Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):
    GliadinX

    Celiac.com Sponsor (A1-M):
    GliadinX

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question For Parents With Kids In Elementary School

gfgypsyqueen

Recommended Posts

gfgypsyqueen Enthusiast
gfgypsyqueen
Posted

Just when I thought the school year was finally running smoothly...it's over. School ended today. My child attends after school care at her elementary school, which turns into summer camp with 3 field trips a week. Her Kindergarten teacher is great. The after school group kill me.

It has been a crazy two weeks for other reasons so today I stop in to talk to the after school director. Short version is my childs epi-pen is in the bottom drawer of a file cabinet in the shopping bag that I dropped it off in months ago. There is no paperwork, emergency plan, nothing. The school nurse is gone for the summer.

Aren't all schools required to have county paper work about all medications? Emergency plans? Aren't all medications supposed to be locked?

How many of you have a "504" for your child? I have been hesitant to set up a 504 because it seems so confrontational. What are the negatives in setting up a 504? Does it affect her health insurance/life insurance later? Has the school been resistant or had a bad reaction to you establiushing a 504? Most everyone has been very open to learning about the food issues in our family. This is the first time that I have a group that has control of my child and will not care for her correctly. What would you do? I am working on pulling her out for the summer, but she will very likely have to go back for the fall. I have to work and the school is the safest when it comes to the food issues.

Any advice???

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Tierra Farm
Little Northern Bakehouse

Celiac.com Sponsor (A8-M):
Holidaily Brewing Co.

janelyb Enthusiast
janelyb
Posted

in the area I live in they kid with any kind of medication or medical condition is required to have a formed filled out and signed by the doctor. My older child has asthma and an inhailer. Now in our area we don't have an afterschool program so I am not sure how that works. I would guess the site supervisor should have had you fill out some kind of paperwork and I would guess the epi pen should be kept in a area away from other kids and with the other medications or allowed to be carried on person like my daughter does with her inhailer.

I would get a 504 if I were you, that way there is a set plan in place on documentation.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):
    GliadinX
    Tierra Farm


    Celiac.com Sponsors (A17-M):

    Authentic Foods


  • Recent Activity

    1. cristiana
      - cristiana replied to Betsy Crum's topic in Related Issues & Disorders
      6

      Chest pain from celiac

      My chest pain has been caused by costochondritis, as well as times when iron supplements has given me such bad bloating it has put pressure on my back and chest, and reflux can do the same. Also, along the lines of Wheatwacked's suggestion above, is it possible you had an injury to your chest/ribs way back that is being set off by either some sort of...
    2. Dora77
      - Dora77 posted a topic in Coping with Celiac Disease
      0

      Ocd making gluten fears unmanageable. Need advice

      Sorry for the long post. I’m 18, and I was diagnosed with celiac disease and type 1 diabetes (T1D). My transglutaminase IgA was >128 U/mL, EMA IgA positive twice, and I’m HLA-DQ2 and DQ8 positive. I’ve been completely asymptomatic since diagnosis, even when I cheated with gluten sometimes in the past and used to eat out(2-5 years ago) I don’t get...
    3. lmemsm
      - lmemsm posted a topic in Gluten-Free Recipes & Cooking Tips
      0

      beans in dessert recipes

      I've been making a lot of black bean brownies lately because it's one of the few gluten free dessert recipes that actually tastes palatable. I've also seen chocolate cake recipes with black beans. Someone mentioned a cookie recipe using lentils in place of flour. Just wondering if anyone's run across any tried and true recipes using beans, lentils or peas...
    4. lmemsm
      - lmemsm replied to bluebird2032's topic in Gluten-Free Recipes & Cooking Tips
      2

      Gluten free/ non dairy , low calorie pudding

      I've seen a lot of recipes for chia pudding, so I decided to make some with chia, water, cocoa and honey. Didn't like the taste, so I added ground sunflower and ground pumpkin seed to it. It tasted okay, but came out more like frosting that pudding. I used to make pudding with tapioca starch, milk powder, water and sugar. It came out very good but I haven...
    5. lmemsm
      - lmemsm posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Finding gluten free ingredients

      Seems like when I find a gluten free product I like, the producer stops manufacturing it and then I have trouble finding a new gluten free source for it. What's worse, I've been contacting companies to ask if their products are gluten free and they don't even bother to respond. So, it's making it very hard to find safe replacements. I was buying teff flour...
  • Celiac.com Sponsor (A19):
    Food for Life


  • Member Statistics

    • Total Members
      130,293
    • Most Online (within 30 mins)
      7,748
    BeMum
    Newest Member
    BeMum
    Joined
  • Celiac.com Sponsor (A20):
    Daura Damm

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):
    GliadinX


  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):
    Holidaily Brewing Co.


  • Upcoming Events

  • Posts

    • cristiana
      Chest pain from celiac

      By cristiana · Posted

      My chest pain has been caused by costochondritis, as well as times when iron supplements has given me such bad bloating it has put pressure on my back and chest, and reflux can do the same. Also, along the lines of Wheatwacked's suggestion above, is it possible you had an injury to your chest/ribs way back that is being set off by either some sort of gastrointestinal bloating/discomfort? I distinctly remember really hurting a rib over forty years ago when I misjudged a wall and thought it was just behind me but in fact it wasn't.  I fell badly against the wall and I think I cracked a rib then.  For some strange reason I didn't tell anyone but I think had I gone to hospital an X-ray...
    • Dora77
      Ocd making gluten fears unmanageable. Need advice

      By Dora77 · Posted

      Sorry for the long post. I’m 18, and I was diagnosed with celiac disease and type 1 diabetes (T1D). My transglutaminase IgA was >128 U/mL, EMA IgA positive twice, and I’m HLA-DQ2 and DQ8 positive. I’ve been completely asymptomatic since diagnosis, even when I cheated with gluten sometimes in the past and used to eat out(2-5 years ago) I don’t get the typical celiac reactions, which makes it really hard to know when (or if) I’ve been glutened. But for the past year, I’ve been the most strict with my diet, and that’s also when a bunch of new issues started. I eat completely glutenfree, never eat out, dont eat food that says „may contain gluten“.   Current Health...
    • lmemsm
      beans in dessert recipes

      By lmemsm · Posted

      I've been making a lot of black bean brownies lately because it's one of the few gluten free dessert recipes that actually tastes palatable.  I've also seen chocolate cake recipes with black beans.  Someone mentioned a cookie recipe using lentils in place of flour.  Just wondering if anyone's run across any tried and true recipes using beans, lentils or peas for desserts?  I've seen a lot of recipes for garbanzo flour but I'm allergic to garbanzo beans/chickpeas.  Was wondering if adzuki or pinto beans might be useful in replacing some or all of the flour in baking.  Since gluten free flours can be crumbly was hoping the beans might help produce a better, less crumbly consistency.  Any...
    • lmemsm
      Gluten free/ non dairy , low calorie pudding

      By lmemsm · Posted

      I've seen a lot of recipes for chia pudding, so I decided to make some with chia, water, cocoa and honey.  Didn't like the taste, so I added ground sunflower and ground pumpkin seed to it.  It tasted okay, but came out more like frosting that pudding.  I used to make pudding with tapioca starch, milk powder, water and sugar.  It came out very good but I haven't figured out what to use to replace the milk powder to make it dairy free.  Most starches will work in place of tapioca starch but quantity varies depending on the type of starch.  If I didn't add enough starch to get a pudding consistency, I'd add gelatin as well to fix it.  Avocado and cocoa makes a good dessert with a pudding like...
    • lmemsm
      Finding gluten free ingredients

      By lmemsm · Posted

      Seems like when I find a gluten free product I like, the producer stops manufacturing it and then I have trouble finding a new gluten free source for it.  What's worse, I've been contacting companies to ask if their products are gluten free and they don't even bother to respond.  So, it's making it very hard to find safe replacements.  I was buying teff flour at nuts.com and they no longer carry it.  I noticed Naturevibe has teff and soy flour.  However, I can't get a response as to whether their flours are safe for someone with celiac.  Can't get a response from Aldi if their peas are safe for someone with celiac either.  I know Bob's Red Mill has teff flour but was hoping to get a large quantity. ...
×
×
  • Create New...