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Rock Info?

jen2be2

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jen2be2 Explorer
jen2be2
Posted

Does anyone have the info. for the ROCK group for SO CAL? We just moved to CA.

Thanks!

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Juliet Newbie
Juliet
Posted

Whereabouts in So. Cal.? With which chapter would you be affiliated?

jen2be2 Explorer
jen2be2
Posted
  • Author

We are in Riverside County~ Temecula\French Valley/Murrietta/ Winchester area.

Juliet Newbie
Juliet
Posted

Sorry for the late response!

I'm not affiliated with your chapter. I can say that the ROCK event I went to in the Glendale area was not that helpful for me right now since my son is under 5. It seems to be tailored a little more to the 5 and over crowd since the events center around kids and what they'd like to do. At 3 1/2, my son is just a running monkey and not ready to sample food and talk about school or decorate cookies (though he'll eat them :) ) However, talking with one of the leaders of the ROCK group over here was very helpful. She gave lots of tips and where to shop and what worked for everyone in her family. Also gave the tip of making a large number of unfrosted cupcakes and freezing them for up to 2 months. I defrost one as they are needed for a birthday party or other celebration.

What I found more helpful at this time was going to the actual Celiac support groups right now since they had the most information on food, what's available, and latest research. At this age, that's what's most important is for me to know these things while he just starts to understand what has gluten and what doesn't. He doesn't feel that different and definitely doesn't feel deprived yet. :)

Here's the head of the ROCK chapter & Celiac chapter in your area Inland Empire

Kellee Shearer (951) 242-8448 - treshearer@aol.com

  • 2 weeks later...
Ruby Rose Newbie
Ruby Rose
Posted
We are in Riverside County~ Temecula\French Valley/Murrietta/ Winchester area.

Hi,

I have been living with celiac for 25 years and I have lived in Temecula for 20 years. Please feel free to contact me at RRKiesling@aol.com

Also, I'm a preschool teacher and I have thought about starting a ROCK group. Danna Korn sent me all the info about this, but I haven't acted upon it yet.

Mary ... aka Ruby Rose

:)

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    • knitty kitty
      High DGP-A with normal IGA

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      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
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      High DGP-A with normal IGA

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