Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can Your Blunted Villi Make Your A/d Not Work?


mflanders

Recommended Posts

mflanders Newbie

I have been suffering from major depression. In Feb., I went to a partial hospitalization program. Getting some therapy in a group and indivdual setting has been great. But, none of the meds seem to do anything except create side effects. I have tried many meds in the last 4 years. Ironically, I was dx with celiac at the same time symptoms started and did not go gluten-free until recently (several attempts but nothing too long).

I read the post that it could take up to 2 years to feel better. That is what it took my mom too (she and my sister both have celiac and my mom was very sick).

So, besides going strictly gluten-free, is there anything else that is recommended? What is your take on homepathic type things (fish oil, etc.). Just looking to speed up the process. I have been out of work because of the depression and treatment since the end of Feb and hope to go back on Tuesday.

Missy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

yes, damaged intestines can cause malabsorption of medication as well as food. celiac can cause depression all on its own as well, so that's a complicating factor.

besides pharmacological methods (even the homeophathic ones), a well balanced diet (not too high on the carbohydrates, but seriously balanced), exercise, plenty of sunlight, and a regular sleep schedule can help. oh, yes, I know that those things are next to impossible when you're dealing with depression (sigh... headshake... I wish it were easier...), but if you can get anyone to help you with it, or do anything to push you that way, it definitely can hellp.

UNCHeel Rookie

I think I read that 75% of your seratonin is produced in your GI tract so hopefully the longer you are gluten-free the more "access" you will have to your Seratonin and everything will improve. I was undiagnosed ADD I know and I have so much more focus even without ever having taken meds since I went gluten-free in Feb. It's absolutely amazing the difference. Hang in there.

larry mac Enthusiast
I have been suffering from major depression. In Feb., I went to a partial hospitalization program. Getting some therapy in a group and indivdual setting has been great. But, none of the meds seem to do anything except create side effects. I have tried many meds in the last 4 years. Ironically, I was dx with celiac at the same time symptoms started and did not go gluten-free until recently (several attempts but nothing too long).

I read the post that it could take up to 2 years to feel better. That is what it took my mom too (she and my sister both have celiac and my mom was very sick).

So, besides going strictly gluten-free, is there anything else that is recommended? What is your take on homepathic type things (fish oil, etc.). Just looking to speed up the process. I have been out of work because of the depression and treatment since the end of Feb and hope to go back on Tuesday.

Missy

Missy,

Realizing everyone is different, I can only say that for me there has really been no problem with prescription medicines that I can tell. Pre-celiac, post-celiac all the same medicine wise. And I was diagnosed with severely damaged villa via biopsy.

Don't quite understand, you were diagnosed celiac four years ago but only recently went gluten-free. What's up with that? Seems pretty simple to me. Your sick. You find out what's wrong with you. Celiac. You go gluten-free. You get better. I started feeling better immediately, like a miracle. Of course it took a little while to get back to normal. But I have no doubt I would still be sick if I hadn't gone gluten-free.

I wouldn't worry how long it took your Mom or others to get better. Every single person is different. Just like everyones symptoms are different. I wouldn't bother with homeopathics, they're just extremely watered down medicines, too weak to be effective. Take good vitamins. Read the posts on vitamins B12 (the methylcobalamin form), Magnesium (the chelated non-oxide forms, asparate, citrate etc.) Calcium, Vitamin D, Potassium etc. I've noticed a distinct improvement since I switched over. You speed up the process by being extremely careful not to ingest any gluten. That's really all you have to do. If you do that, and still don't get better, then you might have other issues. But I'm sorry, "not very long attempts" aren't going to cut it.

No more attempts, just make the decision to do it and then do it. I can always tell when people are just fooling themselves about quitting smoking. They say "I'm quitting when I turn 40", or "I'm quitting after the first of the year", or "I'm quitting next month". Either they put it off or it lasts a week. If they were really serious about quitting they would just do it - now! That's what I did when I quit, after smoking for 31 years. Haven't had a smoke in 10 years. Never missed it. Haven't had a bite of gluten in 4 months. Yes miss it very much, but don't want to be sick either.

best regards, lm

Ursa Major Collaborator

Missy, gluten can really mess with your brain. It can cause severe depression, schizophrenia, bipolar, ADD, autism and other interesting things.

I would not bother with the antidepressants at this point, but just go 100% gluten-free, as that is all you may need.

Cod liver oil is a great idea, as it will provide you with Omega 3 fatty acids (very important for your whole body, but especially for the brain), vitamin D and vitamin A (which you are likely deficient in).

Fish oil has nothing to do with homeopathic medicines, as it is a supplement, not a medicine. But I disagree that homeopathic medicines don't work, they worked well for me whenever I needed them, without side effects like 'normal' medications.

You seriously need to have your levels of essential nutrients checked, as it is likely that you are deficient in a lot of them. Ask your doctor to test your levels of ferritin (iron), hemoglobin, vitamin D, vitamin B6 and B12, , calcium, magnesium, vitamin K and potassium. Then you know which ones need supplementation, and which ones you are seriously deficient in.

Also, have a bone density scan done, to make sure you don't have osteoporosis already (even children with celiac disease can have it).

elye Community Regular

Great advice so far, and I only have one thing to add: you may want to start taking digestive enzymes, or probiotics. Easily googled! :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.