Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

First Trip gluten-free - Any Tips?


alamaz

Recommended Posts

alamaz Collaborator

I'm back from my first gluten-free vacation and I have to say it went better than I anticipated. I traveled to Miami, FL and stayed at the Loews hotel on South Beach. The hotel is great and I was able to order lunch every day perfectly gluten free. On the menus they ask guests to inform servers of any food intolerences so they seemed to be aware of the various allergies that exist. One day I ordered a bunless hamburger and subbed the fries for fruit because the fries shared a fryer with the fried seafood items. The rest of the time I ordered a chicken ceasar and had no problems. Breakfasts we just did fruit and Lara Bars and coffee so I can't say how they would accomodate a gluten-free breakfast.

For dinners we went to Emeril's, Evolution and Pacific Time. For all three meals the servers were aware of gluten and what was entailed. I was impressed! All of these restaurants are free standing and more expensive than I typically would frequent but since we were on vacation we splurged. I was nervous about the dinners because South Beach is always busy and packed but all the servers were able to confirm with the chefs that meals were able to made gluten-free. At Evolution when dessert rolled around the server said "I'm sorry but the chef has said none of the desserts are gluten free except the sorbet" which was served on top of a glutenous cake of some type so when the table declined to order dessert the chef sent out some yummy gluten-free pineapple sorbet on the house for me while the rest of the table was sent a different flavor sorbet that wasn't gluten-free. Very cool :P

I had a hard time finding gluten-free recommendations in Miami so I hope this helps some people who plan to go there. South Beach is definitely not cheap but the "girls" go there every year for a long weekend so I couldn't miss the trip on account of my new "issues" and am glad I did it. I feel a lot better about being diagnosed and still living some type of normal lifestyle that includes dining out from time to time.

Thanks for all the tips. All my snacks were consumed by the whole group while down at the beach all day so not only did it come in handy for me but every one was impressed at how suprisingly good most of the gluten-free things were

Amy

Well, next week I'm traveling for the first time gluten-free. I'm planning to take some Lara Bars for snacks but I can't seem to put together a list of what else I should take to help make the gluten-free part a little easier. Can I take Immodium in case of a glutening? We're going to be at the beach so that last thing I want to do is run back and forth between the beach and the hotel because of the big D!!!

What types of snacks do you guys bring?

What medications can/should I bring?

Do dining cards really do anything?

Does any one have recommendations for restauranst in South Beach and/or Miami FL?

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nantzie Collaborator

Imodium definitely works for me. Make sure you get the caplets. I heard at one time the liquid either had gluten, or was "produced in a facility" with gluten ingredients. Not sure about the chewables.

I always bring some gluten-free bread with me in my suitcase. If you're staying in a hotel, some hotels will provide you with a mini fridge for free if you just ask. Then you can go to a grocery store, you can get some sandwich and salad stuff and at least have that.

I also bring some Thai Kitchen Noodle Cart things. They're kind of like the old gluteny cup o' soup. It comes in a plastic box that is used to cook the noodles. The rice noodles just have to sit in hot water for a while to cook, then you drain it with the drain holes on the lid and mix in the seasoning packet. Most hotels' hot water is ridiculously hot and is usually hot enough to cook the rice noodles no problem. Thai Kitchen also has soup bowls that are pretty good.

Also if you're staying in a hotel talk to them about any restaurants they have on their property. They may be able to accommodate your diet.

The dining cards are great. I have the Triumph ones. The basic American card has English on one side and Spanish on the other, which comes in handy since you're visiting somewhere that has a big spanish-speaking population. Make sure you point out the section about cross-contamination (second-hand gluten).

I've had a really good experience with the cards. It seems to be much easier for people to understand when they read it themselves. When they hear it it doesn't seem to stick as well. It's a lot of stuff for someone to remember when two seconds ago they may have never even heard of it.

Let us know how everything goes.

Nancy

StrongerToday Enthusiast

I also always bring bread and some peanut butter. Lara bars are good too, a well as other nut/snack mixes. Progresso chicken and wild rice soup is gluten-free and only needs a microwave and a spoon. If you're flying, do not bring liquid medicine on board with you - they took my Pepto last time! It's safe in your suitcase, just not for carryon.

alamaz Collaborator

thanks. a small jar of peanut butter would work to put on apples and bananas. i didn't even think of that. i'm not able to eat lots of gluten-free baked goods right now so bread is not an option unfortunatley. maybe i'll take some rice cakes.....it looks like i'll have two suitcases- one with clothes and one with food! :lol:

blueeyedmanda Community Regular

Also research the area and see what dining option are there in case you want to venture out, see if there are any health food stores along the way you can stop at. This way you can see what products are out there that maybe are not carried in your area.

Bring your favorite crackers along.

Immodium <---my lifesaver

Fresh Fruits are always great snacks.

Glutino pretzels. Mmmm

your favorite gluten-free snacks this way you always know there is something you will like.

When we go to the shore for a few days I bring leftovers from home with me and heat them up in our beach condo. It has saved a lot of money too, because we eat at the hotel and then we are not hungry on the boardwalk where prices have sky-rocketed.

Phyllis28 Apprentice

You might consider buying a small Styrofoam ice chest when you get to Florida. The ice needs to be changed everyday. This would allow you to bring cold food such as gluten free chicken nuggets. I make them at home, freeze them and pack them in my check in suitcase in a soft sided lunch box with blue ice.

Call your hotel and ask if there is a microwave available for your use. If there is, you can make food at home, freeze it and pack it just like the chicken nuggets. I do this with pizza and baked potatoes. I also bring along or buy on arrival paper plates, bowls, and plastic plates.

Also, for breakfast I bring along gluten free cereal.

Yes, you are correct - one suitcase for cloths and one suitcase for food. I also research stores online that sell gluten free food. Buying food at my destination lessons the amount of food I need to bring along. I first look to see if there is a Wild Oats or a Whole Foods in the area.

blueeyedmanda Community Regular

I like the chicken nuggets idea. Nice!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Phyllis28 Apprentice

Chicken Nuggets is one of my favorite traveling foods. However, any gluten free cooked meat that can be eaten cold works.

Mango04 Enthusiast

The most important thing to remember is...your rules about food should not change just because you are in a different place. Everyone has their own way of coping with a gluten-free lifestyle, but my rules are:

1. Never eat anything unless I'm 100% sure it's safe

2. Don't rely on restaurant food - make my own food whenever possible

3. Carry my own food around if I'm going to be away from my own kitchen for any extended period of time.

The third rule is key while traveling. Make sure you always at the very least have an energy bar and some almonds and a piece of fruit (or something similiar) with you wherever you go so hunger does not tempt you to eat someting that might be unsafe.

Have fun :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    2. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    3. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    4. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

    5. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Small Bowel Resection 12 inches

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,832
    • Most Online (within 30 mins)
      7,748

    Duhgirl
    Newest Member
    Duhgirl
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.