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phakephur

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phakephur Apprentice

There is an Open Original Shared Link about gluten free diet. No new information.

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eleep Enthusiast

Oh, I kind of just want to smack them for not mentioning more specifics about why it's so hard to diagnose and what the specifics of the controversy are.

mandasmom Rookie
Oh, I kind of just want to smack them for not mentioning more specifics about why it's so hard to diagnose and what the specifics of the controversy are.

I actually think it was a really good article.

spunky Contributor

Well it's interesting, and probably informative...but, I feel somewhat irritated at the tone of the article in general. Being undiagnosed, mostly because I have no faith in doctors and am accustomed to dealing with problems on my own, I am quite sure by this time that I do have celiac disease, but have no "doctor proof" on paper. It's kind of embarrassing to me to think that people who know I avoid gluten may get the idea that this is some hypochondriacal, "alternative" trend or something, and not take me seriously, either for all the suffering I've been through or all the care I now KNOW I need to take in choosing my foods.

There seems to be this double-edged message: Yes, on the one hand, celiac is much more common than previously believed, and more and more people seem to be gettting it--and on the other hand, hypochondriacs who read a lot are having some sort of psychotic episode, IMAGINING that they have this trendy disorder.

eleep Enthusiast
Oh, I kind of just want to smack them for not mentioning more specifics about why it's so hard to diagnose and what the specifics of the controversy are.

Yes, it was a really good article in a lot of ways. I may just idealize the Times a bit too much and have gotten my hopes up about the extent to which they might be able to call attention to the whole thing in all its complexity. It's just really good that this made the Times! Celiac has gotten so much amazing publicity in a very short amount of time.

They mention latent forms of the illness and they mention depression, which are both very important aspects of the issue.

kbtoyssni Contributor

I thought it was a good article. I liked that they addressed the fact that some people are using it to lose weight when they don't have the disease, that testing isn't accurate if you've gone gluten-free, the last quote about it not being so bad to go gluten-free. Yes, there are some things they could have added and I wasn't too excited about gluten-free being a "fad", but I don't expect one article to contain everything - it would be twenty pages long! They packed a lot of info into this relatively short article.

ENF Enthusiast

I'm really happy about this article - many more people will hear about Celiac because of it.


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mookie03 Contributor
I thought it was a good article. I liked that they addressed the fact that some people are using it to lose weight when they don't have the disease, that testing isn't accurate if you've gone gluten-free, the last quote about it not being so bad to go gluten-free. Yes, there are some things they could have added and I wasn't too excited about gluten-free being a "fad", but I don't expect one article to contain everything - it would be twenty pages long! They packed a lot of info into this relatively short article.

Funny, i laughed when they talked about using the diet to lose weight because you cant eat twinkies - i for one ate healthy before the diet and now i eat much more sugar, carbs, etc. b/c the gluten-free substitutes are simply not as healthy as their gluten-filled counterparts. I didn't love the tone of the article - i was thinking that if i didnt know anything about gluten i would have thought it was some weird fad or something. The writer seemed to think that people are blaming gluten for everything, when really i think a bigger problem is the lack of knowledge about gluten.

But, publicity is publicity. Great to see gluten in the times!

ekdumas19 Apprentice

I was totally put off by this article. It barely touched on the symptoms or the struggles of people with celiac disease. Eating even small traces of gluten entirely interupts my life, its not just a nuisance. And by saying that gluten free products are practically on every shelf, it makes it seem like its not big deal. Well its a big deal to me! I mean yeah there are so many gluten free products out there, but a majority of them still taste terrible, are highly caloric, fall apart if I breathe on it, and are terribly expensive. I dont know anyone else who pays almost 5 dollars for a loaf of bread! Take out and delievry pizza is a pipe dream, nevermind eating out in restaurants still makes me nervous. Don't even get me started on people using a gluten free diet as a way to lose weight, I could literally smack them upside the head. Don't get me wrong, we have come a long way in terms of education, awareness, and the amount of gluten free products available, but I think the NY Times hardly did celiac disease, or even gluten intolerance justice.

ENF Enthusiast

Well, this may come as a shock to some, but take out and delivery gluten free pizza is not a "pipe dream" in NYC, and you can have many other foods from the gluten free menus in a number of restaurants here as well. It's only a matter of time until other areas have these options, and gluten free accomodations and services are still in their infancy in NYC.

glutenfreenew Rookie

Picazzo's is a restraunt chain in AZ that serves gluten free pizza. a little expensive but good.

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    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
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      Thank you I will i have been on a strict gluten free diet ever since I got diagnosed but sometimes places lie about there food so there r some things that do get contaminated which causes me to throw up on end for several hours until I can't hold myself up anymore 
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