru so I have been glutten free (as far as I know) since, but still feel extreamly tired all the time and still hurt most of the time whether it is my gut, migranes(3-4 a week)or just pain in my muscles and bones. What kinds of things should i be asking my doc.? also does anyone have suggestions on staying asleep I have been taking Ambien CR and it gets me to sleep but only for a few hours then just off and on (if that) I never feel like i have had enough even with all the naps I have to take to make it through the day,I know it hasn't been that long but when will I feel better and does anyelse want to cry or am I just Depressed?

Welcome to the boards. It will take time for the antibody reaction to leave your body and brain but it will. The best thing you can do to hurry it along is for now stay away from processed mainstream food, you'll have time enough to add those in carefully after you are healed and the CC risk is high. Eat as much fresh naturally gluten free food as you can. Fresh or frozen fruits and veggies, meats and eggs. Drop dairy for a month or so then add it back in and make sure you can tolerate it. The same villi that are damaged by gluten are needed to digest dairy and to make B12. Some sublingual B12 gluten-free of course, will help a great deal also. Things will get better but it takes time to heal.

It is extrememly important that you check everything you use on or take into your body for gluten. This includes any and all meds, OTC or script.

[lovegrov]

I was unusually tired and my joints ached horribly for months and months. You don't get all better in a couple of weeks.

richard

[sallyterpsichore]

I was unusually tired and my joints ached horribly for months and months. You don't get all better in a couple of weeks.

richard

Yep, I second that. I've been gluten free since the day after Thanksgiving (I wanted to eat one last feast before getting my test done...since they were quite certain I had celiac just from my antibodies). Anyway, I'm still a mess. I get migraines (have one now), my stomach still kills me with no hints as to what it is, I get major muscle aches, fatigue, and depression. I've also been off dairy and soy since January. It's frustrating to not be able to eat much or have a social life and still not get much better. I'm still better than I was while eating gluten, but you sort of lose motivation when nothing improves like people say it will ("I felt so much better within a couple weeks!" etc. etc.)

Good luck with the doctor and keep posting if you need any support/advice, or just want to whine!

-Sally