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Feeling Like Burden


BUGTWIG

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BUGTWIG Rookie

I have been dealing with being gluten free. A frustrating Process as you all know. I have a great family but it seems like all of our favorites are flying out the window and I feel so bad. I have them still have them and I make something else for me.

There are just so many times I just want to cry because of all the changes. and there are many times I have.

I just want to eat and not worry what is in it. The other day I did just that convinced myself I could eat it . Well I paid over and over.

I then hate that feeling even more.

This is what I am focusing on If i eat that I will feel so bad it isn't worth it.

I am also having a hard time with not being able to get back to work or have the energy to take care of the kids all day yet.

I love my job and haven't been back this year. I miss it I feel like part of me is gone. I also having to depend so much on others to do things for me. But I am just so low energy I sleep all the time. and I feel sick alot. I am doctoring a lot right now tests to rule other things out. As of now I am diagnosed gluten intolerant. I don't want to do the biopsy. They said I would have to start eating the food to have the test be accurate I just don't want to do that esp after the other day.

I feel I am in the land of lost

Jyn


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Ursa Major Collaborator

Jyn, I am sorry you still feel so bad. Have you been tested for adrenal fatigue and hypothyroidism? Both are very common with celiac disease, and especially adrenal fatigue can be directly caused by it.

I know how you feel, though. I never had much energy as a kid already, but after having kids my energy was just gone. I have been made to feel like a burden, and being told it was all in my head and I was just lazy for pretty much all of my marriage of 28 years.

For me it is a very long haul of getting better, and I don't know if I will ever actually be well. But with the gluten-free diet and taking adrenal and thyroid meds, I am slowly, slowly able to do a little more every week or so.

Are you still eating/drinking dairy products? You may want to eliminate those for now if you haven't already, it could make a difference. And remember, it takes time to recover. It took years to get as sick as you are, and you won't be healed instantly either.

It isn't your fault you are sick, you didn't choose to have celiac disease.

Have you had all your levels of essential nutrients checked? Being low in key vitamins and minerals could keep you feeling bad, too. Especially iron, vitamin D, B vitamins and magnesium are essential for energy.

Also, you don't have the energy to cook more than one meal. Your family will be fine eating gluten-free, especially because you can get gluten-free substitutes for almost everything. If you don't use more energy than you have, you will recover much quicker. Plus the risk of cross-contamination will be lowered tremendously if you don't have gluten foods in the house.

Jestgar Rising Star

Hi Jyn, hang in there - it gets easier over time.

Right now you still have to be aware and pay attention, but after a while more things become automatic and don't take as much energy.

Try to adopt some family favorites to gluten-free so you don't feel the need to make two meals.

My Mom (who raised 7 kids) used to have "catch as catch can" meal nights where you could eat anything you wanted, as long as you made it.

I don't know what your job is, but is there some literature you can read now and then to kind of keep you fresh and feel less like you're missing something you love?

And finally whine, whine whine. This is the place to do it, and everyone here understands some part of what you're going through. Sometimes just saying what's bothering you seems to help you get through it.

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