Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Without Weight Loss Or Stunted Growth?


momtogavin

Recommended Posts

momtogavin Newbie

Is it possible for a child to have celiac without the associated symptom of weight loss and/or stunted growth? As I posted a while back, I suspect my 10 month old has celiac but he is a porker and in the 95th percentile for weight. I am taking him to the doc next week for a blood draw (I think that is what they are going to do). I fed him whole wheat toast for lunch (about 1/2 slice) after his sweet potatoes and he has had 4 loose/pasty pale brown/yellowish stools. Just wondering if the weight loss/stunted growth is always indicative of Celiac. Thank you.

Natalie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shayesmom Rookie
Is it possible for a child to have celiac without the associated symptom of weight loss and/or stunted growth? As I posted a while back, I suspect my 10 month old has celiac but he is a porker and in the 95th percentile for weight. I am taking him to the doc next week for a blood draw (I think that is what they are going to do). I fed him whole wheat toast for lunch (about 1/2 slice) after his sweet potatoes and he has had 4 loose/pasty pale brown/yellowish stools. Just wondering if the weight loss/stunted growth is always indicative of Celiac. Thank you.

Natalie

Yes, it is possible to have celiac and still be in the 100th percentile for weight and height. The very first child that I met with celiac disease (prior to finding out about my dd's gluten problems) was in the 95th for both height and weight. He had biopsy and blood proven celiac disease. My dd had FTT and did not test positive for celiac disease on blood work. We opted out of the biopsy as her GI felt she was too little to biopsy, had egg allergies and soy intolerance (not a great candidate for anesthesia) and we were fed up with invasive tests.

It may also be that your son has extreme gluten sensitivity and not celiac disease. No matter what the results are, trust in your own observations on this. You live with your son. No one will know his reactions to foods better than you and tests aren't always accurate.

HTH

momof2sn Apprentice
Yes, it is possible to have celiac and still be in the 100th percentile for weight and height. The very first child that I met with celiac disease (prior to finding out about my dd's gluten problems) was in the 95th for both height and weight. He had biopsy and blood proven celiac disease. My dd had FTT and did not test positive for celiac disease on blood work. We opted out of the biopsy as her GI felt she was too little to biopsy, had egg allergies and soy intolerance (not a great candidate for anesthesia) and we were fed up with invasive tests.

It may also be that your son has extreme gluten sensitivity and not celiac disease. No matter what the results are, trust in your own observations on this. You live with your son. No one will know his reactions to foods better than you and tests aren't always accurate.

HTH

What is the difference between gluten sensitivity and celiac disease??

2kids4me Contributor

Celiac disease is an autoimmune disease. The body reacts to the gluten as an invader and attacks the intestinal villi where the gluten is absorbed = flattened villi, damaged intestine, malabsorbtion. Untreated celiac may also result in other autoimmune conditions if left untreated.

Gluten sensitivity has many similar symptoms to celiac but the villi are not attacked by the immune system.

Removing gluten form the diet solves both conditions.

Lactose intolerance and/or casein allergy/sensitivity has intestinal symptoms (and skin) too.

Blunted villi can be found in cases of casein intolerance bu the damage is not as severe as in celiac . Blunting as opposed to complete flattening and lymphoctyes invading.

I probably dont have all the info - I hope other posters will correct me if I am wrong and/or offer further insight.

**my daughter was bloated and considered overweight at the time of diagnosis. She "slimmed out" within weeks of gluten free. It wasn't fat - it was fluid retention and bloating

Sandy

ptkds Community Regular

My dd was the biggest out of all my kids, and she was the first one diagnosed w/ celiac disease. I am overweight and I was recently diagnosed w/ celiac disease. So yes, it is VERY possible to be big and still have celiac disease. You should request the test. It won't do any harm to check.

ptkds

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748

    ZENken
    Newest Member
    ZENken
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.