Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Fell Off The Wagon!

dally099

By dally099
in Dermatitis Herpetiformis

Recommended Posts

dally099 Contributor
dally099
Posted

morning everyone, well i fell of the wagon yesterday and ate the oatmeal, choco chip cookie that the baby didnt want. so after a couple of hours i had a rash on the back of both my legs, and this morning my hands are itchy as well my toes are itch and a little swollen. sigh-trying to do this, im good most days but im sure every one here had their breaking moments once in a while in the begining to. anyone else get this swollen itchy toe thing? the rash is gone on my legs at least, plus my chin is tingly and itchy.

have a great day all!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Well you can look at it this way, now you know for sure and for certain that you don't want to cheat again. The repercussions can be too severe. I hope this is all that happens, with me I would be tied to the bathroom 2 days later and ready to kill everyone in sight, or me. :D

Sometimes experience really is the best teacher. Hope you get over this quickly.

blueeyedmanda Community Regular
blueeyedmanda
Posted

I fell off the wagon, early in my gluten free days. The after effects were so much worse than before I knew I had celiac. This is enough for me to not cheat. Its kinda of one of those live and learn lessons. Hope you feel better soon. By the way, my symptoms are also all GI related so I was miserble as well.

Born2run2 Rookie
Born2run2
Posted
:unsure::o I also hope that is the extent of your reaction. I also get a severe case of the hives as well as having to stick close to the bathroom. I have both Celiac disease and the Dermatitis thing going. I sure hope you start feeling better, maybe keep some gluten free goodies on hand. That way you won't be tempted to eat the other stuff. Judy :P
Nantzie Collaborator
Nantzie
Posted

I hope you're feeling better. :( The best way I found to keep temptation at bay is to keep a big stash of gluten-free goodies. There are always those days when you're just ticked at the whole situation. Massive amounts of chocolate can go a long way toward making yourself feel better.

The automatic mom thing can be hard to adjust out of too. I totally blanked out one day at ate the last few cheese crackers off my daughter's plate before I realized what I was doing - I was supposed to be eating gluten for testing, but wasn't planning on eating any that day.

I get a rash on the backs of my hands, and my scalp and the insides of my ears itch sometimes. The itching/pain goes away after a day or two, but the appearance of the rash doesn't go away for about three weeks or so.

Nancy

Franceen Explorer
Franceen
Posted

I too fell off the wagon at first. Last March in Hawaii on a trip. I paid for it dearly.

I still have problems with traveling and eating at restaurants. It's bad enough that you get "gluten'd" inadvertently, and that happens often enough to keep me on the wagon all the time.

I get severe DH anywhere and everywhere. And the inside of my ears itch terribly.

Right now I have rash on my shins and ankles from picking at a meal on a plane. They didn't get my gluten-free meal order on time and it was a 7 hr flight. So they tried to give me something that would be gluten-free, but it was contaminated!

Then there's the "lunch out" problem. I TRY to steer people to a place I can trust but don't always succeed. They all LOVE pizza places and I have to eat potato chips for lunch at a pizza place.

Oh well. I'm itching right now from last weeks trip. The rash takes WEEKS to go away.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,393
    • Most Online (within 30 mins)
      7,748
    HeckelCrazy
    Newest Member
    HeckelCrazy
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Coeliac UK Research Conference 2025

      By Scott Adams · Posted

      Thanks for sharing this!
    • Scott Adams
      Shingles - Could It Be Related to Gluten/ Celiac

      By Scott Adams · Posted

      I had the same thing happen to me at around your age, and to this day it's the most painful experience I've ever had. For me it was the right side of my head, above my ear, running from my nerves in my neck. For years before my outbreak I felt a tingling sensation shooting along the exact nerves that ended up exactly where the shingles blisters appeared. I highly recommend the two shot shingles vaccine as soon as your turn 50--I did this because I started to get the same tingling sensations in the same area, and after the vaccines I've never felt that again.  As you likely know, shingles is caused by chicken pox, which was once though of as one of those harmless childhood viruses that everyone should catch in the wild--little did they know that it can stay in your nervous system for your entire life, and cause major issues as you age.
    • trents
      Blood tests low iGA 4 years later digestive issues

      By trents · Posted

      Keep us posted.
    • Clear2me
      Gluten free nuts

      By Clear2me · Posted

      Thanks for the info. I recently moved to CA from Wyoming and in that western region the Costco and Sam's /Walmart Brands have many nuts and more products that are labeled gluten free. I was told it's because those products are packaged and processed  in different  plants. Some plants can be labeled  gluten free because the plant does not also package gluten products and they know that for example the trucks, containers equipment are not used to handle wheat, barely or Rye. The Walmart butter in the western region says gluten free but not here. Most of The Kirkland and Members Mark brands in CA say they are from Vietnam. That's not the case in Wyoming and Colorado. I've spoken to customer service at the stores here in California. They were not helpful. I check labels every time I go to the store. The stores where I am are a Sh*tshow. The Magalopoly grocery chain Vons/Safeway/Albertsons, etc. are the same. Fishers and Planters brands no longer say gluten free. It could be regional. There are nuts with sugar coatings and fruit and nut mixes at the big chains that are labeled gluten free but I don't want the fruit or sugar.  It's so difficult I am considering moving again. I thought it would be easier to find safe food in a more populated area. It's actually worse.  I was undiagnosed for most of my life but not because I didn't try to figure it out. So I have had all the complications possible. I don't have any spare organs left.  No a little gluten will hurt you. The autoimmune process continues to destroy your organs though you may not feel it. If you are getting a little all the time and as much as we try we probably all are and so the damage is happening. Now the FDA has pretty much abandoned celiacs. There are no requirements for labeling for common allergens on medications. All the generic drugs made outside the US are not regulated for common allergens and the FDA is taking the last gluten free porcine Thyroid med, NP Thyroid, off the market in 2026. I was being glutened by a generic levothyroxin. The insurance wouldn't pay for the gluten free brand any longer because the FDA took them all off their approved formulary. So now I am paying $147 out of pocket for NP Thyroid but shortly I will have no safe choice. Other people with allergies should be aware that these foreign generic pharmaceutical producers are using ground shellfish shell as pill coatings and anti-desicants. The FDA knows this but  now just waits for consumers to complain or die. The take over of Wholefoods by Amazon destroyed a very reliable source of good high quality food for people with allergies and for people who wanted good reliably organic food. Bezos thought  he could make a fortune off people who were paying alot for organic and allergen free food by substituting cheap brands from Thailand. He didn't understand who the customers were who were willing to pay more for that food and why. I went from spending hundreds to nothing because Bezo removed every single trusted brand that I was buying. Now they are closing Whole foods stores across the country. In CA, Mill Valley store (closed July 2025) and the National Blvd. store in West Los Angeles (closed October 2025). The Cupertino store will close.  In recent years I have learned to be careful and trust no one. I have been deleberately glutened in a restaurant that was my favorite (a new employee). The Chef owner was not in the kitchen that night. I've had  a metal scouring pad cut up over my food.The chain offered gluten free dishes but it only takes one crazy who thinks you're a problem as a food fadist. Good thing I always look. Good thing they didn't do that to food going to a child with a busy mom.  I give big tips and apologize for having to ask in restaurants but mental illness seem to be rampant. I've learn the hard way.          I don't buy any processed food that doesn't say gluten free.  I am a life long Catholic. I worked for the Church while at college. I don't go to Church anymore because the men at the top decided Jesus is gluten. The special hosts are gluten less not gluten free. No I can't drink wine after people with gluten in their mouth and a variety of deadly germs. I have been abandoned and excluded by my Church/Family.  Having nearly died several times, safe food is paramount. If your immune system collapses as mine did, you get sepsis. It can kill you very quickly. I spent 5 days unconscious and had to have my appendix and gall bladder removed because they were necrotic. I was 25. They didn't figure out I had celiac till I was 53. No one will take the time to tell you what can happen when your immune system gets overwhelmed from its constant fighting the gluten and just stops. It is miserable that our food is processed so carelessly. Our food in many aspects is not safe. And the merging of all the grocery chains has made it far worse. Its a disaster. Krogers also recently purchased Vitacost where I was getting the products I could no longer get at Whole Foods. Kroger is eliminating those products from Vitacost just a Bezos did from WF. I am looking for reliable and certified sources for nuts. I have lived the worst consequences of the disease and being exposed unknowingly and maliciously. Once I was diagnosed I learned way more than anyone should have to about the food industry.  I don't do gray areas. And now I dont eat out except very rarely.  I have not eaten fast food for 30 years before the celiac diagnosis. Gluten aside..... It's not food and it's not safe.  No one has got our backs. Sharing safe food sources is one thing we can do to try to be safe.        
    • Mmoc
      Blood tests low iGA 4 years later digestive issues

      By Mmoc · Posted

      Thank you kindly for your response. I have since gotten the other type of bloods done and am awaiting results. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.