Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rx For Blood Work!

I3Daniel

Recommended Posts

I3Daniel Apprentice
I3Daniel
Posted

I figured this would happen, but there was really no way around it. I just need some advice about what to do...

I suggested to Daniel, after doing a ton of research, that he might be gluten-intolerant. He wasn't thrilled with the idea, but eventually wanted to try going gluten-free, to see if he would notice any changes. He wasn't able to go to the doctor right away to try for testing because he doesn't have medical insurance. So, about a week and a half ago, we started eating gluten-free, and already he's noticed a difference. We're both really glad we decided to give it a try.

Daniel's brother Mike works at a hospital (as a respiratory therapist, I think), and discussed this whole ordeal with a doctor he knows, and the doctor wound up giving Mike a script for Daniel for a Celiac blood panel. We were so excited! So, we're just going to have to pay for the blood work, which we should be able to handle, especially since Mike said he'd help pay for the testing! Mike is such a great guy, we're soo lucky to have him. I'm so glad at least someone in Daniel's family is taking this seriously and is willing to help!

So, here is the problem...Daniel's been gluten-free for about a week and a half now, not too long. But, he has noticed a difference. He's not thrilled about the idea of eating gluten from now until his test (although he's excited to have bread and fast food!) because he's already getting through some of the withdrawal-like symptoms, and getting used to eating gluten-free, and doesn't want to have to go through it all over again. But, he is willing to do it if it's going to make the test more accurate. But my question is, is a week and a half or two weeks enough to make a test inaccurate? If he can get in by then end of this week, will he still have the antibodies in his blood from two weeks ago? Or, should we put the test off for a couple weeks and load up on the gluten??

After reading so many of your stories, I knew this was a possibility. I realize that a blood test is not the final say, if it comes out negative. I just know that it would be easier for Daniel to strictly follow a gluten-free diet if he has an official diagnosis. Plus, I think for both of us, the effort of it all will seem more worthwhile, and less like something we're just trying out if there's an official diagnosis.

Any insights will be greatly appreciated. Thank you all for your wonderful support.

Sami

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


UNCHeel Rookie
UNCHeel
Posted

I went to my chiro the other day and he had suggested to one if his clients that he gradually back off the grains and he did so gradually over a few months and felt great. So the guy went and got tested and was Celiac so I think you have some time from what I've seen. Maybe Daniel's brother could ask one oft he GI doctors for advice?

happygirl Collaborator
happygirl
Posted

A person who wants as accurate of a test as possible needs to continue eating gluten. If you get a negative, you won't "know."

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,545
    • Most Online (within 30 mins)
      7,748
    Jem68
    Newest Member
    Jem68
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.