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Feeling Glutened : (

dawnrose008

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dawnrose008 Rookie
dawnrose008
Posted

New to this site! Hello everyone,

I was diagnosed with Celiac disease in April and have been gluten-free for about 5 weeks now. I went through a period of feeling better, than MUCH worse, so I decide to cut out dairy as well about 3 days ago and have improved, especially with bloating, since. However, I started to get bad stomach cramps last night, and this morning I've been feeling tired, lightheaded, and foggy. I think I may have been glutened but I don't know from what??!! I've been very careful about cross-contamination in the kitchen and haven't eaten out at all. I'm also pretty sure all of my shampoo, soap, make-up and lotion are gluten-free. (with the exception of Nivea body lotion..can't find a definitive yes or no on that one). I started taking Prilosec yesterday...their website says it's gluten-free. Does anyone else on this site take it?? Has anyone been glutened from farm-raised salmon, the kind with the color added? I ate that yesterday too. Please help! Thanks.

  • 2 weeks later...
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girlywhirly Newbie
girlywhirly
Posted

I am new too, having been diagnosed in early April. Before my endoscopy they diagnosed me with ulcers and I took Prilosec for several weeks. It made me feel worse so i stopped taking it and discovered that most likely it was a lack of stomach acid that further affected my digestion issues. My natural health care practicioner recommended that I take stomach building supplements (acidophilus, and other specially made gut strengthening supplements) which has provided the most help. As far as the salmon goes, I still have difficulty digesting salmon too, it makes me feel glutened every time I eat it. I would love to know what makes it have that effect as well!

dawnrose008 Rookie
dawnrose008
Posted
  • Author

Thanks for the response! That's interesting about Prilosec...I may try to wean myself off of it and see if it helps at all, since I am still having digestive issues after almost 2 months on gluten-free diet. Also, interesting that other people have the same reaction to salmon!

happygirl Collaborator
happygirl
Posted

d.r.: welcome to the site --happy you have found it :)

how are you feeling now? have you seen an improvement since your original post?

Best of luck!

dawnrose008 Rookie
dawnrose008
Posted
  • Author

Happygirl,

Thanks for the response! I've actually been struggling with symptoms still, since my first post. Still feeling tired, lightheaded, dizzy, weak, not much of an apetite, indigestion...I'm being very careful about gluten, and dairy, so not sure what is causing the symptoms at this point. I'm going back to my GI tomorrow, and I've started seeing a nutritionist and keeping a food diary. Hopefully I'll feel better soon. Thanks again!

Murph Newbie
Murph
Posted

I'm wondering if wild salmon would affect u also. Farm-raised includes a coloring added and I have no idea what's in that, tho I'd bet it's not gluteny.

Also wondering what else u ate on salmon day.

I think most celiacs w/ long-term damage get leaky-gut (compromised intestinal permeability) and intestinal candida, which can make yeast ingestion feel like being glutened. Also the leaky gut can create other food allergies, tho hopefully temporary. It was corn for me, among others.

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

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    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Contact them.
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