Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rx For Blood Work!


I3Daniel

Recommended Posts

I3Daniel Apprentice

I figured this would happen, but there was really no way around it. I just need some advice about what to do...

I suggested to Daniel, after doing a ton of research, that he might be gluten-intolerant. He wasn't thrilled with the idea, but eventually wanted to try going gluten-free, to see if he would notice any changes. He wasn't able to go to the doctor right away to try for testing because he doesn't have medical insurance. So, about a week and a half ago, we started eating gluten-free, and already he's noticed a difference. We're both really glad we decided to give it a try.

Daniel's brother Mike works at a hospital (as a respiratory therapist, I think), and discussed this whole ordeal with a doctor he knows, and the doctor wound up giving Mike a script for Daniel for a Celiac blood panel. We were so excited! So, we're just going to have to pay for the blood work, which we should be able to handle, especially since Mike said he'd help pay for the testing! Mike is such a great guy, we're soo lucky to have him. I'm so glad at least someone in Daniel's family is taking this seriously and is willing to help!

So, here is the problem...Daniel's been gluten-free for about a week and a half now, not too long. But, he has noticed a difference. He's not thrilled about the idea of eating gluten from now until his test (although he's excited to have bread and fast food!) because he's already getting through some of the withdrawal-like symptoms, and getting used to eating gluten-free, and doesn't want to have to go through it all over again. But, he is willing to do it if it's going to make the test more accurate. But my question is, is a week and a half or two weeks enough to make a test inaccurate? If he can get in by then end of this week, will he still have the antibodies in his blood from two weeks ago? Or, should we put the test off for a couple weeks and load up on the gluten??

After reading so many of your stories, I knew this was a possibility. I realize that a blood test is not the final say, if it comes out negative. I just know that it would be easier for Daniel to strictly follow a gluten-free diet if he has an official diagnosis. Plus, I think for both of us, the effort of it all will seem more worthwhile, and less like something we're just trying out if there's an official diagnosis.

Any insights will be greatly appreciated. Thank you all for your wonderful support.

Sami


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



UNCHeel Rookie

I went to my chiro the other day and he had suggested to one if his clients that he gradually back off the grains and he did so gradually over a few months and felt great. So the guy went and got tested and was Celiac so I think you have some time from what I've seen. Maybe Daniel's brother could ask one oft he GI doctors for advice?

happygirl Collaborator

A person who wants as accurate of a test as possible needs to continue eating gluten. If you get a negative, you won't "know."

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,163
    • Most Online (within 30 mins)
      7,748

    Estee
    Newest Member
    Estee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...