Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dh And My Sanity!

SarahCC

By SarahCC
in Dermatitis Herpetiformis

Recommended Posts

SarahCC Rookie
SarahCC
Posted

Hi, I guess a little background since this is my first post EVER on any thing like this. I was diagnosed with Celiac Disease in 2005 and never really stuck to the diet until about a few months ago. About a year ago I started getting these rashes on the creases of my elbows and on my thighs. I didn't think about it, but long story short, it turned out to be DH. I have been going to the dr. and at first he gave me tetracycline and I had an allergic reaction to that, my neck swelled up and was extremely itchy to the point of pain. Then the Dr. gave me Dapsone only 50mg a day and two days ago the left side of my neck swelled a little, not to the level that it did before but is stil itchy and painful. My legs are covered in DH spots and rashes. I can't take this stupid itching anymore, I have been staying on a strict gluten free diet for about two months and it has only gotten worse. I was also perscribed a lotion triamcinolone acetonide and its pretty much worthless.I have tried almost every anit itch creame on the market and nothing is helping. I am about to lose my mind!! HA! Someone please give some advice or something. Thank you so much. By the way I am so excited that I found this site, I knew I wasnt the only person with this but i don't know anyone else and this place makes me feel not so alone in dealing with this! Thanks again.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


wowzer Community Regular
wowzer
Posted

I feel for you. Have you checked all your cosmetics, soaps, detergents, lotions etc.? I was using this Oil of Olay body wash only to find out it contained gluten. It was making me worse. I wish you luck. Also check your medications to make sure they are gluten free.

zagadka Newbie
zagadka
Posted

aww, that sucks.

i would suggest switching to all natural cosmetics and toiletries, but be careful! i just realized last night that i've been using Aveda for years and have had a very itchy scalp/ neck/ face on and offf...looked at the ingredients- BOOM... "wheat amino acids"...i'm totally bummed. i love aveda.

i googled "gluten free shampoo" last night and there are a few companies out there that manufacture many toiletries. good luck!

SarahCC Rookie
SarahCC
Posted
  • Author

You know that never even occured to me. I thought all I had to worry about was ingesting gluten! Great....lol Thanks for letting me know. Me and my legs appreciate it! :)

  • 2 weeks later...
jesse Newbie
jesse
Posted

what are some shampoos that are gluten free?

also, what are some detergents that are gluten free?

curious,

jdog

zkat Apprentice
zkat
Posted

Aubry Organics makes gluten free shampoos and conditioners. The conditioner is very heavy and hard to rinse out of my hair, so I switched to Desert Essence-they have an entire line of gluten free products, including lotions, shampoo, conditioners and other styling products. They smell very yummy too.

For soaps, I just use oatmeal soap, I can't think of the brand, but it works well. I use it to wash my face every day and it works better than the expensive stuff I used to use.

I know there are some mainstream products that are gluten free, but I prefer the all natuarl products.

glutenfreenew Rookie
glutenfreenew
Posted

i have major dh problems as well. I find that all of toms of maine products are wonderful and also i find that neutragena works well as far as make up , face wash and shampoo and conditioner. you can also order a catalog from csa at 1-877-csa-4csa. its about 30 dollars and will give you an entire book that gives you gluten free items from health care to any type of food you can think up. totally worth it :lol: try to watch labels for anything with wheat in them and avoid. hope this was helpful . feel free to pm if you want any more help, i have been dealing with this for about a year and it is so frustrating :( as for detergents i am ok with arm and hammer baking soda detergent that is perfume free and bounce dye free and perfume free dryer sheets.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


casnco Enthusiast
casnco
Posted
Hi, I guess a little background since this is my first post EVER on any thing like this. I was diagnosed with Celiac Disease in 2005 and never really stuck to the diet until about a few months ago. About a year ago I started getting these rashes on the creases of my elbows and on my thighs. I didn't think about it, but long story short, it turned out to be DH. I have been going to the dr. and at first he gave me tetracycline and I had an allergic reaction to that, my neck swelled up and was extremely itchy to the point of pain. Then the Dr. gave me Dapsone only 50mg a day and two days ago the left side of my neck swelled a little, not to the level that it did before but is stil itchy and painful. My legs are covered in DH spots and rashes. I can't take this stupid itching anymore, I have been staying on a strict gluten free diet for about two months and it has only gotten worse. I was also perscribed a lotion triamcinolone acetonide and its pretty much worthless.I have tried almost every anit itch creame on the market and nothing is helping. I am about to lose my mind!! HA! Someone please give some advice or something. Thank you so much. By the way I am so excited that I found this site, I knew I wasnt the only person with this but i don't know anyone else and this place makes me feel not so alone in dealing with this! Thanks again.

Sorry you are so miserable. I can totally relate. I am seeing an herbalist today because my DH is out of control. I tried all of the meds you mentioned and have had allergic reactions. I use CALMOSEPTINE barrier cream for my DH. You can order it through your pharmasist.(sp) or go to www.calmoseptine.com Good luck. keep us posted on your successes with DH

  • 3 weeks later...
Drew Newbie
Drew
Posted

I have DH. I was mystified by continued sores even after going gluten-free. It turns out that also avoiding Corn, Soy, and Cow Dairy makes my skin go clear finally ! Also, no chocolate and no coffee. I think its worth a try because DH is a nightmare. Good Luck

  • 2 weeks later...
ariesmama Newbie
ariesmama
Posted
I feel for you. Have you checked all your cosmetics, soaps, detergents, lotions etc.? I was using this Oil of Olay body wash only to find out it contained gluten. It was making me worse. I wish you luck. Also check your medications to make sure they are gluten free.

I never knew that soaps could contain gluten in them...Myself, I swear by Olay moisturinse, it's a lotion that you spread on your skin, then rinse off, and it stopped the itching in my arms and legs the first time I used it...I don't know if it has any gluten in it, but it sure works for me, I won't be without it now...

wowzer Community Regular
wowzer
Posted

I would check the ingredients on your Oil of Olay. I was using their hypoallergenic body wash with aloe. Turns out it had gluten in it. It did feel comforting when I showered, but my rashes just kept getting worse. It took me awhile to figure out that it was causing me a lot of problems.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,201
    • Most Online (within 30 mins)
      7,748
    Judy Wysocki
    Newest Member
    Judy Wysocki
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      CT with contrast.

      By Scott Adams · Posted

      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      New labs are now very elevated

      By Scott Adams · Posted

      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
    • trents
      Chances of being coeliac

      By trents · Posted

      @JettaGirl, "Coeliac" is the British spelling of "celiac". Same disease. 
    • JettaGirl
      Chances of being coeliac

      By JettaGirl · Posted

      This may sound ridiculous but is this supposed to say Celiacs? I looked up Coeliacs because you never know, there’s a lot of diseases related to a disease that they come up with similar names for. It’s probably meant to say Celiacs but I just wanted to confirm.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.