Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Symptoms Of Lactose Intolerance


little d

Recommended Posts

little d Enthusiast

Hello all

I think that I am slowly coming to the relization that I just might be lactose intolerant. Today after I ate my ceral it was gluten-free maple buckwheat flaks I had 2% milk with it. About an hour after I ate I started to get a little burpy with mild heartburn, that was about 4pm then about 5pm my stomach started to feel heavy and arms and legs felt tired as well. I did have the need to go poo but not anything too bad. so I just waited until i got to work. Now I am having a lot more heartburn. this is pretty much how I have felt after eating my cereal. Yes I did get some gluten last night but my reaction was not too bad. So I don't know if this is Lactose interalance symptoms or just from having some gluten last night. But this was a little more immediate than delayed.

donna


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest j_mommy

Lactose intolerant symptoms are the same for me as the celiac symptoms! i am lactose intolerant, but I can drink about an 8oz glass a day(or equivalent of other dairy products) without problems...more than that and it's to the loo for me!

Michi8 Contributor
Hello all

I think that I am slowly coming to the relization that I just might be lactose intolerant. Today after I ate my ceral it was gluten-free maple buckwheat flaks I had 2% milk with it. About an hour after I ate I started to get a little burpy with mild heartburn, that was about 4pm then about 5pm my stomach started to feel heavy and arms and legs felt tired as well. I did have the need to go poo but not anything too bad. so I just waited until i got to work. Now I am having a lot more heartburn. this is pretty much how I have felt after eating my cereal. Yes I did get some gluten last night but my reaction was not too bad. So I don't know if this is Lactose interalance symptoms or just from having some gluten last night. But this was a little more immediate than delayed.

donna

Doesn't sound like lactose intolerance to me.

My lactose reaction is gut wrenching pain, cramping and bloating followed by the sudden need to run to the bathroom. More often than not, as soon as I "sit down," the need (and pain) stops, without any "progress". As soon as I leave the bathroom, the need strikes again. I liken the feeling in my gut to a brick slowly moving through my intenstines.

I've tested my reactions, and have found that I tolerate higher fat dairy products very well. Ice cream is fine, but ice milk (eg DQ) causes immediate problems. The lower fat the milk is, the more sudden the reaction. I also tolerate yogurt and cheeses quite well. Seems my tolerance has improved a bit since going gluten free too.

Michelle

SunnyDyRain Enthusiast

It could be lactose, or it could be casien Intolerance. I have a casien intolerance becasue even when I only drink lactaid milk I still got gas and very crappy overall feeling.

I'd suggest going a day with no dairy, then getting some lactose milk, and drinking that without any other Dairy at all the next day.

If your sick it's Casien if your ok, try the regular milk the next day, if your still ok, it was a fluke, if your sick it's lactose.

little d Enthusiast

OK thanks I was just wondering, I only get that way after eating any cereal with Milk, I don't think that I had the same reaction with Soy Milk, I did kinda like the Soy milk. I guess that I'm gonna have to try elinination with Milk, well I don't know because I may only drink milk maybe 2 to 4 time a week if that.

Donna

little d Enthusiast
It could be lactose, or it could be casien Intolerance. I have a casien intolerance becasue even when I only drink lactaid milk I still got gas and very crappy overall feeling.

I'd suggest going a day with no dairy, then getting some lactose milk, and drinking that without any other Dairy at all the next day.

If your sick it's Casien if your ok, try the regular milk the next day, if your still ok, it was a fluke, if your sick it's lactose.

But I will have gone days maybe 2 or 3 that I won't have any milk or cheese, but my cheese is Lactose/Gluten free and I am fine with that, which I'll eat with gluten-free bread and gluten-free lunch meat. And what is the differance between casien and latose intolerance

Donna

Michi8 Contributor
But I will have gone days maybe 2 or 3 that I won't have any milk or cheese, but my cheese is Lactose/Gluten free and I am fine with that, which I'll eat with gluten-free bread and gluten-free lunch meat. And what is the differance between casien and latose intolerance

Donna

With casein intolerance, your body cannot tolerate the milk protein. With lactose intolerance, your body is not producing any/enough lactase enzyme to break down milk sugar (lactose) so it passes through the system undigested. Healing of the intestinal walls can help the body with regaining the ability to produce this enzyme, so celiacs who are gluten free may regain the ability to digest lactose.

Michelle


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



grey Explorer

I've been trying to do some research on these, but I'm not finding an answer. Are there tests for casein intolerance or lactose intolerance? Should celiacs maybe get these?

thanks.

With casein intolerance, your body cannot tolerate the milk protein. With lactose intolerance, your body is not producing any/enough lactase enzyme to break down milk sugar (lactose) so it passes through the system undigested. Healing of the intestinal walls can help the body with regaining the ability to produce this enzyme, so celiacs who are gluten free may regain the ability to digest lactose.

Michelle

confused Community Regular
I've been trying to do some research on these, but I'm not finding an answer. Are there tests for casein intolerance or lactose intolerance? Should celiacs maybe get these?

thanks.

there is a casein intolerance test threw enterolab, and your dr can test for lactose intolerance threw a breathe test or other ways(im not sure on the ways)

I tested postive threw enterolab test, but i have known for a long time that i cant have milk, for yrs sour cream, whole milk and ice cream killed my stomach. I get severe reactions, real bad anxiety and hot flashes and really bad cramping.

paula

little d Enthusiast

Ok can I assume that if I drink Soy milk and not get the same reaction from that as I do with regular milk that is it possible that I have a mild lactose intolerance going on. Not a single reaction that I can tell from the soy milk, at least not immediate.

donna

GeoffCJ Enthusiast
It could be lactose, or it could be casien Intolerance. I have a casien intolerance becasue even when I only drink lactaid milk I still got gas and very crappy overall feeling.

I'd suggest going a day with no dairy, then getting some lactose milk, and drinking that without any other Dairy at all the next day.

If your sick it's Casien if your ok, try the regular milk the next day, if your still ok, it was a fluke, if your sick it's lactose.

I tested negative for Casein with enterolab, but had convinced myself I was Lactose intolerant. Over the last few days, I didn't have hardly any dairy (not really intentional, but I was on a trip). I felt pretty damn good.

This morning a poured a bowl a cereal, and my lactaid milk. 10 minutes later I had to go to the bathroom. and it wasn't pretty.

I'm really, really upset. I'm not sure yet, but it certainly points to me needing to experiment more.

Geoff

little d Enthusiast
I tested negative for Casein with enterolab, but had convinced myself I was Lactose intolerant. Over the last few days, I didn't have hardly any dairy (not really intentional, but I was on a trip). I felt pretty damn good.

This morning a poured a bowl a cereal, and my lactaid milk. 10 minutes later I had to go to the bathroom. and it wasn't pretty.

I'm really, really upset. I'm not sure yet, but it certainly points to me needing to experiment more.

Geoff

Hi geoff

I did try a carton of soy milk and I did not like the results, I finished that carton and then I bought Lactaid milk 1% i didnt mean to buy the 1% but it was good enough and I have not had the same reaction as I have with the regular milk, what a relief, still battleling with the possiblilty of the DH on my hand.

donna

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,566
    • Most Online (within 30 mins)
      7,748

    Rrenee2990
    Newest Member
    Rrenee2990
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.