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Is There A Difference Between Celiac Disease And Gluten Intolerance/sensitivity?


FabulaScribe

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FabulaScribe Newbie

I'm new to this, but have suspected for years that I have a problem with wheat. I recently began reading everything I can get my hands on, and I've been eating gluten-free for 8 days with great results so far.

I have read some web sites that seem to consider a gluten allergy/sensitivity to be included under the title of Celiac Disease and I've seen other things that seem to separate the two. I'm not anemic and am not underweight - quite the opposite, in fact. I've started to drop weight just since I went gluten-free, and until today I wasn't even watching my calories or anything. I don't want to ask my doctor to test me for Celiac Disease if all I am dealing with is an allergy. My symptoms are mental focus problems, gas bloating, water bloating, consistant weight gain and trouble losing weight, horrible fatigue, depression, migraines, arthritis - things like that. But no malnutrition.

Thanks for whatever anyone can tell me!


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mftnchn Explorer

You might find this website helpful: Open Original Shared Link

Good luck, I'm just two steps (days) ahead! ;)

lonewolf Collaborator

This is my opinion: Celiac Disease is one form of gluten intolerance. True Celiac Disease can only be diagnosed if there is damage to the villi of the small intestines. BUT, there are many other manifestations of gluten intolerance, most just as serious as celiac disease. Some people have neurological problems, some have severe arthritis or other horrible illnesses. I have a kidney problem that is directly linked to gluten intake. (No nephrologist or GI would ever diagnose me as having such, but I've figured it out on my own.) Since there are no tests for anything other than villi damage, that is the only symptom that gets the attention.

You might not have "true" celiac disease, but you may still be completely gluten intolerant. It doesn't mean you have any less of a problem with gluten.

darlindeb25 Collaborator

I feel that flatten villi is the final stages of celiac disease, yet it is celiac disease no matter what. For now, for most doctors, it's celiac disease only if they see flatten villi. I feel they just have not developed testing methods to know it's celiac disease before the flatten villi happen. We should not have to wait to be that sick before knowing.

At the vendor fair this weekend, a group of us were talking and someone asked what the difference is between gluten intolerance and celiac disease and the answer was, "Absolutely nothing, if you are intolerant, then you are celiac!" I agree, totally. There is no fine line, just different stages of the disease, flattened villi being a stage none of us should have to reach before being diagnosed. One elderly gentleman told me he had been sick most of his life. He had gone to the doctor year after year with severe diarrhea and was told all those things we have heard, IBS, colitus, nervous stomach, etc. He was 70 yrs old before they decided it was celiac disease and now, no diarrhea. BUT, look at the value of the life he lived--it's sad.

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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
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