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Screaming For Help!

ConcernedMissy30

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ConcernedMissy30 Newbie
ConcernedMissy30
Posted

My mother got deathly sick last year in October. During her many hospital stays it was finally determined that she had Celiac disease. We have been on a Celiac diet since then. After giving her TPN treatments through IV to build her back up, she was doing really well. The vomiting and diarrhea have returned, and I noticed that she has lost a lot more weight. In January, my mother weighed 162. Two weeks ago May 3, she weighed 130, and now she weighs 121.5lbs as of May 12th. I am at a lost for words. I don't know what to do...or where to get help. The doctors don't seem to be doing anything. Any help at all would be appreciated.

Thank you,

Missy

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Nantzie Collaborator
Nantzie
Posted

I'm so sorry she, and you, are having such a rough road. It sounds like she might be getting gluten somewhere. Are you sure she's 100% gluten-free? No second-hand gluten (cross contamination)?

Quite often we hear about the only direction from doctors and dieticians is just don't eat it. Sometimes they don't seem to be aware of things like you have to get a new toaster and new cutting board, verify your shampoos, cosmetics, etc. You also have to be careful of foods if you're in a shared environment. For example, you can't put a knife in the butter to butter a piece of gluteny bread, and then use the same butter for her gluten-free bread. The butter is no longer useable for after it's used for gluten.

As her body gets more used to being gluten-free, something that may have seemed fine at first may be causing a reaction.

Nancy

happygirl Collaborator
happygirl
Posted

You need a new doctor, and they need to run another Celiac panel, (the full panel) to see if her problems are still gluten related.

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