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Sandi

By Sandi
in Coping with Celiac Disease

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Sandi Explorer
Sandi
Posted

i have always had the opp. effect never runs.

I have been gluten free for about 5 days

and dairy and casin free at least 3 of those days

It seems everything is making me nauses and runs

anything else i should be doing?

I just did the endolab but i will mail it tomorrow but its a 3 week wait for that

I also think i am starting meopause -- would that make a difference

sandi

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Murph Newbie
Murph
Posted

I never heard a good theory as to why, but alternating D & C is very common at the start of a celiac's gluten-free diet. Happened to me.

It'll get better.

If you've been suffering from celiac's effects for quite awhile, chances are u have other complications like leaky-gut (increased intestinal permeability) and intestinal candida overgrowth. These will temporarily make other foods affect u negatively. Plenty of info on both w/in this forum.

tmk Explorer
tmk
Posted

not sure if related, but my D is always 100x worse when hormonal -- so your menopause may have a bit of effect?

hope you feel better soon!!! :)

sfm Apprentice
sfm
Posted
i have always had the opp. effect never runs.

I have been gluten free for about 5 days

and dairy and casin free at least 3 of those days

It seems everything is making me nauses and runs

anything else i should be doing?

I just did the endolab but i will mail it tomorrow but its a 3 week wait for that

I also think i am starting meopause -- would that make a difference

sandi

Sandi - Right now, your intestines are still a mess. The diarrhea might be around for awhile, the intestines take awhile to heal. Taking a gluten free probiotic supplement is usually recommended, as well as digestive enzymes (always check for gluten free). I also take a gluten free, casein free fiber supplement, which was finally what stopped my diarrhea completely - well, most of the time, anyway. But that was after about 5 months gluten free, when everything else was feeling better except for that symptom.

My stomach is still somewhat sensitive; I'm not sure whether that part ever goes away. You may be finding that other foods bother you for awhile. When I took away the gluten that was making me feel sick all of the time, I started being able to notice what other things made my stomach upset!

Good luck and hang in there, eat lots of really basic foods for now (meat, potato, vegetables, fruit). Some people have problems with raw vegetables at first. Try not to overload your stomach, that has been an issue for me, even now it still is.

Sheryll

jknnej Collaborator
jknnej
Posted

I had the same issue when going gluten free years ago....then to my surprise I learned that you are supposed to wean off gluten, not stop right away, and that I suffered MAJOR gluten withdrawl for about 6 months before I got better.

That could be it. Remember, your body is going through a HUGE massive change...diarrhea may be normal in the short term.

sfm Apprentice
sfm
Posted
I had the same issue when going gluten free years ago....then to my surprise I learned that you are supposed to wean off gluten, not stop right away, and that I suffered MAJOR gluten withdrawl for about 6 months before I got better.

That could be it. Remember, your body is going through a HUGE massive change...diarrhea may be normal in the short term.

I never heard of weaning off gluten before. I thought a lot of the initial symptoms may be withdrawal, but also because your intestines are so messed up.

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    • trents
      Fiber Supplement

      By trents · Posted

      Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their level of sensitivity to minor amounts of gluten. That's the long and nuanced answer. The short answer is that it is a product derived from wheat and so you can be certain it will contain some residual amounts of gluten. No gluten removal process is 100% effective. So, to be absolutely certain, stay away from it. Have you tried chia seeds? Very high in fiber and quickly turns into a gel when added to water. Make sure you get seeds that are gluten free if you decide to try it.
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      I was taking Benefiber for my IBS-C before my celiac diagnosis. It does say Gluten Free but lists Wheat Dextrin on the label. I really dont like psyllium fiber, so is there anything else I can take or is the Benefiber really ok for someone with Celiac disease?  Thanks!!!
    • kpf
      ttg iga high (646 mg/dl) other results are normal

      By kpf · Posted

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    • trents
      ttg iga high (646 mg/dl) other results are normal

      By trents · Posted

      What are your symptoms? What has brought you to the point where you sought celiac disease testing?
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