Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):
    GliadinX



    Celiac.com Sponsor (A1-M):
    GliadinX


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can't Find My Answer In Any Another Post...can You Help?


jessdreams

Recommended Posts

jessdreams Rookie

Hi all,

I just got the results from my blood test and they are negative =( It may sound odd but I was REALLY hoping and praying for a positive result b/c it would mean an end to years of unexplained problems.

Ok so here is my question, I have heard a lot on these boards about people getting false negative...but does that just mean that those people have "boarderline" or "weak positive" results? I am looking at the test results right now and my scores are LOW!

Antiglaidin IgA = 1

Antiglaidin IgG = 2

tTG IgA = 1

tTG IgG = 1

A little backround, for about 2 months before blood test I was doing Weight Watchers Core, which is somewhat low carb, really the only gluten I was eating was a bowl of shredded wheat in the morning and possibly some trace ammounts of hidden gluten although I wasn't eating much processed food at all. I tried to pump up the gluten in the week I had between the doc prescibing and me actually having the blood drawn, but....

Is it possible that my diet was too low in gluten to show the anitbodies in my blood but high enough to cause symptoms? I have been gluten free since the test since that seems to be the real test and I "think" I feel better but I'm not sure of anything anymore.

Please be honest, am I barking up the wrong tree?

Thanks in advance,

Jessica


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Little Northern Bakehouse
NutHouse! Granola Co.



Celiac.com Sponsor (A8-M):
NutHouse! Granola Co.


mamaloca2 Apprentice

"Is it possible that my diet was too low in gluten to show the anitbodies in my blood but high enough to cause symptoms? I have been gluten free since the test since that seems to be the real test and I "think" I feel better but I'm not sure of anything anymore. "

I think it is very possible that could have effected it. Also, if you are gluten intolerant (which acts the same), instead of celiac, it will not show up in the tests.

I wasn't sure either 'till I sat down and wrote down all the little things that I had before going gluten free (ie: cracked lips, very bad skin, extreme mood swings) and realized i hadn't even thought about those things lately because they had all pretty much gone away. the only time I notice them are when I get glutened.

CarlaB Enthusiast

I would think the bowl of shredded wheat would be enough ... I know it would be enough to make me sick!! LOL

What are your symptoms? Which have gotten better? Which do you still have?

I would go on the gluten-free diet. If your symptoms go away, then you know you have a gluten problem. If they don't, then you know it's something else. If they don't go away, you can still ask here if anyone has any suggestions ... many of us are familiar with the other diseases that can look like celiac. There's a tremendous amount of experience here.

kbtoyssni Contributor

The shredded wheat might be enough to make you sick, but it's very possible it's not enough to show up on a blood test. I think the guideline is 3-5 slices of wheat bread for several months prior to the blood test to get a positive if you have celiac. Gluten-light could be enough to not give you a positive. Try the diet and see how you feel. If you feel better after a few months, you have your answer.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):
    Little Northern Bakehouse



  • Member Statistics

    • Total Members
      129,726
    • Most Online (within 30 mins)
      7,748

    J.P. Linder
    Newest Member
    J.P. Linder
    Joined

  • Celiac.com Sponsor (A20):
    Holidaily Brewing Co.


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):
    GliadinX




  • Celiac.com Sponsor (A21):
    Little Northern Bakehouse



  • Upcoming Events

  • Posts

    • Idnam
      They do work for me. I am feeling much better now that I am watching my histamine intake and only take the DAO once  a day.   I had acid reflux for 12 years and was prescribed PPI's.  which I refused to take. Ranitidine was prescribed as an option that I did use only as and when I had chest pain. They were prescribed for me to reduce the acid in my body.
    • Yaya
      This is difficult for me to deal with.  B complex is what stands between me and migraines.  Whenever I stop B for just a few days, I get a migraine.  All my adult life I would get a violent migraine for 3 days like clockwork until a doctor told me to try B complex and it worked.  The only time I get a migraine is when I've run out of B.  This has worked for me for over 15 years.  I am soon to be 79.   My cardiologist has me stop all vitamins for about 3 days and I always have a migraine when I go in for the bloodwork.   D level is nearly at optimal.  I don't take A, I get enough from food.   What a dilemma!
    • Scott Adams
      I think the best approach is to lean how to read product labels, especially the allergen warnings, and these lists might be helpful:      
    • Scott Adams
      It looks like you are referring to this product: https://shop.kingarthurbaking.com/items/gluten-free-bread-flour Their site says: "Made with gluten-free wheat starch to give baked goods incredible taste and texture, it’s ideal for classic yeasted recipes like artisan boules, bagels, cinnamon rolls, and burger buns", and it is true that Codex quality wheat starch is gluten-free, and does make better baked goods. However, it also contains very low levels of gluten (under 20ppm), and some celiacs do react to this level, so if you are super sensitive it's best to avoid it. They also make this very similar product, which doesn't include any wheat ingredient, and is certified gluten-free:...
    • DebJ14
      Our Functional Medicine doctor has always ordered the Spectracell Test for Micronutrient Deficiencies.  It tests the intracellular levels of the nutrients, not blood levels.  When high dose, targeted supplementation did not resolve the deficiencies after retesting at 6 months and then a year, he ordered genetic tests.  I have a genetic inability to process Vitamin D, B12 and antioxidants, so I am on high doses of those for life.  The rest of the initial deficiencies resolved within 6 months to a year and a good multi vitamin is sufficient to address those.  My husband has historically had high homocysteine levels and his low folate, B 12 and B6  levels are because of his MTHFR gene...
×
×
  • Create New...